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Topic: Card-carrying clusterhead (Read 1260 times) |
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Linda_Howell
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Hearing is one thing. Listening is another.
  
 
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Card-carrying clusterhead
« on: Jul 10th, 2003, 4:49pm » |
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One of the things we all dread is getting hit in public, and lately I seem to have had my share of that. No place to run or hide, and people staring at me or asking 20 questions. A friend sent me this after hearing about another rough week-end, and I have printed it out in a smaller format, and intend to have it laminated and keep it in my wallet for just those times.
Tell me what you think.
My name is---------
I suffer from a little known illness called cluster headaches that causes extreme pain. It is not life threatening, althought it may appear so. I am not on drugs or alcohol. I may need assistance in getting to my medicationor administering it. I will be O.K. in 1 to 2 hours. Please do not ask me questions or request I do anything until the pain has passed, as I cannot give you my full attention. The best assistance, is to do as I request, or leave me alone. Thank you for your understanding.
Emergency contact--------------
Doctor------------------phone number------------
Medication I am taking------------------
LindaH
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klp
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Re: Card-carrying clusterhead
« Reply #1 on: Jul 10th, 2003, 4:53pm » |
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sorry your having a rough time of it linda. The card is a good idea. lets just hope you dont get much use of it. krista
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FrankF
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Re: Card-carrying clusterhead
« Reply #2 on: Jul 10th, 2003, 4:55pm » |
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I wish I had something like that the time my boss entered my office and found me screaming and thrashing around. 
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Roxy
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Re: Card-carrying clusterhead
« Reply #3 on: Jul 10th, 2003, 5:13pm » |
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Linda, I'm sorry you are getting hit hard right now, especially in public. To me, there is something humiliating about people watching me....when there is no place to hide. The card sounds like a really good idea. Your friend sounds like a real good one to send you something like that. The written equivalent of a medical ID bracelet. Plus, it's another great way to spread the word about ch's.....seems that sometimes, the written word works better than trying to explain things verbally.
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jonny
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Re: Card-carrying clusterhead
« Reply #4 on: Jul 10th, 2003, 5:15pm » |
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I hope your wearing a sandwhich board with all that info, babe ;D
................................jonny
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| « Last Edit: Jul 10th, 2003, 5:21pm by jonny » |
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kim
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Re: Card-carrying clusterhead
« Reply #5 on: Jul 10th, 2003, 6:30pm » |
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Linda, hope it gets betta soon.
Card carrier.......dunno. Mebbee could try - i cling to my old rituals and prefer to escape being spied. Can't help it. Old habits die hard....
Laugh when it hurts - and then --- RUN AWAY 
PFDAN****
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jonny
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Re: Card-carrying clusterhead
« Reply #6 on: Jul 10th, 2003, 6:34pm » |
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Can anyone point to the sentence where Linda is saying she is in pain in her post?
...........................jonny
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kim
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Re: Card-carrying clusterhead
« Reply #7 on: Jul 10th, 2003, 6:41pm » |
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Pointing is impolite.
Could draw a picture ;D
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| « Last Edit: Jul 10th, 2003, 6:45pm by kim » |
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Tara Ann
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Re: Card-carrying clusterhead
« Reply #8 on: Jul 10th, 2003, 7:16pm » |
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Linda I hope it gets better for you soon! Sounds like you have a very understanding friend to give you a suggestion like that.
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Donna
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Re: Card-carrying clusterhead
« Reply #9 on: Jul 10th, 2003, 7:23pm » |
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Sorry Linda........You're in my thoughts and prayers.
Love ya
Donna
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jonny
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Re: Card-carrying clusterhead
« Reply #10 on: Jul 10th, 2003, 7:43pm » |
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DUHHH!!!
Unreal......................................jonny
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kim
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Re: Card-carrying clusterhead
« Reply #11 on: Jul 10th, 2003, 7:50pm » |
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Duh is a good word. As is "the bomb".........i shall forevor embrace the duh that resides within me. It's good. Really. Those that use the word "duh" in a way that implies stupidity or lack of comprehension, i feel sure need comprehensive assistance.
PFDAN ............dont give up.............DUH ;D
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2late
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Re: Card-carrying clusterhead
« Reply #12 on: Jul 10th, 2003, 8:12pm » |
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sorry your gettin' hit so hard! get the fuck outta my face usually works for me, but the card is a good idea for some. ................Jack
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don
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Re: Card-carrying clusterhead
« Reply #13 on: Jul 10th, 2003, 8:45pm » |
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I like Jacks method.
I'm having card made up.
My name is don
I am in pain. I may kill you.
Get the fuck outta my face.
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2late
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Re: Card-carrying clusterhead
« Reply #14 on: Jul 10th, 2003, 8:51pm » |
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LMAO.........don .............Jack
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OneEyeBlind
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Re: Card-carrying clusterhead
« Reply #15 on: Jul 10th, 2003, 9:12pm » |
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Linda, sorry to hear you are getting whacked in public !!!!!! That's a good friend ya got !!!!!!! I like the idea of a card. I am truly greateful that I have never been hit full force in public. The pain is bad enough without having people watch !!
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JDH
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Re: Card-carrying clusterhead
« Reply #16 on: Jul 10th, 2003, 10:43pm » |
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on Jul 10th, 2003, 7:43pm, jonny wrote:DUHHH!!!
Unreal......................................jonny |
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LMAO!!!
I hear you jonny.
Linda, that's a good idea. I'd like to have a laminated one for most people and one of Jack's on the other side for idiots who insist on helping or play it down as "just a headache"
Jim
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| « Last Edit: Jul 10th, 2003, 10:44pm by JDH » |
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paul_b
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Re: Card-carrying clusterhead
« Reply #17 on: Jul 11th, 2003, 12:06am » |
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My card would say: LOOK AT MY EYES THAT'S PAIN YOU SEE NOW LEAVE MY ALONE I WILL BE FINE IN AN HOUR 
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TerryS
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Re: Card-carrying clusterhead
« Reply #18 on: Jul 11th, 2003, 2:24am » |
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Hey buddy sorry your having a cycle now. Like your idea about having a card to explain your situation, But I think Don's kind-a-says it all.
Love ya and you are in my thoughts and prayers.
Can't wait to see you again at the convention.
TerryS
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Charlie
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Re: Card-carrying clusterhead
« Reply #19 on: Jul 11th, 2003, 3:59am » |
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I remember the card idea. The reason it's good is that it's a way to let ER types know you're not insane, a junkie or worse. Epileptics carrry them because if you're found having an attack and can't answer, it lets others know what's going on when the medics get there. So many of us, after a seizure cannot talk for a time and a card can make this so much easier. MDs, addresses and most importantly, a list of drugs and doses should be there. Family and friend's numbers are good too.
Charlie
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JohnM
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Re: Card-carrying clusterhead
« Reply #20 on: Jul 11th, 2003, 4:15am » |
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What about a card that says:
My brain hurts.
Fuck off and leave me alone.
John
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CLR
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Re: Card-carrying clusterhead
« Reply #21 on: Jul 11th, 2003, 7:55am » |
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Yep, I like that idea Linda. That was nice of your friend.
Heres wishing you no hits when your out having fun, keep smilin.
Cindra that drives a gm product, lol
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don
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Re: Card-carrying clusterhead
« Reply #22 on: Jul 11th, 2003, 8:28am » |
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To the ER Staff
I belong to a large CH family. We have your home address. Currently your home is surrounded by a gang of CHers. Treat me properly and with dignity or each of the CHers now gathered at your home will trigger CH attacks on your front lawn. Please bring in small children and pets as this will not be pretty. No one will be harmed but your neighbors will be pissed and your lawn ornaments endangered of being booted into orbit. Oxygen and imitrex please.
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| « Last Edit: Jul 11th, 2003, 8:34am by don » |
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Leesa
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Re: Card-carrying clusterhead
« Reply #23 on: Jul 11th, 2003, 8:54am » |
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Linda, honey Im so very sorry your having such a rough time right now and being hit so hard. I have you in my thoughts and prayers sis......I hope you dont mind but I printed this off for Dave so he can carry this with him at ALL times! This is an AWESOME idea!!!!
With lots love,
Leesa
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Linda_Howell
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Re: Card-carrying clusterhead
« Reply #24 on: Jul 11th, 2003, 9:31am » |
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Thanks everyone, but let me explain something. I don't have a cycle, I'm chronic, so it's inevitable that I am going to get hit in public at times, especially in the summer when I'm out and going places.
While I totally agree that my very first thought is the same as most of yours....."leave me the fuck alone and get out of my face and stop asking me questions".....that's probably not the smarest thing I could do when confronted with a Highway Patrol guy standing in back of me in line for coffee last week. Tears were streaming down my face, head down, swaying back and forth a little, praying that the girl making my espresso would hurry the fuck up.......and this cop is giving me the LOOK.......The one that says, "I wonder if I should give her a breath-alizer""
So situations like that is what prompted this card thing.
Also, it seems to me that if I were ever to go to the ER, it could be helpful there also, especially if it was signed by my DR.
Love you all. Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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