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   Author  Topic: IRONIC.............  (Read 1066 times)
Ree
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64720087 64720087   Reespirit   Ree16Angel
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IRONIC.............
« on: Aug 22nd, 2003, 9:35am »
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IRONIC thats the only word that I can think of...That the time I needed you all the most you turn and run.  That when we at our house are hurting the most you stab us when we arent looking.  In my post I had said I would be reading the board periodically and taking a break because "the cluster headache in my house was the most important matter right now".  I worked all day to come on after and find that Margi had left, and now rumors of me leaving too... well as you see I am not gone... I know now that will dissappoint some of you that think all I am is a Meegrainer... whether that is the case or not I have been here supporting during my husbands wholllllllllllllllllle remission period of about 3 years.  Now when I need the support for MY SUFFERER  this board is so wound up in trivia and fighting that there is no one paying attention to the true CAUSE... I have been insulted and lied to by people I thought were my friends.  People that don't even realize what they do with their hateful words... Im afraid to say what this really is about for fear it will be deleted so what is the point... The board is divided thats all I can say...We used to be a family.  I dont feel that anymore... I used to feel like someone here I don't anymore.  I felt useful and helpful and I don't anymore.  You can see this as whining I see it as truth... Those of you that don't like me can keep your comments to yourself... why dont you like me??? can you honestly find a reason???Honestly I have never done anything to anyone here other than support them.  I try to stay away from the gossip. I could care less what someone does with their personal life.  This all started with a comment about someone trying to explain medication contents without ever having used or bought this prescription... and you know Margi and I were right and neither of us insulted anyone.  If the post was still up we could refer to it...Of course we cant now... I love Margi and she gave me the courage to come here and fight for a cause that made our family feel so alone.  If you cant understand that... If you would prefer to have strangers to our cause support you then so be it... please let this all drop and lets go back to the integrity that this board so richly deserves... I now have quite a few posts to my name and 99% are helpful posts and not flames...and not silly and not insulting... Maybe its the goodness in me that scares you.  I don't know... take care... Im taking a "BREAK"... sorry to bum you out.   If I see someone in need I will post.  and I will support the supporters that truly support...  Until my husband is cured or this site finally dies... I'll be checking in.   ree  
and Frank the turtle stays
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Re: IRONIC.............
« Reply #1 on: Aug 22nd, 2003, 9:41am »
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Love you Ree !!! A fellow meegrainer and supporter also ( no one better touch that with a ten foot pole or else..........)  Smiley  Pam that is in a kicka ass mood  Shocked
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Re: IRONIC.............
« Reply #2 on: Aug 22nd, 2003, 9:56am »
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Ree:  Please read your private messages.
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Episodic cluster survivor since 1995 at age 16.
fubar
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Re: IRONIC.............
« Reply #3 on: Aug 22nd, 2003, 10:07am »
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Ree,
 
I think know I love you.  You are AWESOME.
 
 Grin
 
-Fu
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TomM
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Re: IRONIC.............
« Reply #4 on: Aug 22nd, 2003, 11:22am »
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on Aug 22nd, 2003, 10:07am, fubar wrote:
Ree,
 
I think know I love you.  You are AWESOME.
 
 Grin
 
-Fu

Ditto. Luv you like a sister, that is.  
 
And...luv dat dam turtle!
 
TomM  Cool
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Tara Ann
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Re: IRONIC.............
« Reply #5 on: Aug 22nd, 2003, 12:47pm »
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Ree I sent you and email....
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Virginia
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Re: IRONIC.............
« Reply #6 on: Aug 22nd, 2003, 1:15pm »
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Ree-
 
I don't know any of what happened, but you've got my support!
 
We need you here.
 
Love,
Virginia
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The Clusterhead formerly known as 9erfan.
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Re: IRONIC.............
« Reply #7 on: Aug 22nd, 2003, 1:19pm »
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Ree, if Dave (or you) need support, that has not changed.  
 
Nasty words spoken in a single glimpse of time cannot ever change that.
 
Well wishes.****
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Re: IRONIC.............
« Reply #8 on: Aug 22nd, 2003, 1:23pm »
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Hey Ree,
    I aint got a clue whats happening, but you got my full support. Aint many times i get to support somebody!
 
Love ya, patrick
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Re: IRONIC.............
« Reply #9 on: Aug 22nd, 2003, 2:08pm »
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If I have this right Patrick, it goes back to stuff I didn't think much about then as well as now.  
 
Bleaugh  
 
Glad you're still here Ree
 
Charlie
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Re: IRONIC.............
« Reply #10 on: Aug 22nd, 2003, 4:22pm »
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Ree,
 
Check your mail.
 
*hugs*
Juvy
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Re: IRONIC.............
« Reply #11 on: Aug 22nd, 2003, 4:34pm »
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Huggs to ya Ree ......... I'm here if ya need me.  We've seen the nasties come and go.  Let's just leave them behind and get back to rowing the boat !!!!!!
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Re: IRONIC.............
« Reply #12 on: Aug 22nd, 2003, 5:43pm »
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   I have no idea what the big brewhaha (sp) is....but I am willing to stand up and support the supporters and Ree in particular. I owe Dave (and you too). I won't forget that ever. I'm sorry to hear that things are bad there, you have good vibes coming from me. Glad to hear that you are staying. Somedays I understand why I don't read all the posts here (even if I had time).
 
Peace out all
 
Mike
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Re: IRONIC.............
« Reply #13 on: Aug 22nd, 2003, 5:57pm »
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  Hi Ree,
I'm new to this too and I'm with you .  Everyone here is our support link and if One person breaks the chain  it gives us all a pain.  GOT YOUR BACK SWEETY!
 
Karen /Stabbingpain
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FrankF
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Re: IRONIC.............
« Reply #14 on: Aug 22nd, 2003, 8:23pm »
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Hey Ree, I real do like you! You are a great supporter to Dave and many other CH sufferers here too! But the turtle that causes me to have epileptic seizures everytime I see it, must go.  Grin
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Re: IRONIC.............
« Reply #15 on: Aug 22nd, 2003, 9:48pm »
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Hey ree.....seems as though no one has anything negative to say NOW?????????????/
 
 
not sure what the hell has gone on while I wasn't able to read every single post here in the last few days......damn.......I sure in the hell hope that's NOT what this place is coming to, or else MANY people here will fast become disheartened!!!!!
 
Ree, you're doing a great job for Dave and yourself, keep it up pal
 
Still pf here for those who care,
EDNA
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suzy617
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Re: IRONIC.............
« Reply #16 on: Aug 23rd, 2003, 6:55am »
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I thought you and Dave made a great couple together and I really enjoyed meeting you both.
Sorry Dave's been getting hit so bad lately, my thoughts are with him.
I hope I get to see you both again next year!
 
Suzy who wants to go to the baah in the caah with ya.. Wink
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Re: IRONIC.............
« Reply #17 on: Aug 23rd, 2003, 9:18am »
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Ree my thaughts go out to you and your husband, I hope things start to get better at home soon.
 
Ree, (and Margi if you are reading the same goes for you) I just want to say that this is the nature of the board. Ppl here are individuals and ppl are imperfect. Bear in mind that all here on this board are going through tough times and have frayed nerves or are harbouring angst and or bad feelings in many different ways and forms. Who can blame them. I know that what ppl say, especially ppl close to you, can really hurt, but at the end of the day that hurt, although at the time it may feel different, is brief and will only amount to a few bits on some old hard drive one day. Ree, life at home must be a tremendous strain right now, and thats where you energys should be (I know you know this). Take a break if ya feel you need to but dont stomp off in anger and disgust pleeeaaasse. You are a wonderful person and EVERYONE here knows that, perhapse a few have forgotten. You inspired me and have showed me by example. You do make a difference and all these posts over the last few days in support of you, wishing you well, sending you vibes, asking you, no begging you to stay are proof that you are needed and wanted here. Margi I want you to know that if you have any doubt about why you ever posted let me put that to rest. I have been down and out and desperate. Searching for hope and encouragement, in times of dire despair you have lifted me up and pointed me forward.  
 
Every day you fine ladies are away from this board will be ALL OUR losses.  
 
LADIES STAY THE COURSE

 
John
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Re: IRONIC.............
« Reply #18 on: Aug 25th, 2003, 12:04pm »
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I'd offer you both a big hug (OK maybe a handshake for Dave) but your friends with that BillL guy.
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Re: IRONIC.............
« Reply #19 on: Aug 25th, 2003, 12:28pm »
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Ree
 
I'm glad you decided to stick around.  Hopefully talk to you soon.
 
not being online much in the last couple of weeks, I missed everything that went on here.   (what else is new   Roll Eyes)
 
the one thing i do know is that the MB has been thru some 'rough times' and arguments in the past and got through it.  every family has arguments.
 
i'm not sure if i really want to know what really went on here and i'm hoping that i'm not sticking my foot in my mouth    (blech   Tongue)
 
cmon people --- lets work together --- if we don't, do you really think anyone is gonna give a shit about finding a cure?
 
grant     ???
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Re: IRONIC.............
« Reply #20 on: Aug 25th, 2003, 12:41pm »
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Ree,
 
I'm glad the rumors on the subject of you leaving aren't true. We need our supporters!!! If someone does NOT need support, they might be in the wrong place.
 
Courage and Strength to you and Dave.
 
 
Ozzy
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Re: IRONIC.............
« Reply #21 on: Aug 25th, 2003, 1:29pm »
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     YOU ROCK LADY!!!!!!!
 
and so does Dave.  After reading your posts all along and then meeting you in NY, I know that you are a wonderful supporter and all-around good person.  
 
      Linda
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64720087 64720087   Reespirit   Ree16Angel
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Re: IRONIC.............
« Reply #22 on: Aug 29th, 2003, 7:51pm »
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ok now this is a thread I will keep dear incase I am depressed...................LIKE NOW!!!!   I love you too fu!!! that was so sweet and the rest of you... thanks so much for loving me and those that dont go screw yourself because I have never done anything but give 110% here and you know it... ok I feel a little better... Now tell me my best friend isnt moving and I will erase this........................ life sux then ya die    
 
 
the turtle stays      love me
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Re: IRONIC.............
« Reply #23 on: Aug 29th, 2003, 8:13pm »
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Hey Ree Girl,
 
Glad you and turtle are stikin.  Why in the HELL anyone would say ya never gave over the top i can't fathom - cuz you always Give of Yourself.****
 
Yep, life's a bitch and then ya die.  Live and love while ya can cuz all too soon it's out of your hands.****
 
Well wishes.
 
No one can take away places in the heart.  They live forever ya know.  One person's heart might jes have a whole YOU can fill.  Now ain't that sumpin
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Re: IRONIC.............
« Reply #24 on: Aug 29th, 2003, 8:31pm »
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Things just keep getting scarier...I'm completely understanding Kimspeak now.....and (uh oh!)...I echo every word she said..... Shocked Smart, caring lady!
Ree, wishing you and Dave PF days and peaceful nights.
Cathi
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