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Topic: Afraid (Read 594 times) |
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Lissa
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I'm on my 18th day without a cluster but afraid to discontinue Verapamil. I want to be absolutely positive that this cycle is over before doing that. You know? What should I do?
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Episodic cluster survivor since 1995 at age 16.
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hopefull
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Re: Afraid
« Reply #1 on: Sep 15th, 2003, 9:16am » |
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don't take it then if you feel it coming back take it ..do this untill you don't feel it coming back....but at the first twinge take it...before you know you won't be needing it...but don't panic and make it worse than it has to be....
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TxBasslady
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Bass fishin' is a h00t It's the catchin' that sux
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Re: Afraid
« Reply #2 on: Sep 15th, 2003, 9:33am » |
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Oh wow, I know the feeling, Jewel...
I am on my 6th pf day. Doing the prednisone taper. It has been great not having a visit from the beast. But, much like you, I wonder......Dread it when I complete the taper, not knowing if the ch returns or not.
Oh well, guess I better worry bout things I can control..... ???
Best wishes to ya for pfdan....and for the courage to do what ya need too
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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jonny
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on Sep 15th, 2003, 8:58am, Jewel wrote:
Rip off your arm and beat yourself to death with it.....LMMFAO ;D....................(Just kidding)
You should know that if you slow down on the Verap you will have less in your system so if you do get nailed it will take time to build back up, you cant just pop one and expect it to work.
Id give it a few more days just to be safe, a few more days of Verap will do you no harm as long as your body handles the stuff ok.
..................................jonny (And I was just kidding ;D)
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Lissa
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Re: Afraid
« Reply #4 on: Sep 15th, 2003, 1:57pm » |
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Thanks Jonny! And I know you were kidding. Hehe! 
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Episodic cluster survivor since 1995 at age 16.
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ZAIRA
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Re: Afraid
« Reply #5 on: Sep 15th, 2003, 1:58pm » |
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My experience ;D, if I realize that the dosage I’m taking makes feel me better, I reduce Verapamil “gradually” till arriving to 0 mg/day.
Best wishes to you to remain PF and don’t forget to stay hard. ;D ;D ;D ;D ;D ;D
Zaira 
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Love yourself, Love others, Love often, Forever!
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jonny
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I have a wacked out sense of humor ;D
Verap is one thing I know, well two (lithium)....ive been taking both everyday for 13 years. I made the mistake of going cold turkey and paid for it for nearly a week till I got the levels built back up.....I aint never doing that again.....LOL
..............................jonny (And good luck to you)
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TxBasslady
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Re: Afraid
« Reply #7 on: Sep 15th, 2003, 2:08pm » |
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;D
........jonny.........jonny........jonny
What a sense of humor you have.... 
You are so damn funny. Some of the stuff you post makes me laugh till i cry.
My wish is that someday I have the ultimate pleasure to meet you and all the others that gather here for support and relief.
Laughter is such good medicine......you must truly be an "angel".
Thanks Jonny........
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas!
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5-string
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Nothing is accomplished without passion
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Re: Afraid
« Reply #8 on: Sep 15th, 2003, 2:15pm » |
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I was told by my neuro to take it through the end of cycle then stop until about 6 weeks or so before it starts again.
I'm with Jewel, I've doing really well over the past week or so. With the exception of these shadows that won't go away. I'm afraid to stop taking verapamil also.
I did'nt know you could take them year round.hmmm.
I guess the only problem is the fact that it costs me $30.00 a bottle with insurance. At a buck a piece it would'nt make sense to take them out of cycle but like Jewel, I'm afraid to.
Jonny, what happened when you went cold turkey??? did you kill anybody?
....Mark..
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jonny
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on Sep 15th, 2003, 2:08pm, TxBasslady wrote:| .you must truly be an "angel". |
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"Angel"?.......LOL
If you saw me you would want to arrest me, Jean.....LMAO ;D
Not your average looking clusterhead ;D
.....................................jonny
Ya 5-string...damn near killed myself ;D
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| « Last Edit: Sep 15th, 2003, 2:17pm by jonny » |
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ZAIRA
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Re: Afraid
« Reply #10 on: Sep 15th, 2003, 2:19pm » |
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on Sep 15th, 2003, 2:15pm, jonny wrote:
"Angel"?.......LOL
If you saw me you would want to arrest me, Jean.....LMAO ;D
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Love yourself, Love others, Love often, Forever!
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TxBasslady
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Re: Afraid
« Reply #11 on: Sep 15th, 2003, 2:36pm » |
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Well now, I have read this entire site.....seen all the pics that you guys have taken over the years. ummm, musta missed the part about us havin to look a certain way !! 
I have seen your pic....and have seen the smiles and laughter and can only imagine the good times you guys have had when you have been able to get together.
Just hope that I can be there one day!!!!!!!!!
You just keep that great sense of humor.........it really is a calm in the storm. I hope you know how much it helps.
Jean (who is old, retired, has grandchildren, but would give jonny a hug when and if she ever gets the chance)
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas!
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jonny
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on Sep 15th, 2003, 2:36pm, TxBasslady wrote:| Jean (who is old, retired, has grandchildren, but would give jonny a hug when and if she ever gets the chance) |
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You will get that chance mark my words!!
I love bass fishing although I know its better fishing where you are (I watch fishing shows.....LOL ;D)
Think "Convention"
................................jonny
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Lissa
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Re: Afraid
« Reply #13 on: Sep 15th, 2003, 2:52pm » |
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If I stop cold turkey at 180 mg I don't think I'll have much withdrawal....do you?
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Episodic cluster survivor since 1995 at age 16.
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jonny
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on Sep 15th, 2003, 2:52pm, Jewel wrote:| If I stop cold turkey at 180 mg I don't think I'll have much withdrawal....do you? |
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No, but why chance it when you can taper in one week? ;D
...............................jonny
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Lissa
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Re: Afraid
« Reply #15 on: Sep 15th, 2003, 3:00pm » |
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I guess I'll take your advice.... 
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Episodic cluster survivor since 1995 at age 16.
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UnsolvedEquation
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The Verapamil won't hurt you if you keep taking it, however...it might if you quit.
Better think about it !
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surfshi
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Re: Afraid
« Reply #18 on: Sep 15th, 2003, 3:06pm » |
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I had the saome thought coming to my mind but I made the decision on my own without any other information and for me that was the wrong thing to do. Reluctant as I was, I made it a point not to take any medication unless I thought it was going to help me sometimes if the "Doc" said it would" none of us I think really find the pleasure in taking medication if we didn't halfto, thats one of the reasons I find it so difficult to accept the fact that their are people out their that would take anything without reason just to get off and they dont even need to know what it is for sakes it could be rat poison or drano and they still wouldnt care.This really bothers me ....Anyway...I was cluster free for about two weks myself at one time and I thought oh man the cycles broke, Yipe, so I discontinued the Verapimil, shortly after words the demon came knocking and I don't know who let the beast in. The cycle got into full swing just a few days later and it seemed forever to break it once again. Of course the first thing I asked the doctor was how long will it take to get back up to 720 that was my eraser level to combat the demon. I cant answer your question all I can tell you is this is what happened to me I still am maintaining a dose of 240 sr at night as a preventitive I have concern to discontinue. So glad you have been pain free,just keep up your shield and take care all of you... Surf
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jonny
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on Sep 15th, 2003, 3:04pm, UnsolvedEquation wrote:The Verapamil won't hurt you if you keep taking it, however...it might if you quit.
Better think about it ! |
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I think thats been established.....LMMFAO ;D
........................jonny 
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CathiP
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Jonny?!!! ??? An Angel? !!!! ???HeeHee ;D, Hoo Hoo ;D, Haa Haa ;D......I'm rolling here ;D......tears streaming down my face!!!!!!!!!
............yeah, truth is, he is a devlishly good angel!
.....with a great sense of humor!!!!
Jonny, hope you're doing better now...I know you were doing battle for awhile.......are ya back on top now?
PF!
Cathi
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Lissa
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Re: Afraid
« Reply #21 on: Sep 15th, 2003, 3:28pm » |
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I'm taking enough medication as it is. I'm actually quite eager to stop taking Verapamil. I don't like having all these drugs in my system. You know?
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Episodic cluster survivor since 1995 at age 16.
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UnsolvedEquation
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It might be the Verapamil that is keeping the beast away. Maybe ?
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jonny
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on Sep 15th, 2003, 3:27pm, CathiP wrote:| Jonny, hope you're doing better now...I know you were doing battle for awhile.......are ya back on top now? |
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The battle rages on Cath, but I had nine weeks to recharge the old batteries so im ready for anything this prick can throw at me, the thing that he has been unable to understand in the last 28 years is that "I NEVER LOSE!!" ;D
But thanks for asking
..............................jonny
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Charlie
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Re: Afraid
« Reply #24 on: Sep 15th, 2003, 3:45pm » |
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Sorry about this kid.
All I know is to work on my technique. I know you all give up on the thing but it works a good chunk of the time. It doesn't work immediately but it can really shorten them.
Kick it in ass.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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