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Topic: Hi everybody (Read 266 times) |
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Moni74
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Hi everybody
« on: Sep 9th, 2003, 10:04am » |
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I stumbled accross this site by accident and when I read Jeff's post on the front page, I was amazed. This was EXACTLY, almost to the letter, what happened to me about a month ago... but let me start at the beginning.
I've had headaches ever since I can remember. They developed into a full-fleged migraine when I entered my teenages. After several years of various medications, none of which had the desired effect, my lady doctor tried long-term acupuncture in the ears with me and it worked. Ever since 1995, I go for acupuncture when I notice the first signs and up until this summer, it worked fine.
I went again about a month ago, the migraine subsided, but two days later I wake up at night thinking "What the heck?" and that was the last coherent thought I had in... I don't know... half an hour, maybe an hour. I lost all feeling for time or my surroundings. Excruciating pain in the right side of my head, my right eye tearing and felt like swollen shut, the nose starting running on the right side and I simply couldn't do anything else than sit and cower in a fetal position, rocking back and forth whimpering until all of a sudden, it was subsiding. I finally was able to lay down again and I was felt so drained, I slipped off into sleep immediately.
Come morning, I felt a bit like my head was stuffed with cotton balls, but otherwise fine. No pain at all. But I rejoiced too early. For four consecutive nights, I had to endure this pain. Almost like a clock, it started at 2 in the morning. I was afraid to go to bed. The third night, I woke my husband because I was so freaked out I wanted him to take me to the emergency room. By the time he got ready, the pain was gone again and we never went. After those four nights, I looked like I was partying all weekend with little sleep and lots of booze.
My family made me see the doctor (my lady doctor was on vacation so I went to see her subsitute) and I told her the story. I really was afraid I had a brain tumor or something like that. This pain wasn't at all like migraine pain. She only went "Ah well, your migraine obviously returned - go see your acupuncture doctor." And then she started to ask me whether I felt like I had a sinusitis because she couldn't explain herself my runny nose during the attack. I even asked her whether she thought it could be a cluster headache (I've heard of it when I researched treatments for my migraine) and she acted as if she never heard of it. Jeez.
Reading what some of you have to endure, I guess I've been very lucky so far. And I fervently hope that it's never going to return again. Never ever.
I made up my mind to go see another doctor about it, though. Just haven't had the time for an appointment yet. Maybe I'll hang around here a bit and learn more about cluster headaches. I'm starting to think that what I had really was a cluster attack.
Anyway, nice to meet y'all. 
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echo
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Chronic and still alive --- I Win!
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Re: Hi everybody
« Reply #1 on: Sep 9th, 2003, 10:46am » |
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Glad you were able to find the site to search for the answer of migraine, cluster or a combination of both.
Not surprising that the GP didn't know much, or anything, about CH. I once read that the average GP had about an hours worth of training covering headaches in general.
Hope you find the answer.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Roxy
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Re: Hi everybody
« Reply #2 on: Sep 9th, 2003, 10:47am » |
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Hello Moni, and welcome. You might want to take the cluster quiz over on the left, that might help. Sorry this has happened to you, but you'll find tons of info on this site to help you and your doctor fight the good fight. Make sure you read the oxygen info....it' the cheapest and easiest abortive around. Verapamil and imitrex are your next best bets.
Just read, and read, and read.....all the info is good and will really help.
PFDAN,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Linda T
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Re: Hi everybody
« Reply #3 on: Sep 9th, 2003, 11:16am » |
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Hi Moni and welcome. Unfortunately, your story is all too familiar.
You'll find the help and support you need here. Stick around.
Wishing you all PFDAN always, Linda T
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What a long, strange trip it's been!
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Cooked Brain
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a.k.a. Max Payne, YOUCH this hurts...
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Re: Hi everybody
« Reply #4 on: Sep 9th, 2003, 11:59am » |
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nice to meet you too moni, welcome to the board ;D
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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Moni74
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Re: Hi everybody
« Reply #5 on: Sep 9th, 2003, 12:21pm » |
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Thanks for your warm welcome guys.
I'll definitely look into the oxygen thing. Sounds good to me... if it helps. I turned to acupuncture against my migraine because I literally couldn't stomach all those heavy migraine drugs anymore. Didn't want to live with the consequences of not being able to drive a car for an extended period of time or hanging around in a pink haze all day. Not my cup o' tea.
As far as your other suggestions are concerned, Roxy, I'm German and I don't know whats available here and if it's sold under the same name. I'll see what my doc's got to say about all of this. But I'm already afraid that she'll be as blank as her sub in this department.
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Cooked Brain
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a.k.a. Max Payne, YOUCH this hurts...
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Re: Hi everybody
« Reply #6 on: Sep 9th, 2003, 12:52pm » |
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sorry to say this moni, but if you get hit every couple of hours, lose your sleep AND your life believe me: you WILL take the meds...
I have occasional migraines too but they are almost just like a tasty snack compared to the clusters I have endured...
hope the oxygen works for you!
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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stevegeebe
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Re: Hi everybody
« Reply #7 on: Sep 9th, 2003, 6:17pm » |
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And they just keep comming. I'm amazed.
Welcome Moni to the eye of your storm.
Steve G
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cootie
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Re: Hi everybody
« Reply #8 on: Sep 9th, 2003, 10:27pm » |
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Hi Moni74.....hope you can find somethin that works and gives you relief and most important....a doc knowledgeable enuff to do that for ya !! Good luck...print out info here and take it with you ! Pam that would hate ta have ta go to a 'I dunno' doc
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Charlie
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Re: Hi everybody
« Reply #9 on: Sep 9th, 2003, 10:32pm » |
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Welcome aboard and sorry you had need to find us. At least you're with people who really do know what it's like. I hope you stick around. There are a lot of good ideas here about handling this horror.
Here are two links: One for a technique I found effective and a second link to a description of this disease which does a wonderful job explaining to employers and others that this has nothing to with what is thought of as a “headache.”
http://www.netsync.net/users/charlies/
http://www.ouch-uk.org/ch/note_colleagues.cfm
Let us know how things are going.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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OneEyeBlind
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Re: Hi everybody
« Reply #10 on: Sep 10th, 2003, 4:25am » |
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Welcome to the board Moni. Sorry to hear the beast may be knocking on your door. Take the cluster quiz and if you truly believe it is clusters get back to the doc. Educate them if you need to, but you WILL want something to abort the attack should they start up again !! Good luck !!!!!
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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