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Topic: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUSTER (Read 250 times) |
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ITALIANJON79
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HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUSTER
« on: Sep 9th, 2003, 5:41pm » |
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I am a 23 year old male from Philadelphia, who just had yet another cluster headache. It ended 5 mins ago, this one lasted about 45 mins....the one last night about 2 hours. I passed out numberous times during these attacks including once at work last year and last night and about an hour ago... I act like a raging lunitic when these headaches occur, last night i ripped my bed apart, punched through my bedroom door and became a monster while my helpless grandmother watches...I vomitted last night, this was a first for me while having these headaches for about 3 years....before last night I can say it has been almost a year for me....nothing helps except for the time i was in the ER and they gave me oxygen....WHAT DO I DO...WHAT HELPS...I have tried ice, laying a certain way, rubbing my temples and nothing...I was hot one sec and cold another sec last night in a matter of mins. I am scared what the hell do I do, and most important I am scared the hell out of my grandmother......PLEASE REPLY WITH ADVICE AND HELP AND TREATMENT
JONATHAN
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ITALIANJON79
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #1 on: Sep 9th, 2003, 5:55pm » |
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THE MEDICINE GIVEN TO ME WAS A SAMPLE CALLED FROVA....IT DID NOT WORK AT ALL....I JUST HAD EXCEDRIN MIGRANE THIS ONE LASTED 45 MINS????
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Not4Hire
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...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #2 on: Sep 9th, 2003, 6:08pm » |
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hey jonBoy79.....ya already answered yer own question.....
Quote:| ...nothing helps except for the time i was in the ER and they gave me oxygen.. |
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keep doin that: the oxygen, I mean, and read all this stuff at the LEFT.....
Good Luck-Sorry yer here-Glad ya found us......
N4H.....Steve
Edit: ...oh yeah: do NOT give MrHappy Money (he lives near you....) .... unless you have a LOT....
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| « Last Edit: Sep 9th, 2003, 6:12pm by Not4Hire » |
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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jonny
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #3 on: Sep 9th, 2003, 6:09pm » |
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on Sep 9th, 2003, 5:41pm, ITALIANJON79 wrote:nothing helps except for the time i was in the ER and they gave me oxygen....WHAT DO I DO...WHAT HELPS
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Read your owns words above....get 02!!!!
..............................jonny
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andy
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #4 on: Sep 9th, 2003, 6:17pm » |
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on Sep 9th, 2003, 5:41pm, ITALIANJON79 wrote:| ....nothing helps except for the time i was in the ER and they gave me oxygen....WHAT DO I DO...WHAT HELPS... |
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Jonathan, Sorry you are getting hit now. Oxygen works for lots of us, its safe and cheap too. Also imitrex injections work very well too. Stick around, you will learn lots of good info on fighting this beast. Click on this link about oxygen http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm Good luck and Welcome ...........andy
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Charlie
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #5 on: Sep 9th, 2003, 6:20pm » |
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Hi there and welcome to the madhouse.
Yup. 02 is a damn good start. Get your MD to prescribe it for you. Also:
Here are two links: One for a technique I found effective and a second link to a description of this disease which does a wonderful job explaining to employers and others that this has nothing to with what is thought of as a “headache.” (Good thing to show your grandmother)
http://www.netsync.net/users/charlies/
http://www.ouch-uk.org/ch/note_colleagues.cfm
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Lone_Wolf_FLA
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #6 on: Sep 9th, 2003, 8:09pm » |
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I gotta agree with the rest if the O-two works, you always go with what works! Finding something that does isn't that easy.
Second thing Philly's a big town there has to be a CH savy Doc or two around find one and never let him or her go.
Third, and this one's the hardest, tearing down the house WON'T do much for ya but scare the hell outta Grandma, make a mess and probably make your head hurt worse! Some folks here may disagree, with me here, and this might not work for you but, it got me through some tough times.
The beast is a VASCULAR related headache, high activity pumps more blood quicker and elevates pressures that are already way too high. In a good attack my vein in my temple approaches the size of a #2 pencil, I don't need more pressure, niether do you!! It took me about 6-7 years to master it, but I can sit and "think" my way through the worst of an attack. I used to pace, bang, claw, it did nada for me. Slowing it down, staying as calm as I can, doing everything I can to keep the anxiety low helps a bunch!! It's tough, d@mn tough, but it does work. The most important thing to remember is it WILL end, and when it does it'll feel d@mn good!
Now, go find the O-two, and that Doc....!
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ozzman
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We who are not as others -- Chaos A.D. --Sepultura
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #7 on: Sep 10th, 2003, 8:10am » |
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I sent you an email. Come meet us at the kickoff meeting for the PA-NJ Chapter. You will get to meet many more like you (ClusterHeads) and get different input on what to do,
For the sounds of it, you might have already gone through what I like to call "the peak". In every cycle I get one MONSTER CH, one that lasts 2-3 hours, where nothing works, just time.
From then on its downhill 'till you're pain free. Hang in there and inform yourself as much as you can. By being informed, you won't get as scared (enraged) and therefore your grandma won't be scared either...just a thought.
Ozzy
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"Always remember rule ONE" --Lu-Tze
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Cooked Brain
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a.k.a. Max Payne, YOUCH this hurts...
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #8 on: Sep 10th, 2003, 8:12am » |
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Hi Jon79
sorry you had to come here
off course try to get o2 to cut off attacks. Besides that contact your dr for a preventive and a neurologist appointment. Educate yourself as much as you can, read all the info on the buttons to the left and check out this link too:
http://www.headachedrugs.com/archives/preventivemeds.html
if there is anything you want to know or share just post it!
hang in there, it WILL get better...
pfd&n
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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maggie_may
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Re: HELP!!! 23 YR OLD GETTING CRUSHED BY THE CLUST
« Reply #9 on: Sep 10th, 2003, 9:39am » |
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Hi Jon, welcome to the family! Sorry you need to be here, but glad you found us. There's tons of information around about different kinds of meds we all take.
Definitely get your doctor to get you O2! It's cheap, mostly effective, and the least harmful on you. I take Imitrex to get rid of the pain. I've also got some O2, but I haven't had the fortune  to use it yet. You might want to talk to your dr about a preventative too. Most take verapamil, some use prednisone. There's other ones out there.
Definitely try and make it to the PA-NJ meeting, you'll get to meet other CHers - and from what I hear, it's a great experience (this will be *my* first one if school work permits  )
wishing you pfdans
maggie
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Strength does not come from physical capacity. It comes from an indomitable will. - Mahatma Gandhi
The human spirit is stronger than anything that happens to it. - C.C. Scott
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