Author |
Topic: *Smiles* (Read 517 times) |
|
Lissa
New Board Hall of Famer
 
Gender: 
Posts: 711
|
Going on 10 days PF! Longest remission in 3 months! Is it over? Is it over?
|
|
 IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
stuey
Guest
|
Let's really hope so. I could never been more pleased to hear this from anyone and I don't know you but your posts got to me. Stay strong and keep on. Stuey
|
|
IP Logged |
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
 |
Re: *Smiles*
« Reply #2 on: Aug 20th, 2003, 9:24am » |
 Quote  Modify
|
I'm going to keep my fingers crossed!
Question.....Does anyone know how long I need to wait after remission to discontinue Verapamil. I forgot. Isn't it like two weeks?
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
Miklos
New Board Hall of Famer
Gender: 
Posts: 620
|
|
Re: *Smiles*
« Reply #3 on: Aug 20th, 2003, 9:33am » |
Quote Modify
|
Check with your doctor. Mine typically recommends a six week taper.
|
|
IP Logged |
Don't be offended by my frank analysis. Think of it as personality dialysis.
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #4 on: Aug 20th, 2003, 9:39am » |
Quote Modify
|
Will do.  I'm just so anxious to get back to my crazy-normal life again. Perhaps I'm a little too anxious.
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
Leesa
New Board Hall of Famer
Gender:
Posts: 1950
|
|
Re: *Smiles*
« Reply #5 on: Aug 20th, 2003, 9:42am » |
Quote Modify
|
Jewel, this is great news!! I'm happy dancin for ya hun. I hope it lasts a LONG LONG time. Keep us posted on how things are going.
|
|
IP Logged |
"The truth of the matter is that you always know the right thing to do. The hard part is doing it." General H. Norman Schwarzkopf 
|
|
|
Cooked Brain
New Board Old Timer
a.k.a. Max Payne, YOUCH this hurts...
Gender:
Posts: 411
|
|
Re: *Smiles*
« Reply #6 on: Aug 20th, 2003, 11:25am » |
Quote Modify
|
Good to read that Jewel
don't jinx it 
|
|
IP Logged |
"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
|
|
|
ksmiggy
New Board Junior
doh!
 
Gender:
Posts: 75
|
|
Re: *Smiles*
« Reply #7 on: Aug 20th, 2003, 11:40am » |
Quote Modify
|
Great news, now remove head, store in freezer to remain PF
Just kidding, didn't work for me
|
|
IP Logged |
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #8 on: Aug 21st, 2003, 3:05pm » |
Quote Modify
|
11 days now! Yay!!!!!!!!!!!
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
Gender:
Posts: 8406
|
|
Re: *Smiles*
« Reply #9 on: Aug 21st, 2003, 3:10pm » |
Quote Modify
|
More good news from Jewel......I am so glad for you......Pam that's wishin you indefinite PF days
|
|
IP Logged |
Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
|
|
|
JDH
CH.com Alumnus
New Board Hall of Famer
We will get by, We will survive!
Gender:
Posts: 2453
|
|
Re: *Smiles*
« Reply #10 on: Aug 21st, 2003, 3:11pm » |
Quote Modify
|
Great news Jewel...you go girl.
just take it one day at a time.
Jim
|
|
IP Logged |
9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #11 on: Aug 21st, 2003, 3:12pm » |
Quote Modify
|
Don't mean to rub it in..... ;D ;D ;D ;D
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
don
Guest
|
You can stop the verapilmil whenever you feel it's safe to do so.
Some people continue the verap. when out of cycle.
Dont feel like your rubbing it in. It's posts like yours that give hope!
|
| « Last Edit: Aug 21st, 2003, 3:29pm by don » |
IP Logged |
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #13 on: Aug 21st, 2003, 3:29pm » |
Quote Modify
|
I think I'll wait another 3 days. I usually wait about a week after the last headache to discontinue.
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
STABBINGPAIN
Guest
|
I hope it last! stay smiling. if you need to chat I'm here for ya!
karen
|
|
IP Logged |
|
|
|
jonny
Guest
|
on Aug 21st, 2003, 3:12pm, Jewel wrote:| Don't mean to rub it in..... ;D ;D ;D ;D |
|
Hey kid,
I got ya beat, today makes seven weeks PF....the longest (by far) remission for me in 28 years....;D ;D ;D ;D
BTW: Ask your Doc how he wants you to taper off the Verapamil.
....................................jonny
|
|
IP Logged |
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #16 on: Aug 21st, 2003, 3:34pm » |
Quote Modify
|
28 years? Holy shit! 
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
jonny
Guest
|
on Aug 21st, 2003, 3:34pm, Jewel wrote:| 28 years? Holy shit! |
|
LMMFAO....Chronic to boot....;D
............................jonny
|
|
IP Logged |
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #18 on: Aug 21st, 2003, 3:38pm » |
Quote Modify
|
What's LMMFAO???
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
headscrew
New Board Newbie
Gender:
Posts: 1
|
|
Re: *Smiles*
« Reply #19 on: Aug 21st, 2003, 3:42pm » |
Quote Modify
|
Laugh my m*th*rf**k**g ass off.
|
|
IP Logged |
|
|
|
jonny
Guest
|
on Aug 21st, 2003, 3:38pm, Jewel wrote:
Laughing my m*th*rf**k**g ass off
Why laugh?.....What else can I do but laugh....LOL, crying dont help....ROTFFLMMFAO...;D
................................jonny
|
| « Last Edit: Aug 21st, 2003, 3:42pm by jonny » |
IP Logged |
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #21 on: Aug 21st, 2003, 3:52pm » |
Quote Modify
|
Thanks migraineman2003!
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
jonny
Guest
|
on Aug 21st, 2003, 3:52pm, Jewel wrote:
Its "MEEGRAINES".....LMMFYBO ;D
|
|
IP Logged |
|
|
|
Lissa
New Board Hall of Famer
Gender:
Posts: 711
|
|
Re: *Smiles*
« Reply #23 on: Aug 21st, 2003, 4:12pm » |
Quote Modify
|
Meegraine or Weegraine? ;D
|
|
IP Logged |
Episodic cluster survivor since 1995 at age 16.
|
|
|
Opus
New Board Hall of Famer
(Insert witty comment here)
Gender:
Posts: 2509
|
|
Re: *Smiles*
« Reply #24 on: Aug 21st, 2003, 6:21pm » |
Quote Modify
|
Great news Jewel,
I haven't had a hit since sunday, just light shadows, PF days will be here soon.
Opus/Paul
|
|
IP Logged |
Zed-Zed-nine plural-Zed alpha,
There is no place like home.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss