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Topic: New Here (Read 395 times) |
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Tara Ann
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It's always darkest before the dawn.
 
 
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Hello everyone. I'm new to this mb...I looked around and didn't know where to put my post so here I am. I was just diagnosed with ch last year....for years and years prior they said I had migraines until finally they referred me to a nuerologist who says its ch. Mine are in the back of my head though and sometimes my eye on that side waters and sometimes it doesn't. I don't know much about ch but from what I read most ch sufferers dont get the pain in the back of their heads. I also usually have naseau and vomiting, which is classic migraine, but the doc said its just my pain tolerance is awful and thats how my body reacts to it. Well I had a time where i had a ch almost constantyl Now it's every couple weeks then when i start to get one it slowly gets worse for about a week then starts to slowly get better
Ok so this turned into a babbling post sorry.....it's just nice to know other ppl understand.....not nice that u have to feel it though!!! My hubby is a very sweet loving guy but he gets so frustrated and impatient with me when im having a loooonnnggg headache time period.
Well ty for listening to me go on.
Tara Ann
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Mark C
CH.com Alumnus
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Onward through the fog.
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Re: New Here
« Reply #1 on: Jun 23rd, 2003, 2:03pm » |
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Welcome to the board Tara Ann,
Sorry you need us but glad you are here. CH is a terrible thing but this place is a wonderful fountain of knowledge, support and family.
How about a litttle history,what meds are you on or have you tried? Anything work? Imitrex and oxygen are a couple of the drugs of choice aroond here.
I will attach a favorite link here to get you started on your CH PHD.
PFDAN's
Mark
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brain_cramps
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Re: New Here
« Reply #2 on: Jun 23rd, 2003, 2:12pm » |
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Tara Ann
I realize that you said you have been diagnosed by a neurologist, but the following doesn't really sound like CH (to me at least... I have been known to be wrong  ). Symptoms of CH are usually pretty "standard", even though there are the odd exceptions.
on Jun 23rd, 2003, 1:52pm, taraann wrote:| Mine are in the back of my head though and sometimes my eye on that side waters and sometimes it doesn't. |
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on Jun 23rd, 2003, 1:52pm, taraann wrote:| I also usually have naseau and vomiting, which is classic migraine, but the doc said its just my pain tolerance is awful and thats how my body reacts to it. |
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on Jun 23rd, 2003, 1:52pm, taraann wrote:| Well I had a time where i had a ch almost constantyl |
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on Jun 23rd, 2003, 1:52pm, taraann wrote:| Now it's every couple weeks then when i start to get one it slowly gets worse for about a week then starts to slowly get better |
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Have you taken the "Cluster Quiz" to the left?
When you "had a CH almost constantly", how long was that for? Any breaks in the pain?
Now when you get one "every couple weeks" that "slowly gets worse for about a week", are there any breaks during that period?
Are you able to sleep during that period?
Do they wake you up out of a sound sleep?
I realize its a few questions, but you're going to have to tell us more about yourself.
You should get answers to most of your questions here, but first off, start reading. Read, read, read... Then read some more.
Everybody here will be more than willing to help out if possible.
Hoping you get a break from your pain,
grant 
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| « Last Edit: Jun 23rd, 2003, 2:13pm by brain_cramps » |
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cathy
CH.com Alumnus
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Not all those that wander are lost......
 
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Re: New Here
« Reply #3 on: Jun 23rd, 2003, 2:21pm » |
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Hi Taraann....Sorry your suffering pain, but I have to agree, your description doesn't sound like CH, but then I also have been known to be wrong....take the quiz and let us know how you get on...some people are unfortunate enough to get clusters and migraines...hope you don't fall into this category....!
In the meantime...welcome to the board and hope it isn't clusters 
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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Tara Ann
CH.com Alumnus
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It's always darkest before the dawn.
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Re: New Here
« Reply #4 on: Jun 23rd, 2003, 2:27pm » |
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Well I took the quiz and it's about half and half. I was on something preventative and also Staydol nasal spray when I was getting them all the time....oh and by all the time I mean for about a week with few breaks of lesser pain here and there, then I'd have no pain for about a week and it would start over again.
I was on medication for other problems when I was getting the headaches more often, but I have been off all meds for the other probs for a year now and I haven't taken headache meds for about 6 months. I was hoping all the meds were contributring to the headaches but apparently they are not. I am seeing my doc tomorrow to get back on something to help the headaches.
Also i have tried oxygen and it didn't help.
And I was diagnosed by a nuerologist for ch's. Also my grandfather had ch's, my mother and sister have migraines.
Seeing as though the quiz was 50/50 for me do i even belong here?
Tara Ann
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BlackDog
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Re: New Here
« Reply #5 on: Jun 23rd, 2003, 2:28pm » |
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Hi, A good friend of mine is a migrane sufferer (I have CH) and we both agree...HEAD PAIN SUCKS! I pray you don't have CH, but WELCOME all the same. Educate yourself the best you can. Knowledge is power here.
Good Luck,
Darren 
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don
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You belong here at least until you have a proper diagnosis. If it turns out you dont have CH (and I sincerely hope you dont) we can direct you to other sites that will be of more help to you.
Better safe than sorry. Stick around.
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paul_b
New Board Old Timer
I love YaBB 1G - SP1!
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Re: New Here
« Reply #7 on: Jun 23rd, 2003, 2:37pm » |
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Interesting how heredity can bring on variations. I had one grandparent who probably suffered from CH ( never officially diagnosed), and another with migraines. My mother gets migraines but I am a classic CH sufferer. Hope doc finds meds that works for you.
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Karla
CH.com Alumnus
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One of Many and Never Alone - Join OUCH
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Re: New Here
« Reply #8 on: Jun 23rd, 2003, 2:41pm » |
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If your dr. says you have ch and the test was 50% possitive I would say you belong here until you can prove you don't have ch. Stick around and try some of the tips and ideas and meds they may work for you. Good luck and welcome to the family.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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CathiP
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Hi Tara Ann- Lots of great words above...I hope you get your answers soon, and relief sooner still.
Sorry the beast....or his relative is picking on you.
BE PF!
Cathi
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ZAIRA
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Re: New Here
« Reply #10 on: Jun 23rd, 2003, 2:57pm » |
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Hello Ann, thank you for joinins us, unfortunately you are a CH sufferer, but fortunately you are in this family and we help you... stay with us... and all the best for you...
Zaira 
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cootie
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Re: New Here
« Reply #11 on: Jun 23rd, 2003, 3:03pm » |
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Hi taraann....sorry yu have head pain of any kind...I suppose time will tell and hope you find what works and you find out exactly what type ha you have. Good luck to you. Head pain sucks sentence sayer Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Tara Ann
CH.com Alumnus
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It's always darkest before the dawn.
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Re: New Here
« Reply #12 on: Jun 23rd, 2003, 8:45pm » |
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Thank you for welcoming me to your group.
Tara Ann
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Azrael
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Sometimes... Being good just ain't worth it.
  
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Re: New Here
« Reply #13 on: Jun 23rd, 2003, 8:52pm » |
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Welcome to the board! Sorry that the beast is bashing your cranium in with a rusty motorcycle chain. Welcome to the family! Good luck!
PFDAN................................... Drk^Angel
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Charlie
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Re: New Here
« Reply #14 on: Jun 23rd, 2003, 9:55pm » |
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Welcome to our madhouse. If you have clusters, you have a home here. For me, the best indicator is that if they wake you up, you probably have CH. No one sleeps or even can lie down when getting hit.
Stick around and look us over. You're welcome and it would be great to find you don't have this horror
Charlie
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Callico
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Re: New Here
« Reply #15 on: Jun 23rd, 2003, 11:52pm » |
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Hi Tara Ann,
Glad you found us, and yes you belonghere, at least until you know you have something else. Even if it is something else there is a lot to learn here and you can help us row toward the cure.
Wishing you PFDANs,
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Tara Ann
CH.com Alumnus
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It's always darkest before the dawn.
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Re: New Here
« Reply #16 on: Jun 24th, 2003, 4:55am » |
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Thank you again everyone....and oh yes they do wake me out of a sound sleep. Latelly I've been lucky to get an hour to two hours of sleep at night. I'm so tired when my day begins (at 5) that I sound drunk today!
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suzy617
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Re: New Here
« Reply #17 on: Jun 24th, 2003, 6:20am » |
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Welcome Tara Ann and hope you find some relief soon.
Suzy
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Big Dan
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Re: New Here
« Reply #18 on: Jun 24th, 2003, 9:13am » |
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... Hey, Tara...
... Glad you found us, sorry you had to...
... truckloads of information and support can be found here, along with the ocassional boat-rocker... you'll just have to get used to it... 
-Big Dan
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maggie_may
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Re: New Here
« Reply #19 on: Jun 24th, 2003, 9:34am » |
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Tara Ann,
Welcome aboard! Sorry you're going through horrible pain, I hope you find relief soon. There's tons of information here to learn from - and we're all around if you ever need to talk.
pfdans
maggie
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Strength does not come from physical capacity. It comes from an indomitable will. - Mahatma Gandhi
The human spirit is stronger than anything that happens to it. - C.C. Scott
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oringkid
Guest
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Sorry you are in pain, whatever it might be. I'm with Grant and Cathy, doesn't sound like CH...at least typical CH. How long does each attack last?
Have you had an MRI to rule out other problems? My husband had that kind of pain (back of head) with nausea and it turned out to be a sinus infection in the back sinuses where most people don't get infections. He had no other sinus type symptoms just this awful headache.
Hope you find your answers soon! Let us know how it goes!
Sherry
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