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SommelierCH
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This Weeks EMAIL TARGET: Why?
« on: Sep 26th, 2003, 1:47pm »
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There are many roads to bring enlightenment to the world. All of us in Clusterville, should find the road that we are comfortable with, then work that road. I wish that I had the medical knowledge to converse coherently with doctors and the medical profession about our plight. But I don’t, I am always studying, but I’m not there. What I kinda know is: celebrities, entertainment business, wine and food. My road is chosen for me, now, I’m just trying to work that road.
 
All of you reading this know about ClusterHeadaches, almost all of you have at least heard of 100% Oxygen as an abortive. Let’s not keep this news to ourselves, let’s get the word out, any way we can, to the people who have no idea why their eye is going to explode. They are our brothers and sisters, we owe it to them. All of us have been there. Don’t you wish you had seen a television show on ClusterHeadaches?
 
The plan is to have all the ClusterHeads and Supporters around the world focus on one Target every week, with a barrage of email. We only want them to know… that we exist. Everything else WILL follow.
 
There will be 52 Email Targets every year. In this election year, many of these Targets will be politico’s, including the President, Presidential candidates, Congressional Committee Chairpersons who govern our health care, etc. We are starting out with the media. This is, as DJ said, “baby steps”.
 
 
 
The Email Target this week is The Discovery Channel (which was a popular suggestion, on this board, as an alternative to the original Montel). I hope everyone can now, finally, rally around this Email Target. Here is the direct link to their Viewer Relations Contact Page. As far as I can tell this is the only way to contact Discovery Heath.  
 
http://extweb.discovery.com/viewerrelations
 
Tell a small part of your story in two paragraphs, or just ask them to do a show on us. Who knows what will eventually get through?
 
These revised categories might help:  
 
How we support and love each other.  
The strength of the Supporters (you are angels for all of us).  
Short bio’s of personal hell.  
Hassles with Doctors.  
Hassles with Insurance.  
Hassles with Employers.  
Definition of our pain.  
How we deal with our families, how our families deal with us.  
Remedies we’ve tried, to relieve the pain.  
Meds that fuck up your life.  
Financial burden of CH.  
Internet medical support groups in general.
Any life-threatening misdiagnosis’.  
Suicide.  
 
Post back here if you emailed Discovery Channel, it will encourage others to get on board, and even a one word reply will help to keep this thread alive for any tweeners.
 
 
I guess I have to say from now on, this is not an OUCH approved project. I am doing this on my own volition. Believe me, I’m the first one to admit that I’m a whacko. But I’m used to me, by now.
David J.  
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Re: This Weeks EMAIL TARGET: Why?
« Reply #1 on: Sep 26th, 2003, 2:06pm »
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I do'ed it. ;D  Hope it helps.
 
jc
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Re: This Weeks EMAIL TARGET: Why?
« Reply #2 on: Sep 26th, 2003, 2:28pm »
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First Name     Chris  
Last Name    B
Email Address    cboc@sympatico.ca  
 
Question Regarding     Network/Program Related  
Postal/Zip Code      L3C4M1  
Signal Provider/
Cable Company      Cogeco  
Network Discovery Health Network (or) The Health Network  
Information needed    Other  
Program/Show      Medical Mysteries  
Last Watched   last week  
 
 
Ok Done, Next assignment please!!!!
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rumplestiltskin
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« Reply #3 on: Sep 26th, 2003, 3:33pm »
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Done deal
 
Walk in the sunshine
den
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Re: This Weeks EMAIL TARGET: Why?
« Reply #4 on: Sep 26th, 2003, 3:44pm »
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Done deal.  I think this is one of the best ideas anyone has had.  If we all joined together, we might just be able to get some air time, and some notice ...... which could only be a good thing !!!!!!!
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Re: This Weeks EMAIL TARGET: Why?
« Reply #5 on: Sep 26th, 2003, 3:51pm »
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UssCerebus reporting.........
 
Target aquired.........firing for effect.
 
Ramon
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Re: This Weeks EMAIL TARGET: Why?
« Reply #6 on: Sep 26th, 2003, 5:55pm »
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Thanks again David!
 
Nice selection!
 
Done...   ;D
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Re: This Weeks EMAIL TARGET: Why?
« Reply #7 on: Sep 26th, 2003, 9:40pm »
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Done,
thanks David for the link...that was pretty easy Smiley
Mast
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Re: This Weeks EMAIL TARGET: Why?
« Reply #8 on: Sep 26th, 2003, 10:51pm »
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Done.
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135447360 135447360   mondocharlie   mondocharlie
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Re: This Weeks EMAIL TARGET: Why?
« Reply #9 on: Sep 26th, 2003, 11:21pm »
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Makes 2 for me.  
 
The Health Network is a good idea. I just got it here.
 
Nicely done kids
 
Charlie
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Tara Ann
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Re: This Weeks EMAIL TARGET: Why?
« Reply #10 on: Sep 27th, 2003, 12:14am »
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Done ;D
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DJ
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Re: This Weeks EMAIL TARGET: Why?
« Reply #11 on: Sep 27th, 2003, 1:11am »
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Done here too.  Way to go David, I like it!
 
 Cool
DJ
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Re: This Weeks EMAIL TARGET: Why?
« Reply #12 on: Sep 27th, 2003, 1:57am »
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Add another!
 Just hope I didn't write a book.
 Hope this continues to grow and they respond.
 Good idea.
 Dave
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Re: This Weeks EMAIL TARGET: Why?
« Reply #13 on: Sep 27th, 2003, 9:07am »
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David,
I wrote to them yesterday....now we wait... Tongue
 
Jacks Cool
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Re: This Weeks EMAIL TARGET: Why?
« Reply #14 on: Sep 27th, 2003, 11:11pm »
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Already did it, just posting to bump this back up in sight Smiley
Dave
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Re: This Weeks EMAIL TARGET: Why?
« Reply #15 on: Sep 27th, 2003, 11:57pm »
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Wink
 
Done !!!
 
Hopefully if everyone will respond and send their message...we will be heard !!!
 
This is a great idea !!!   Cool
 
Thanks David J.
 
 
Jean      Wink
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Re: This Weeks EMAIL TARGET: Why?
« Reply #16 on: Sep 30th, 2003, 5:02pm »
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Hi Gang,
 Well, I finally just got an automated response from the Discovery Channel. Looks like we may have to do a little extra work to get their attention:
 
"If you do not find the information you are seeking from our website, please
go to our webform at  http://extweb.discovery.com/ViewerRelations and fill
out the information  by choosing :
   Question regarding:  Network/Program Related
   Network:  (Select a Network)
   Program:   Other
   Information Needed:  EXPLORE
Our  webform will then route your e-mail to the appropriate Discovery
Viewer Relations group for  response."
 
 Guess I'll try again, sure wish I had copied the original message I sent. Hope we all keep up on this, it's a great idea.
 Dave Emond
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6108764393 6108764393   Randy   Piscatorus
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Re: This Weeks EMAIL TARGET: Why?
« Reply #17 on: Sep 30th, 2003, 6:26pm »
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David........Even tho you DEFINITELY spend too much time smelling old corks, you mention oxygen, and you got my attention. O2 use and coverage for all is sort of my own personal bandwagon for the next epoch.
Good on ya, mate.
 Cluster headaches. Millions of dollars are OK'd for medications (most of which have SERIOUS side effects) to cope with cluster headaches. Time and again, pure Oxygen, one of the safest, most effective, well-documented methods of dealing with cluster headaches is ignored or denied by both insurance companies and the medical community. Please take time to look into this devastating affliction, and why the medical community has not embraced the use of Oxygen as a means of treatment.  
 Thank you for your consideration, Randy P. Jones Media, Pa. 19063

 
O24U2,
RJ
 
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Re: This Weeks EMAIL TARGET: Why?
« Reply #18 on: Sep 30th, 2003, 6:33pm »
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...wish I'd said that.....
 
 
...wait, I DID.... but not so ...eloquently, succinctly, and I must SAY:  
 
"it has a hint of chocolate... a nose of *burger*, and a finish that is just...... sublime.......or sub-genius.. or something...."
 
  ;D
« Last Edit: Sep 30th, 2003, 6:37pm by Not4Hire » IP Logged


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Re: This Weeks EMAIL TARGET: Why?
« Reply #19 on: Sep 30th, 2003, 8:11pm »
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Not4, you are cracking me up.  Randy is genious though.  I met him.  Even nicer in person than on the board ........ geez, is that possible ???????????? Randy, you are a sweetheart !!!!!!
 
Anyways ......... where the heck is our next assignment ?????  I am getting used to telling my story !!!!!!!!
 
Where the heck are the rest of you ........ don't ya have a story to tell ???????????????????????
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Re: This Weeks EMAIL TARGET: Why?
« Reply #20 on: Sep 30th, 2003, 8:27pm »
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I done did it.    
Gee, someone has GOT to be reading all those messages...  ???
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Re: This Weeks EMAIL TARGET: Why?
« Reply #21 on: Sep 30th, 2003, 10:40pm »
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Done deed here......that was simple enough........Lord knows us here can talk so why not get busy and get this small task which takes a few moments of your time done.
 
thanks for your efforts DaveJ
 
EDNA
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Re: This Weeks EMAIL TARGET: Why?
« Reply #22 on: Oct 1st, 2003, 12:01am »
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I musta hit one of the wrong things cause this is my response:
 
Dear Viewer,
 
Thank you for contacting Discovery Channel Networks.  In order to quickly
respond to your
e-mail, we are sending you this automated response.
 
Highlighted below are links to our website that provides information about
current programming,
shopping, and answers to our most Frequently Asked Questions.
 
 
 
  *     Programming/Scheduling Questions?
 
   Go to  . . .www.discovery.com and click on "View our TV
Schedules"
 
  *     Shopping for unique products, or looking for available
videotapes?
 
   Go to . . .www.shopping.discovery.com
 
    *     Frequently Asked Questions?
 
   Go to .  .
http://dsc.discovery.com/utilities/about/tvfaq.html
 
 
 
Enjoy the Discovery.com Experience!
 
Discovery Channel Viewer Relations
 
 
 
If you do not find the information you are seeking from our website, please
go to our webform at  http://extweb.discovery.com/ViewerRelations and fill
out the information  by choosing :
   Question regarding:  Network/Program Related
   Network:  (Select a Network)
   Program:   Other
   Information Needed:  EXPLORE
Our  webform will then route your e-mail to the appropriate Discovery
Viewer Relations group for  response.
 
 
Do you think anyone actually read my original request?
Mast
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Re: This Weeks EMAIL TARGET: Why?
« Reply #23 on: Oct 1st, 2003, 12:04am »
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i got the same thing, that is just an e-mail to let you know that they recieved yours! they will still get your original e-mail!
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Re: This Weeks EMAIL TARGET: Why?
« Reply #24 on: Oct 1st, 2003, 7:35pm »
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I'm in.
 
JoeP
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