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Topic: Rome Report Preview (Read 345 times) |
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don
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OUCH has recently achieved credibility from the world's most eminant researchers and neuros. The reception OUCH recieved was beyond my wildest expectations.
I was prepared to have to corner the US Docs to make our presence known. Not neccesary, the Docs, both US and otherwise, sort ME out in the crowd both at the meeting and on the sidewalk in front of the hotel.
The first to introduce herself was Dr. Buzzi from Italy who had practiced for some years at Harvard Medical School. Whats so special about Dr. Buzzi? She discovered Imitrex/Imigran. She made an effort to meet the OUCH officers.
Dr. Sheftell, founder of the New England Headache Clinic, sought me out after the meeting and excitedly stated "we got to go to your convention in New York this year".
Taking photos at the meeting seemed inappropriate, until an Italian neurologist requested a picture of all the OUCH officers with Doctor Nappi anfd Goadsby.
All in all OUCH was recieved in a very dignified, professional and warm manner.
Quote from Doctor P.J. Goadsby during his summary presentation...................................................
The Cluster Club (Neuros and scientists) has made history by having the patient group (OUCH) here with us today".
Damn near fell off my chair. He thinks they THEY made history? I cant begin to tell you, but I will in the report, what it meant for OUCH.
A Doctoral candidate from the University of Pennsylvania will be doing the first ever thesis on the sociology of headache sufferers. She has asked to use OUCH US as a resource for her paper.
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SFChris
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Excellent Don! What an amazing opportunity.
Chris
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BobG
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Re: Rome Report Preview
« Reply #2 on: Sep 17th, 2003, 3:32pm » |
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Wow! Way to go don and OUCH 
Quote:The Cluster Club (Neuros and scientists) has made history by having the patient group (OUCH) here with us today".
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Folks this is history in the making. Print it!
From a small group of people in a garage to world wide recognition in just 3 years. Unbelievable!
OUCH is a small organization now but just wait. The Cancer Society and Jerry Lewis' Telethon were small at one time also.
Thanks don and everyone connected with OUCH that made this happen.
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Stay stressed. Never relax. Never sleep. Ever.
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Mr. Happy
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Re: Rome Report Preview
« Reply #3 on: Sep 17th, 2003, 4:34pm » |
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on Sep 17th, 2003, 2:31pm, don wrote:| A Doctoral candidate from the University of Pennsylvania will be doing the first ever thesis on the sociology of headache sufferers. She has asked to use OUCH US as a resource for her paper. |
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I don't understand this. A year ago, danged few Docs would even acknowlege OUCH/CHer's. All of a sudden, they're growing wild and falling out of the trees.
Better times ahead........
RJ
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Have memories of never getting any.
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jonny
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on Sep 17th, 2003, 3:32pm, BobG wrote:Jerry Lewis' Telethon were small at one time also.
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So was jerry's head ;D
Even I have to give you props, Don...Big ups to ya Bro and big ups to OUCH for getting your recliner fartting ass there.
I bet anything electric that you brought with you didnt work.....LMMFAO ;D
...................................jonny
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Charlie
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Re: Rome Report Preview
« Reply #5 on: Sep 17th, 2003, 5:21pm » |
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What can I say?
Coolness Don. Coolness.
Gonna give Don a pass for ahwile. No iffy posts today.
I'll keep it in Word for awhile
Charlie
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Ann
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Re: Rome Report Preview
« Reply #6 on: Sep 17th, 2003, 7:23pm » |
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Too cool Don! Way to go to OUCH and Don!!
hugs
Ann
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JDH
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Re: Rome Report Preview
« Reply #7 on: Sep 17th, 2003, 9:30pm » |
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awesome Don,
I can't believe how far it's come since I was diagnosed in '85 and the neuro tells me "we just don't know much about these headaches." arrrrrgh!
Wow, this is HUGE!
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
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Riccardo
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Re: Rome Report Preview
« Reply #9 on: Sep 18th, 2003, 12:54am » |
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Hey there.
The story can be reassumed with the Elaine motto (Ciao My Lady..... not too much on the board, but I keep you, and all you in my heart!)
We are, each of us, angels with one wing and we can only fly by embracing one another.
Neurologists have discovered that they (right wing) cannot fly without us patients (left wing) and each one is necessary to "take off" with studies.
Ciao to all you
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Riccardo OUCH-Italia
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brain_cramps
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Re: Rome Report Preview
« Reply #11 on: Sep 18th, 2003, 4:51am » |
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on Sep 17th, 2003, 9:30pm, JDH wrote:awesome Don,
I can't believe how far it's come since I was diagnosed in '85 and the neuro tells me "we just don't know much about these headaches." arrrrrgh!
Wow, this is HUGE! |
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Couldn't have put it better myself. Great work Don (and everyone involved in OUCH worldwide).
Let's not stop here!
grant 
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2late
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Re: Rome Report Preview
« Reply #12 on: Sep 18th, 2003, 6:34am » |
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this is great new's.......FUCKENEH Don! ..............Jack
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Roxy
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Re: Rome Report Preview
« Reply #13 on: Sep 18th, 2003, 5:59pm » |
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Sorry Don....been offline while headed for the hurricane, and I missed this thread. Sounds like a lot of good was done by you and everyone else over there. They always say progress is slow, but lately it seems to be shining on the horizen for us.
Kudos for you......  Thank you for representing us so well.
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I used to have a handle on life....but it broke.
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suzy617
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Re: Rome Report Preview
« Reply #14 on: Sep 18th, 2003, 6:06pm » |
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Very cool Don!
Suzy
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When God measures men, He puts the tape around the heart, not the head.
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