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notsurecluster
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question about symptoms
« on: Jul 27th, 2003, 3:18pm »
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hello all...
as you can tell by my "name" i am not certain that i suffer from cluster headaches. i definitely get severe headaches that seem to fit most of the symptoms and descriptions i'm reading about. i have been going to the doctor for at least a year off and on with what they keep diagnosing as sinus but i don't have congestion or drainage (other than eyes watering and runny nose during the headache) i've tested negative for allergies and none of the sinus medication i've tried helps.  
 
i only just starting looking at cluster as a possible diagnosis.  
 
as i said, almost all the symptoms seem to fit perfectly with one major exception. my headaches don't start at night, they usually start in the early afternoon or evening. the worst ones usually in the evening, peeking before i go to bed.  
 
before i go to the doctor sounding stupid (again) can you tell me, do any of you who really do have cluster headaches get them regularly during the day?
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cootie
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Re: question about symptoms
« Reply #1 on: Jul 27th, 2003, 3:37pm »
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Hi notsurecluster have you taken the cluster quiz on this site ? Also maybe print some of the info off this site to take to your doc or neuro and let them read up. Call around and ask if certain docs have any knowledge of cluster headaches so they can better diagnose you.....we got lucky wit our new doc and he has a special interest in clusters and sumwhat familar with them. There is a list od docs on this site also and maybe one is in your area ? Hope you get the rite diagonoses soon so you cna treeat it accordingly and get some relief !! Goo dluck to you. Pam that hopes sum of my info helped  Smiley
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daveengland
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Re: question about symptoms
« Reply #2 on: Jul 27th, 2003, 3:39pm »
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hello from england,
 
sorry to hear about your HA's
 
have you tried the quiz on the left?,
diagnosed three months ago and for the past 3 years i've had a HA every morning as i wake up,between 2 and 3 in the afternoon,between 7and 8 at night and within an hour of going to bed
 
it really gets you down and you think your going mad!!!
 
 
good luck
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Re: question about symptoms
« Reply #3 on: Jul 27th, 2003, 6:34pm »
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When i was on 1st shift, my Ch's would always start about 1 to 2 hours after i got home. Now that i am on 2nd, they usually wake me from a sleep. Ch's can and do happen at all different times. I think most people will say they have a tendency to start after we have relaxed or are into a deep sleep. The hard thing about Ch's are that they are never typical, about the time you think you have found a tendency, they will change!
Good luck with your ha's, I hope you soon find relief!
 
Patrick
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