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Topic: Please Help Us ALL! (Read 340 times) |
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Please Help Us ALL!
« on: Sep 19th, 2003, 5:23pm » |
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Catlind, and others, have been working VERY hard to get as many people involved in the upcoming survey about our quality of life.
If you have not emailed Catlind or signed on on her thread, please email her, saying you will join in the survey.
I am not sure many of you recognize how important this can be. How often do we see threads about how the insurance company limits the quantity of Imitrex? How about fighting to get insurance to cover O2 for Cluster Headache relief? How about the hassle just to get a doctor to prescribe these know abortives and preventatives?
This survey can get these remedies listed as being tried and true weapons specifically for Cluster Headaches! All of the above problems would then be SO much easier to deal with! With luck, those problems would be ELIMINATED!
Don has been reporting the historic advances that O.U.C.H. has made. Don and the worldwide O.U.C.H. leaders are setting a grueling pace. They cannot do this alone!
We are always talking and joking about grabbing an oar and start rowing. HERE IS PART OF YOUR OAR! Do your part!
Those of you that have already signed up, THANK YOU! Those of you that have not, why not?
Ok, before some one kicks out my soap box from under me, I will get off it.
Thank you
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Patrick_A
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If i could get my hands on that wascally Wabbit
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Re: Please Help Us ALL!
« Reply #1 on: Sep 19th, 2003, 6:15pm » |
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Bumperooski!
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Do you think that when they asked George Washington for his ID, that he just whipped out a One Dollar Bill?
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catlind
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Taz taught me the cluster dance
  
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Re: Please Help Us ALL!
« Reply #2 on: Sep 19th, 2003, 7:15pm » |
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I have about 225 replies right now. This is good, but we can do better. The more of us that are willing to do this survey, the better our database, the farther we can move in our cause to find a cure.
This really is important folks.
Before we can go anywhere with research and med labelling this is the first step.
Right now we are gathering an estimate of the numbers so that the survey can be prepared.
As I get further details I will let everyone know.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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CC
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what the hell does bump mean???
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jminmilwaukee
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Re: Please Help Us ALL!
« Reply #4 on: Sep 19th, 2003, 7:24pm » |
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Cat, sign me up please.
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OneEyeBlind
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Yea, I can do this
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Re: Please Help Us ALL!
« Reply #5 on: Sep 19th, 2003, 8:41pm » |
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I already signed up but I'm gonna go back to Mr. Happy's suggestion. Cat, don't ya think emailing everyone that has registered might get you more responses ??? I thought Mr. Happy had a great suggestion with that. Not everyone signs on to the board anymore, but might still have the same email addy. Perhaps you could get DJ to help you auto-magically send out the emails ??????????? Just a thought!
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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Cerberus
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Whomever said that two heads are better than one?
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Re: Please Help Us ALL!
« Reply #7 on: Sep 20th, 2003, 2:43pm » |
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Re-Bumpasaurus
Ramon
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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jonny
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on Sep 19th, 2003, 5:23pm, ClusterChuck wrote:| We are always talking and joking about grabbing an oar and start rowing. |
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Do you really think that rowing is a joke, Chuck?
I coined that phrase three years ago and its what keeps some people going that think they are at the end of their rope.....its not a joke, Bro
If it was a joke it would not be said so many times all day long.
...................................jonny
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ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
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Re: Please Help Us ALL!
« Reply #9 on: Sep 20th, 2003, 4:53pm » |
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on Sep 20th, 2003, 3:10pm, jonny wrote:
Do you really think that rowing is a joke, Chuck?
I coined that phrase three years ago and its what keeps some people going that think they are at the end of their rope.....its not a joke, Bro
If it was a joke it would not be said so many times all day long.
...................................jonny
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Jonny, I am sorry you took it that I thought it a joke. Nothing could be futher from the truth. I beleive in it whole heartedly, and if you were the one to start it, I comment you.
What I meant, is that we talk about it, AND we joke about it, as we joke about everything else. I did not mean to belittle it at all, and I appologize for seeming to feel that way.
I love the concept, and believe in it whole heartedly.
Thanks for bringing it to my attention.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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cathy
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Not all those that wander are lost......
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Re: Please Help Us ALL!
« Reply #10 on: Sep 20th, 2003, 5:16pm » |
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Hey Chuck just tell him to STFU he has no teeth in at the moment so he won't bite...lmao
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
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Re: Please Help Us ALL!
« Reply #11 on: Sep 20th, 2003, 5:20pm » |
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Mast, thanks for the info. Good going !!!!!!
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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goaway
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"Things take longer than they do."
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Re: Please Help Us ALL!
« Reply #12 on: Sep 20th, 2003, 6:16pm » |
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Bump Bump!
Cat,
Just tell me what to do.
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"If you get robbed by worry,.....it was an 'inside' job."
"...runnin' with the shadow...runnin' with the shadow..."
"We don't rent pigs."
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Lone_Wolf_FLA
New Board Newbie
Who Knew?!
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Re: Please Help Us ALL!
« Reply #13 on: Sep 21st, 2003, 8:32am » |
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I would be glad to participate.
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