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Timberlea
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Blind Clusters?
« on: Aug 28th, 2003, 6:20am »
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???I was just wondering if anybody has experienced what seems to me to be blind clusters.  After going through my usual 2 month cluster session, they stopped as abruptly as they started 3 weeks ago to be exact, however now I find that at certain times, like when i have a glass of red wine I am getting all the feelings of the cluster except there is no pain.  I can feel that low throbbing on the left side just above and behind my eye, my left sinus has closed right up and when I look in the mirror my eye is swollen and tearing.  It is very strange!
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ClusterChuck
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Re: Blind Clusters?
« Reply #1 on: Aug 28th, 2003, 6:26am »
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That sounds like a light shaddow to me.  If that is all it is, don't worry about it!  You might want to bring it up to your doctor just to make sure.  I am NOT a doctor.
 
One thing we clusterheads KNOW how to do is bug our docs!
 
Glad you are out of your cycle!
 
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Re: Blind Clusters?
« Reply #2 on: Aug 28th, 2003, 6:30am »
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That sounds like what i get about 1 week before my 1st Ch of the season. It also sounds like what i got 1 week after starting my Prednisone and Verapamil cocktail. Its kind of like the missile without the nuclear warhead!
 
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Re: Blind Clusters?
« Reply #3 on: Aug 28th, 2003, 7:50am »
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I agree with Chuck, sounds like a shadow.  Try not to worry about it.   Smiley
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Re: Blind Clusters?
« Reply #4 on: Aug 28th, 2003, 7:57am »
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Jewel, are you shadowing me?
 
Chuck
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Re: Blind Clusters?
« Reply #5 on: Aug 28th, 2003, 8:00am »
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Oh shit, you caught on!   Wink
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don
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Re: Blind Clusters?
« Reply #6 on: Aug 28th, 2003, 9:23am »
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Doesn't sound like a shadow to me.
 
I forget the medical terminology but there are cases of people having all the symptoms but no pain.
 
A shadow ussually doesn't include ALL of the symptoms.
 
 
Blind CH is a good referance but there is a medical term for it also.
 
The wine is abviously causing your system to send yo7u some warnings. Take the hint!
« Last Edit: Aug 28th, 2003, 9:24am by don » IP Logged
eyes_afire
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Re: Blind Clusters?
« Reply #7 on: Aug 28th, 2003, 12:11pm »
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Ah yes, the 'Painless CH'... got that for about 5 months after my 13 month cycle... then went back into fullblown cycle...
 
I would get all the other regular CH symptoms at my normal CH times except for the pain.  Was a real mindfuck but sure beats the pain.  Those were the days...
 
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Re: Blind Clusters?
« Reply #8 on: Aug 28th, 2003, 12:19pm »
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Red wine can be a real problem for CH.  I've quit it altogther years ago.
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Re: Blind Clusters?
« Reply #9 on: Aug 28th, 2003, 7:17pm »
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on Aug 28th, 2003, 9:23am, don wrote:
I forget the medical terminology but there are cases of people having all the symptoms but no pain.

 
BINGO!
 
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ShariRae
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Re: Blind Clusters?
« Reply #10 on: Aug 28th, 2003, 8:46pm »
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I get it also & when i asked my doc about it..he called it "Phantom Pain" It is there.. but not really...the pain is there but the cause (the ch) isnt. Thats the best he could do..lol
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