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Topic: What works for you? (Read 208 times) |
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AB024
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What works for you?
« on: Jul 22nd, 2003, 12:46am » |
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I have had clusters since I was 12. I am 23 now. Last year was the worst to date. Imitrex injections from the ER didn't even help. I dont like taking anything for them except for excedrin. I have had the injections and the pills. Stadol just fucked me up. I have found that hot water or showers helps alot. I also suck hot water up my nose and that helps a little. In a severe attack nothing works accept time. I have seen hand fulls of doctors but nothing that we try works. Are there any little things that you all do that help you get through hell. I cant drink or eat any dairy when I have these attacks. I am in a cluster right now. I have had 10, 1 hour long attacks in the last 48 hours. What happens to you people? I would like to know. How long do they last for you people? I have had one last 5 hrs and it didn't let up untill the second Imitrex shot in the ER. My cluster tends to last a month to a month and a half and it seems to go on a bell curve. They start out mild and far between and then progress into 3-6 a day and then fade like they came. Does this happen to anyone else?What about preventitive meds that don't have a lot of side effects?
Andy
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| « Last Edit: Jul 22nd, 2003, 3:27am by AB024 » |
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Kirk
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VINIMUS, VIDIMUS, DOLAVIMUS
    
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Re: What works
« Reply #1 on: Jul 22nd, 2003, 1:54am » |
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Have you tried O2 yet? It works to varying degrees for different folks. I don't think you can overdose on it.
I use Imitrex injections and O2. Two to five minutes later and I have a life again.
TTFN
Kirk
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The mad viking
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Re: What works
« Reply #2 on: Jul 22nd, 2003, 2:51am » |
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Hi there
This is my coctail
Verapamil Retard 120mgX5-7/daily during cycle 3 weeks after last hit tapering down with 1 verap every 3/4 days until you are on 1 a day.1 a day for another 2 weeks you can decide to quit the verap or take 1 a day.Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 70-60-50-40-30-20-10-5mg every 3/4 day
This work fine for me
The very best from Svenn
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Always Look on The Bright Side of Life
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cathy
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Re: What works for you?
« Reply #3 on: Jul 22nd, 2003, 1:35pm » |
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Hi Andy....welcome aboard, there is a wealth of information here, O2 has helped a lot of people....read read read knowledge is power....PF times to you.
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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echo
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Re: What works for you?
« Reply #4 on: Jul 22nd, 2003, 1:36pm » |
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Welcome to the MB. As was said above - O2 works for quite a few people. I'm not one of them but wish I was.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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OwieMan
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I love YaBB 1G - SP1!
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Re: What works for you?
« Reply #5 on: Jul 22nd, 2003, 1:52pm » |
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I use the hot shower method for now.
My shower has one of those massager heads and I turn that thing on full blast. All those little hot droplets smacking around on my head and neck helps a whole bunch.
Get the massager head 
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AB024
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Re: What works for you?
« Reply #6 on: Jul 22nd, 2003, 1:55pm » |
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Thank you all for you replies! ;D
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AB024
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Re: What works for you?
« Reply #7 on: Jul 22nd, 2003, 1:58pm » |
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Has anyone had to have surgery? Does it work?
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