Author |
Topic: Rebounds from Prednisone (Read 364 times) |
|
Live4Fun
New Board Old Timer
One day at a time, we WILL make it through.
 
 
Gender: 
Posts: 302
|
 |
Rebounds from Prednisone
« on: Jul 2nd, 2003, 1:31pm » |
 Quote  Modify
|
Hey everyone!  I am SURE this one has been discussed before, but as I am a lazy SOB, I will ask again. (Oh and I couldn't find anything in the search either  
Has anyone experienced major rebounds a day or two after stopping a Prednisone taper down routine?
Last Thursday was my last day on a taper down Pred routine (which kept the beast away for 8 days ... Friday was great too... and then Saturday I got hit about every two hours with KIP 8s and 9s. Since then, nothing.
I believe the Pred and increase in Verap may have clipped my cycle (wasn't due to end until late August). Here's hoping. But just wanted to know if anybody else experienced a rebound "day" like that or if I was just having a bad attack day.
Thanks all!!
Bryan
|
|
 IP Logged |
"If you hear a different drummer, dreamer take a chance... The road you choose to follow means the difference in the dance." (D. Morgan) -- Bryan
|
|
|
Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
Gender:
Posts: 2660
|
|
Re: Rebounds from Prednisone
« Reply #1 on: Jul 2nd, 2003, 1:34pm » |
Quote Modify
|
Not rebounds....the beast returns!
|
|
IP Logged |
Click The Flag
|
|
|
Ueli
Guest
|
|
Re: Rebounds from Prednisone
« Reply #2 on: Jul 2nd, 2003, 2:25pm » |
Quote Modify
 Remove
|
Quote:| (Oh and I couldn't find anything in the search either ) |
|
See my post: How To Stop The Frustrations About The Lack Of Results From The Search Engine, And How To Become An Expert In Its Use..... (click on the link below)
HTSTFATLORFTSE, AHTBAEIIU
PFNADs
Ueli
|
|
IP Logged |
|
|
|
klp
New Board Junior
I love YaBB 1G - SP1!
Gender: 
Posts: 81
|
|
Re: Rebounds from Prednisone
« Reply #3 on: Jul 2nd, 2003, 2:28pm » |
Quote Modify
|
oh, mark. please dont say that. Im on cloud nine. this is my first time in 12 years using preventative meds (prednisone, verapamil, and melatonin) and i am now 4 days pain free. not even a shadow. I though this was suppose to break the cycle? Does the beast come back for everyone after the prednisone stops or do i still have hope?
|
|
IP Logged |
|
|
|
Live4Fun
New Board Old Timer
One day at a time, we WILL make it through.
Gender:
Posts: 302
|
|
Re: Rebounds from Prednisone
« Reply #4 on: Jul 2nd, 2003, 2:35pm » |
Quote Modify
|
Ueli,
Oops... yeah, I didn't use the 4th section (the old time search)... ah well... Now you all will have to answer the questions again! Muhahahahaha....  ;D
Besides, since the last discussion (and this goes for all the discussions that have been repeated) there have been new members to the site who have a wealth of information never shared before. So nyah 
Seriously though, thanks Ueli. I didn't know the 4th section had to be filled in. Off to search old posts now...
Bryan
|
|
IP Logged |
"If you hear a different drummer, dreamer take a chance... The road you choose to follow means the difference in the dance." (D. Morgan) -- Bryan
|
|
|
stuey
Guest
|
|
Re: Rebounds from Prednisone
« Reply #5 on: Jul 2nd, 2003, 2:58pm » |
Quote Modify
Remove
|
This is my thought on Prednisone. Three years ago when I was first diagnosed the doc started me on prednison taper (60 mg) then on down. It absolutely broke the cycle. This year I tried it again myself (my dog takes it every day so there was some in the house) at 60 and it stopped for maybe two days and then back it came just as bad as before. I then after some thought took it up to 90 and tapered from there. One day perhaps of relief but no more. I was absolutely devastated. So I can't say why it works sometimes and why not sometimes. But if you can get even one day i guess it's worth it. but many tend to get giddy on prednisone and you gotta take it early in the morning cause it can make it hard to sleep nights and it messed up my stomach as bad as heavy drinking does. i don't know if this has helped at all but that's what i have to tell about prednisone. a couple days relief then it broke through and came back with that vengeance. would i try it again? definitely cause ya never know. stuey
|
|
IP Logged |
|
|
|
don
Guest
|
|
Re: Rebounds from Prednisone
« Reply #6 on: Jul 2nd, 2003, 4:29pm » |
Quote Modify
Remove
|
Thats not a rebound, thats just returning to the cycle.
Typical when you reach the low doses. The only way I have prevented that is to get on high doses of a preventatiuve while, or preferably before, I begin to taper down.
|
|
IP Logged |
|
|
|
minnie
New Board Hall of Famer
my greatest joys are my daughters April & Beth
Gender:
Posts: 1059
|
|
Re: Rebounds from Prednisone
« Reply #7 on: Jul 2nd, 2003, 4:41pm » |
Quote Modify
|
Bryan,
AS I UNDERSTAND IT-Prednisone is not realy meant/
able to "Break" a cycle,but is to be used as a temporary
relief when a cycle starts to allow the verapamil or other
preventitive to kick in.
I THINK the only things reported to be able to break
a cycle are hallucinagenics(sp?).What dose of Vera are
you taking?It is not effective for me until I reach 960mlg.
at 720mlg I still get shadows and sometimes a
breakthrough,witch I use O2 for.
Wishing you and all PFDAN,
BillyJ
Damn just realized I was signed in under my wifes name
Oh well I'm too lazy too retype this!
|
|
IP Logged |
Friends are Angels who lift us to our feet when our wings have trouble remembering how to fly
______________
You may only be one person to the world
but you may also be the world to one person.
|
|
|
eyes_afire
New Board Hall of Famer
Gender:
Posts: 1227
|
|
Re: Rebounds from Prednisone
« Reply #8 on: Jul 2nd, 2003, 6:36pm » |
Quote Modify
|
Sorry KLP, only in extremely rare cases does prednisone actually break a cycle. Billy is right on. Make sure you have a plan for when you have to stop the prednisone.
---Steve, one of many...
|
|
IP Logged |
Still around... in a brand new world now...
|
|
|
BlackDog
New Board Junior
Gender:
Posts: 100
|
|
Re: Rebounds from Prednisone
« Reply #9 on: Jul 2nd, 2003, 7:28pm » |
Quote Modify
|
Bryan,
I finnished my first ever prednisone-taper last Tuesday. Within two or three days the CH was back, although I have not had a k-9 or k-10 this week. It never really 'went away' completely on the prednisone, it just got a lot better. I have not been prescribed a classic preventative yet, my nuero is still playing around with my blood-pressure, heart and other meds. My only hope at this point is that according to my logs from last year, my cycle ended the first week in August  .
I wish you good luck and PFDAN.
Darren
|
|
IP Logged |
|
|
|
Live4Fun
New Board Old Timer
One day at a time, we WILL make it through.
Gender:
Posts: 302
|
|
Re: Rebounds from Prednisone
« Reply #10 on: Jul 2nd, 2003, 9:01pm » |
Quote Modify
|
At the same time that I started on Pred I also went up from 120 to 240 on verap. Unfortunately this is all the higher verap I can take due to other conditions. Already on the 240 I feel my chest tightening so I am not sure how long I can stay on it.
I don't know guys, I think it might have worked, or at least the higher verap has worked, or I had a really short cycle (god willing) cause I have been pf since saturday and i am just taking Verap and Elavil. Crossing my fingers.
Thanks for all the feedback though. I appreciate it
Bryan
|
|
IP Logged |
"If you hear a different drummer, dreamer take a chance... The road you choose to follow means the difference in the dance." (D. Morgan) -- Bryan
|
|
|
gene
New Board Junior
I love YaBB 1G - SP1!
Posts: 52
|
|
Re: Rebounds from Prednisone
« Reply #11 on: Jul 4th, 2003, 2:24am » |
Quote Modify
|
Pre. stopped my cycle!
I am episodic/typically every yr about now for 4 to 6 wks.
My first rx for pred. taper. 60 MG for 7 days then 10 less each day.
Worked!!
Gene
|
|
IP Logged |
|
|
|
iJun G4
New Board Junior
Gender:
Posts: 58
|
|
Re: Rebounds from Prednisone
« Reply #12 on: Jul 4th, 2003, 2:45am » |
Quote Modify
|
This is just my experience and observation about Prednisone.
Prednisone does offer me temporary relief.
But, more than with any other drug, Prednisone seems to make the beast bigger and stronger each time the effectiveness wears off. This is based on 18 years of episodic CH with and w/o Prednisone.
Certainly in my current cycle, the pain got worse *after* Prednisone than before, just a little bit, like an added "definition" or "edge" to the pain.
I'm beginning to feel that it's almost like a pact with the devil. Short term relief, long-term pain.
In the future, I think I'm going to avoid it altogether...
|
|
IP Logged |
=====
Clusterheads are warriors who fight unbearable pain every day to stay alive.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss