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Topic: Will be Meeting With Dr. Dodick in Rome (Read 403 times) |
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don
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Will be Meeting With Dr. Dodick in Rome
« on: Jul 15th, 2003, 1:35pm » |
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Dear Mr Young,
The experience with this technique thus far is very limited. I have treated two patients with cluster headache and a few of my colleagues have each treated 1 patient I believe. I plan to treat several more over the next few months as interest has been quite high and as you well know, there are many desperate patients.
From my preliminary but limited experience, I believe this is a treatment worth pursuing in other patients. However, whether this will turn out to be of long-term benefit to patients with chronic cluster headache is still unknown. The major issue I am struggling with currently is how we define as a successful outcome. My expectations as a treating physician are quite high, especially given the fact that this is an invasive procedure (albeit very small risk) and expensive. However, even a 50% improvement to a patient with refractory cluster headache may be of enormous benefit to him/her, and justifies the risk and cost from the patient's perspective.
In short, I am cautiously optimistic but remain to be convinced on the long-term benefit of this procedure.
Thank you for your interest. I look forward to meeting you in Rome and would be happy to discuss this issue further with you.
Sincerely,
David W. Dodick M.D.
Department of Neurology
Mayo Clinic
Scottdale Arizona
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Ted
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #1 on: Jul 15th, 2003, 1:42pm » |
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While there can you ask him why neither he nor his staff returned any of my 3 phone calls concerning being a guinea pig for studies or just having it done?
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don
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #2 on: Jul 15th, 2003, 2:19pm » |
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I will do better than that. I will offer you up to science personally when I meet with him.
That was for the gender switch operation right?
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Peppermint
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Work it out baby!
 
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #3 on: Jul 15th, 2003, 2:24pm » |
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Don,
Thanks for posting that letter. My friend has been in touch with Dr. Dodick via snail mail, and when he mentioned only the 2 successes with the surgery, and since he mentioned migraines, it was vague as to whom the surgery actually benefitted. In talking about migraines, it just became more confusing. He said he knew of no successes with chronic clusters in regards to the surgery (ONSI) and doesn't mention that either in the letter you posted. Is he saying that the patients treated were episodic?
I wonder how it compares to the radio static (i think that's what its called) surgery that the Italians were having such great successes with - and the post-surgery effects.
???
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| « Last Edit: Jul 15th, 2003, 2:25pm by Peppermint » |
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You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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Ted
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #4 on: Jul 15th, 2003, 2:30pm » |
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on Jul 15th, 2003, 2:19pm, don wrote:I will do better than that. I will offer you up to science personally when I meet with him.
That was for the gender switch operation right? |
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Why do I have a feeling I'm going to end up as a hermaphrodite dog?
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don
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #5 on: Jul 15th, 2003, 8:21pm » |
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With bug eyes and corns on yer foots.
Theres always the carnival life Ted.
Quote:| He said he knew of no successes with chronic clusters in regards to the surgery (ONSI) |
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What he is saying is there has not been enough time to determine if there are any long term benefits to either chronic or episodic.
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| « Last Edit: Jul 15th, 2003, 8:24pm by don » |
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cootie
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #6 on: Jul 15th, 2003, 10:28pm » |
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Hermaphrodite-tee Ted....sounds like one of Ceasar's crew.  Pam that does what the Roman's do when in Rome 
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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forgetfulnot
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #7 on: Jul 15th, 2003, 11:25pm » |
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I believe this is a treatment worth pursuing in other patients. However, whether this will turn out to be of long-term benefit to patients with chronic cluster headache is still unknown. The major issue I am struggling with currently is how we define as a successful outcome. My expectations as a treating physician are quite high, especially given the fact that this is an invasive procedure (albeit very small risk) and expensive. However, even a 50% improvement to a patient with refractory cluster headache may be of enormous benefit to him/her, and justifies the risk and cost from the patient's perspective.
In short, I am cautiously optimistic but remain to be convinced on the long-term benefit of this procedure.
Keep the heat on Don. Tks Lee
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don
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Re: Will be Meeting With Dr. Dodick in Rome
« Reply #8 on: Jul 16th, 2003, 6:34am » |
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Many a Ch'er will be offered up as scientific sacrafices in Rome.
If this type of study is discontinued it wont be because of consumer apathy.
I dont know a whole lot (yet) about Dr, Dodick but he could become our biggest ally here in the States.
My goal will be to determine what other parts of the USA this proceedure is being anticipated and who will be doing it.
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| « Last Edit: Jul 16th, 2003, 6:39am by don » |
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