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Topic: Blast from the past (Read 377 times) |
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Kwill
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Hi - First post here - wish I was just a visitor but I actually joined the club back in 1979. Then, hallalua! - was thrown out in 1991.
Just been readmitted (actually, five weeks ago) so here I am with the Internet an ally this time round.
The 12-year period ('79 to '91) involved annual episodes that, fortunately, never lasted longer than four weeks and only one shot a night (even though each one felt like the mother of all shots until the next one).
What's making me feel more than slightly uneasy this time round is not just the unwelcome reappearance out of the blue, but the fact that it has now gone on for FIVE weeks with occasional three attacks a day.
Please let this not become chronic - I didn't even know, till I found this site that "chronic" existed  - I thought everyone with CH had just the annual episodes.
I don't think I can even contemplate what it must be like to be a chronic sufferer.
Massive sympathies though, for those that are chronic sufferers, and I hope you don't mind if I do my best not to join you.
kwill
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Virginia
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Re: Blast from the past
« Reply #1 on: Jun 25th, 2003, 5:49pm » |
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kwill-
welcome to the site! At this point, don't even start worrying about being chronic after only 5 weeks. There are a ton of episodics on this site with much longer cycles than that. You're not chronic until you've had them for a year....
Trust me, you have enough to deal with without worrying about something that may never happen. Just concentrate on your current cycle.
What meds are you using?
Virginia
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The Clusterhead formerly known as 9erfan.
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jonny
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As a 28 year chronic sufferer I say "Welcome" and thank you for your comments towords us blessed by the devil.
Grab your oar and take a seat in the boat....everyone rows here.
Im sorry you have to be here but you WILL NOT find another place on this earth with as much info on CH as you will find here.
Now sit down, STFU and row ;D
.........................................jonny
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Mark C
CH.com Alumnus
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Onward through the fog.
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Re: Blast from the past
« Reply #3 on: Jun 25th, 2003, 6:00pm » |
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I too became grateful for being episodic after learning about the dreaded "chronic" label. I still cannot bear the thought of never ending CH....poor bastards.
Don't worry about 5 weeks, or even 5 months...ask the chronics..that ain't quite enough. I have had many cycles last several months at a time...just not for a whole year...yet.
Hang in there Kwill and lets us know how the next few weeks go.
PFDAN's
Mark
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Roxy
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Re: Blast from the past
« Reply #4 on: Jun 25th, 2003, 6:14pm » |
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Kwill,
When you've done a year of ch's, with no meds, and less than two weeks PF....then worry about being chronic.
Get yourself some 02, here is the link that tells you everything you need to know:
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
Really sorry they are back for you, and I hope it ends soon. Read up....that way you can fight it the best way possible.
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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jonny
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Babe, its "Two weeks or more pain free"
.............................jonny (Kwill thread)
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Roxy
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Re: Blast from the past
« Reply #6 on: Jun 25th, 2003, 6:23pm » |
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See.....I knew I wasn't chronic...... ;D
Episodic with just long damn cycles....... 
Dumbass in TX,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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jonny
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I hold "Dumbass" title and dont you forget it
...............................jonny
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Roxy
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Re: Blast from the past
« Reply #8 on: Jun 25th, 2003, 6:33pm » |
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Then I get to be runner-up......  The prettiest one always wears the crown..... 
Kwill,
My whole hearted apologies for this thread going off track. I will shut up now.....I promise........ 
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Linda_Howell
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Hearing is one thing. Listening is another.
 
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Re: Blast from the past
« Reply #9 on: Jun 25th, 2003, 7:10pm » |
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Kwill,
WARNING:
If you're gonna stick around and help us all row the boat......expect threads to go off-track a LOT here. LOL
Welcome
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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CathiP
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Hiya, Kwill....you'll never find a nicer bunch of people- glad they're here, in a kinda sorry kinda way.... ???hmmmm.....anywayy, well, welcome!
( So, Jonny, does that make you King Dumba**?? ;D ;D)
I'm not off thread, Linda, I'm NOT I'm NOT!! Seeee? 
Cathi......running from Jonny!>>>>>>>>>>>>>
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Charlie
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Happy to be here
  
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Re: Blast from the past
« Reply #11 on: Jun 25th, 2003, 8:28pm » |
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Welcome back or whatever fits here.
Sorry you're getting clobbered but stick around. This is the place.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Blast from the past
« Reply #12 on: Jun 25th, 2003, 9:19pm » |
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Welcome to ya Kwill....hope yer cycle ends and yer PF real soon fera looooooooooooooong ass time ! Quick cycle wishy washy wisher Pam 
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Azrael
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Re: Blast from the past
« Reply #13 on: Jun 25th, 2003, 10:11pm » |
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Welcome to the board! Sorry that the beast is slowly disolving your cranium in an acid bath and pokin' your eyes out with a rusty butterknife. Welcome to the family! Good luck!
PFDAN................................ Drk^Angel
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paul_b
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Re: Blast from the past
« Reply #14 on: Jun 25th, 2003, 10:33pm » |
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CH knows no borders. Welcome to the ark of head hurts.
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KingOfPain
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Disgusted!
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Re: Blast from the past
« Reply #15 on: Jun 26th, 2003, 2:13am » |
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Hi Kwill,
Sorry the beast has made a reoccurrence in you life.
Glad you found this site (just wish it was because you wanted to say "Hi", not because of the beast).
Thank you for your comments about the chronic sufferers.
I sure hope things get better soon for you.
KingOfPain
on Jun 25th, 2003, 5:52pm, jonny wrote:As a 28 year chronic sufferer I say "Welcome" and thank you for your comments towords us blessed by the devil.
Grab your oar and take a seat in the boat....everyone rows here.
Im sorry you have to be here but you WILL NOT find another place on this earth with as much info on CH as you will find here.
Now sit down, STFU and row ;D
.........................................jonny |
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Thought you might like these jonny
(and everybody else).
KingOfPain (not trying to be funny, just sharing some rowing gif's)
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| « Last Edit: Jun 26th, 2003, 2:20am by KingOfPain » |
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Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
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Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
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Margi
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Re: Blast from the past
« Reply #16 on: Jun 26th, 2003, 9:00am » |
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Hi Kwill and welcome - sorry you have a reason to be here though.
I'm pretty sure the official definition for chronic is that you stay "in cycle" for at least 12 months with no more than 2 weeks of unmedicated pain freedom during that time. In other words, if you stop taking your meds and you get 2 weeks or more of pain freedom - you're not chronic. But that 12 month marker is the real milestone there. If you stay on your meds (even preventative) and find 2 weeks of no headaches, that's still not considered chronic because you may be masking symptoms with the drugs.
5 weeks is a short cycle, compared to some of the episodics here. My hubby's last cycle lasted almost 6 months.
I hope you find your magic bullet here and that relief is around the corner for you.
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Kwill
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Thanks very much, one and all, for your kind words and I really couldn't give a diddly about hijacked threads.
Just an answer to the med question: I always kick off with cafergot because it is so damned effective (for me) in the first two or three days - thereafter it becomes useless and I start the round of cocktails. In the past I just piled on all the crap that pharmacists suggested (none of them though, with any CH awareness), but now that I'm a recent returnee to the CH fold, I'm picking up everything I can get on the Web, mostly on this and the OUCH web site.
I have not yet tried O² but intend getting some this weekend or Monday - will also check out the immagrin injection some time soon.
Hope your weekend's as PF as possible.
kwill
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don
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My last cycle was almost 9 months long. Night and day Kip 8-10 hits, every night and every day.The worst cycle in 26 years. I am still episodic.
I will not say anymore for fear of jinxing myself.
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