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Kenzie60
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Visit to Neuro
« on: Sep 30th, 2003, 3:36pm »
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I had a visit to the neuro today and it did not go very well.  I am one week into my current cycle and am starting to get hit pretty hard.  Last Friday night I ended up in the ER with a CH and panic attack.  They did an EKG that was abnormal, they said no more DHE shots until I saw the neuro on Tues.  This morning saw my GP who did another EKG, which was also abnormal.  Then off to the neuro's office I went.  This is what they said,  I can stay on my Verapamil 480mg, Topamax 100mg, Elavil 40mg and Zyprexa 5mg(up to 20mg a day).  That is it.  No DHE until I see a cardioloist.  
 
Then they asked me if I wanted to participate in a study using Depacon/Depakote.   They give you 1000mg of Depacon IV push for three days and 1000mg of depakote orally  for three days.  Then for the next 6 weeks or until your cycle ends, which ever comes first, you take 2000mg of depakote orally.  I still have not decided if i am going to do it or not.  I am going to go over all the paper work tonight.
 
Have a great and pain free night ;D
 
Roseanne
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Re: Visit to Neuro
« Reply #1 on: Sep 30th, 2003, 4:31pm »
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Well, Roseanne, not being a doctor I am not really qualified, but looking at all the meds on your list,  if I were in your shoes I'd say  NO.  Firmly.
Too much stuff in my opinion.
 
I'd try for the O2. Lots better for your bod than that med-cocktail.
 
But hey, who am I?
 
Good luck anyways
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Carl_D
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Re: Visit to Neuro
« Reply #2 on: Sep 30th, 2003, 4:39pm »
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One thing you MUST do is make sure all of your doctors, GP, Neuro, whomever, is on the same page with your treatment and condition. You know the old saying: too many cooks spoil the pot. Well, you are one pot, you don't have a spare. If you are having irregularities with your EKG, then it is most likely a bad idea for you to take the DHE, as it may do more damage, or even cause a heart attack. DEFINITELY check into o2 therapy. It can't harm you, only do you good.  
 
Take care,
Carl D
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Re: Visit to Neuro
« Reply #3 on: Sep 30th, 2003, 4:43pm »
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I agree and know even less that Ave but maybe if they get you off the other junk, it might make sense but I don't really know. Depakote just makes you hungry and you lose some hair.  
 
There aren't many success stories with Depakote so far as I can remember.
 
Charlie
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Kenzie60
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Re: Visit to Neuro
« Reply #4 on: Sep 30th, 2003, 5:24pm »
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Thanks for your input. I am leaning toward not doing it.  I am a little afraid of all the meds.  I have tried the O2 and it does not work for me.  I am really having a rough time right now.  I just want something that will work(so does everyone else!)  Thanks for listening!
 
Roseannne
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