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Topic: Verapamil Users (Read 871 times) |
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cathy
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Verapamil Users
« on: Jun 30th, 2003, 12:54pm » |
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Please answer the following questions...
1/ What dosage of Verapamil are you on.
2/ How long have you been on Verapamil
3/ Episodic or Chronic
4/ Have you noticed Swollen gums/Bleeding Gums
5/ In your opinion have your clusters changed
I plan to print the post off and send the results to Dr Goadsby if thats is okay.
Cathy 
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fubar
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Re: Verapamil Users
« Reply #1 on: Jun 30th, 2003, 12:58pm » |
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1) twice daily 1.5x240mg
2) 10 months
3) Chronic
4) Not at all
5) Yes. At first, verapamil alone seemed to help a bit, then not at all. Now, verapamil plus lithium is what keeps me alive.
-Fu
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Marc
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Re: Verapamil Users
« Reply #2 on: Jun 30th, 2003, 1:36pm » |
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1) 180mg (SR) x 3
2) 4 Years
3) Chronic
4) No
5) Yes - Verapamil worked fantastically for the first 2+ years. Now it's gradually becoming less effective with time.
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Kenzie60
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1. 160mg x 3 times a day
2. Since May 2003
3. Episodic
4. No
5. Yes, but I think I my cycle was ending anyway.
Roseanne
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GarysGirl
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Hi Everyone ; I am a supporter , but will answer how Verapamil works for my Clusterhead.
1. 80mg 2-3 Xday
2. 1 1/2 years
3. episodic
4. no
5. the headaches have not changed , but in Canada they stopped manufacturing N-Verapamil in Feb 2003 and brought out Gen-verapamil. The headaches really broke through with the change in meds. It has been brought back under control with the addition of 25 mg Elavil at bedtime.
Doris
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Gramma-Nancy
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1) 240 mg
2) During cycles since 1997
3) Episodic
4) No
5) Yes. Am able to skip nights without a HA while on it, and the intensity of the ones I get are less.
Nancy
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ZAIRA
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Re: Verapamil Users
« Reply #7 on: Jun 30th, 2003, 2:55pm » |
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Ciao Milady...
1- 960 mg (240mg x 4 times a day)
2- 8 years
3- Episodic ???
4- Never
5- I love Verapamil and it loves me... I use it with Lithium
Zaira 
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Live4Fun
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Re: Verapamil Users
« Reply #8 on: Jun 30th, 2003, 2:57pm » |
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1. 240mg/day now (usually 120/day)
2. 2 years
3. Episodic
4. Nope
5. A little, with the upped dosage and the combination of Prednisone during a cycle it has seemed to help. Could have just been the pred though???
Bryan
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"If you hear a different drummer, dreamer take a chance... The road you choose to follow means the difference in the dance." (D. Morgan) -- Bryan
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jonny
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480
13 years
Chronic
Pre or post store bought teef?
You betcha (For the better)
............................JTB ;D
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cbolony
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Re: Verapamil Users
« Reply #10 on: Jun 30th, 2003, 3:47pm » |
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240 mgs 2x aday
7 months
Episodic
No
when i was on a low dose no change higher dose combo with depakote low kips Cycles started earlyJan
ended march 6 two weeks PF then low kips still in them 5-8 aday maybe i going chronic will talk to neuro in a couple of weeks
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Lissa
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Re: Verapamil Users
« Reply #11 on: Jun 30th, 2003, 4:18pm » |
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1. Unsure of dosage, but I know it's very small.
2. 8 years
3. Episodic
4. No
5. Haven't noticed any changes.
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Episodic cluster survivor since 1995 at age 16.
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stuey
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Went up to 720 but now am going back down to 240 (I take for blood pressure).
Have been on for 3 years.
I'm supposedly episodic but this is sure one long long cycle.
No swollen gums or anything
Can't say I saw any real change even when I went up to 720. I wanted to think I did but not really.
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don
Guest
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240 mg 2X day (480 per day)
Last three cycles
Episodic
No side effects
yes, minimizes frequency of attacks
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rumplestiltskin
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1. 480 in morning, 240 at night
2. 2 years
3. Epy guy
4. Not to the best of yer knowledge
5. Hell yea! They almost completely disappeared! The few that break thru barely touch the kip scale before I O2 and/or Midrin and/or excercise and/or Zomig them back to hell. I feel like I died and went to Heaven.
wage Peace
den
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eyes_afire
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Re: Verapamil Users
« Reply #15 on: Jun 30th, 2003, 7:21pm » |
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1. 360 mg
2. This cycle: 3 months and counting. Last cycle 10 months before stopping it for an alternative treatment plan.
3. Episodic, I think (but shadowing since September 2001)
4. No.
5. Verapamil is very effective for me. Greatly decreases the frequency and intensity of CH. But, last cycle was the first time I tried it and it was my longest cycle (13 months instead of 6 months).
--- Steve, one of many...
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| « Last Edit: Jun 30th, 2003, 7:23pm by eyes_afire » |
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klp
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Re: Verapamil Users
« Reply #16 on: Jun 30th, 2003, 10:08pm » |
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1. 240mg twice daily
2. just started 2 days ago
3. episodic
4. nope
5. yes, yes, yes. prednisone 80 probably helps but since i started 2 days ago, ive had NO attacks!!!!!!!!!
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iJun G4
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Re: Verapamil Users
« Reply #17 on: Jul 1st, 2003, 6:00am » |
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1. 180mg x 3-4 times/day
2. 4 or 5 years, only during cycle (8-10 wks. each)
3. Episodic
4. No swollen or bleeding gums at all.
5. Verapamil has been very effective in reducing frequency and intensity of attacks, but I am always having to increase dosage for the effectiveness to continue. I used to feel a huge impact with just 180mg/day; now even 720mg might not be enough. I am going to request my neuro to start me on Lithium to see if if helps.
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Clusterheads are warriors who fight unbearable pain every day to stay alive.
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maggie_may
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Re: Verapamil Users
« Reply #18 on: Jul 1st, 2003, 7:38am » |
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1. 240mg 1x/day
2. only during cycle since November 2002
3. episodic
4. nope
5. I love it. I have less attacks when I'm taking it.
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Ann
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Re: Verapamil Users
« Reply #19 on: Jul 1st, 2003, 7:53am » |
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#1- 2 x 120 mgs Regular.... (tried SR..didn't work)
#2- coming on 3 years
#3- episodic
#4- yes
#5- yes in combination with lithium.
Good luck
hugs
Ann
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backagain
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Re: Verapamil Users
« Reply #20 on: Jul 1st, 2003, 7:54am » |
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1. 180mg SR 1xday
2. 2 weeks, I restart at the beginning of each cycle
3. episodic
4. no
5. yes, less intense, but I'm not sure if this is due to the varapamil or the prednisone.
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sanjay
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1) 480 mgs/day
2)early 2001
3)Chronic
4) YES ... when I was on 720 mgs. for a few months, I noticed Swollen / Bleeding gums. I was told by my Doc that this was called Gingival Hyperplasia /Gingavitis, and that high doses of Verpamil sometimes (on rare occassions) causes this. If unarrested, it leads to the teeth falling out. I was told to stop the Verap. However, I reduced it very slowly, & at 480 mgs., the swelling/bleeding stopped.(My teeth are still all there).
5) YES ... while on 720 mg's, my Ch's were down to about 1/day, all low intensity. On reducing to 480, they went up in intensity / frequency (BUT still much much better than with no Verap).
Today, on 480 mgs/day, and the occasional Shrooms (thanks to the Pink One), I'm relatively PF
PF times to all
Sanjay
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TerryS
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Re: Verapamil Users
« Reply #22 on: Jul 1st, 2003, 12:22pm » |
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1. I take 2 240mg at bed time.
2. March of 2003.
3. Episodic.
4. No.
5. No.
TerryS
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Major_Headcase
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Re: Verapamil Users
« Reply #23 on: Jul 1st, 2003, 9:23pm » |
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1) Dosage: 720mg/day during cycle; 1 X 240mg/day for blood pressure control
2) Verapamil during cycles - 2 1/2 yrs; FT for blood pressure control - just the last 2-3 months
3) Episodic
4) No gum problems
5) YES! All around better, fewer CHs and generally less severe, though I have had a few that were just 7-10 minute "blasts from hell" kip 8-9, compared to my usual 50-60 minute kip 3-7 on Verapamil (or until the Imitrex kicks in). This last cycle my doc added Prednisone and that helped as well.
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juvy
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Re: Verapamil Users
« Reply #24 on: Jul 2nd, 2003, 3:34am » |
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questions about Verapamil...didn't anyone else who has tried this drug have the side effect of being turned into a zombie?
When i was on it, i literally coudn't walk and breath at the same time as it took all my concentration to just breathe for a couple hours after i took the med. I literally layed on my couch and drooled...My brother and fiance being the loving people they are...watched and picked on me. I'm still planning my revenge for that.
~juvy
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