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   Author  Topic: Whats wrong with this picture ?  (Read 1506 times)
don
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Whats wrong with this picture ?
« on: Jun 23rd, 2003, 6:18am »
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Trying to appease Gene            96 responses (at least)
 
CH The orphaned disease           9 responses
 
ER treatments                             14 responses
 
Vibes for a Friend                          3 responses
 
 
Why dont the old timers post anymore ?
« Last Edit: Jun 23rd, 2003, 6:20am by don » IP Logged
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Re: Whats wrong with this picture ?
« Reply #1 on: Jun 23rd, 2003, 10:54am »
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Damn-it Don,
 
I had a 2 ½  page letter, that I had been working on for 2 fu*king (sorry jonny, looks like I just made Fubar King, not my intention) weeks, to placate Gene, touching on every point and nuance, now you drop this, onto my lap.  
 
In the overall scheme of things, there is nothing, really wrong with this picture. There is an ebb and flow to this site, just as there is in life. I think of this board, as a true microcosm of human existence, with a whole lot of fu*king (sorry jonny) pain thrown in.  
 
We need to generate traffic for this board to hum, if Gene generates traffic, then that’s cool with me. But, remember I equated the fights on this board, as similar to watching auto racing, just waiting for an accident to happen and the attendant ratings bump (I paid for that one).  
 
 
Geno Dude,
 
I have, somehow, pissed off everyone on this board, at one time or another (only a couple of times on purpose). Contradicting my above statement, that is NOT, a microcosm of my life, I go through life, trying to make people laugh and feel good. Things just get twisted on this board, by Cluster Pain and these little squiggles on the page, that can’t show my eyes.
 
But, you know what? If I were in need, every single person that I had a, sort of, confrontation with, would be right by my side. We are Clusterheads!!! The rest is just stage dressing.
 
Another point (for everyone), don’t take things so personally. We don’t even know who you are. You are a squiggle on a computer monitor.
 
If you check my past posts, you will see that I have been suggesting ideas and plans for us to motivate and mobilize as a Cluster Unit and grass roots, political  force, for change. If we could mobilize, as a national (networked) political coalition, to get Cluster Headaches declared a disease, we could ameliorate so much suffering, because of Federal Government protections. We are much badder than a “syndrome” or “affliction”……We are FUCKENEH CLUSTERHEADS. “We Wear Our Pain With Pride”.  
 
When you check the archives, you will see that many people before us, have laid the foundation that we walk on. It is up to us to fight the good fight, and build on that foundation. We all have to keep rowing.
 
However, dude, it seems a little narcissistic to include your name in every subject post title, when we can obviously see, in the next column, who started the thread. But, that’s just a personal observation.  
 
 
 
den MADE me do this,
 
David J.  
 
 
P.S. The old timers don’t post anymore, because it’s the ebb and flow
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Re: Whats wrong with this picture ?
« Reply #2 on: Jun 23rd, 2003, 11:12am »
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on Jun 23rd, 2003, 6:18am, don wrote:
         
 
 
 
 
 
 
Why dont the old timers post anymore ?

 
If memory serves me, Don,  you've asked this question before so I'd be interested to know.....  Why do YOU think the old timers don't post anymore?
 
Jacks Cool
 
PS....Purdy decent post there, O'Sommy.... Smiley
« Last Edit: Jun 23rd, 2003, 11:17am by Jackie » IP Logged
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Re: Whats wrong with this picture ?
« Reply #3 on: Jun 23rd, 2003, 11:21am »
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From this day forward,
Regardless of the subject,
I'll post in haiku.
 
PFDANs
-Curtis
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Re: Whats wrong with this picture ?
« Reply #4 on: Jun 23rd, 2003, 11:22am »
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If you don't like it,
Then my next message to you,
Will rhyme with 'haiku'.
 
PFDANs
-Curtis
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Re: Whats wrong with this picture ?
« Reply #5 on: Jun 23rd, 2003, 11:25am »
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Hell, Curtis, I thought you already did.... ;D
 
JacksWhoIsn'tScientificMindedEnoughToAlwaysFollowTheWholeDeal Cool
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Re: Whats wrong with this picture ?
« Reply #6 on: Jun 23rd, 2003, 11:26am »
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Good one David.....all I now is I am tired of them argumentive types (I deal with them enuff as it is round here) ......no matter what ya say...."NOPE wrong answer types"......I think I'll move on and ignore it.....I'll only read the silly stuff from now on.   Wink ;D Wink  Miss Digress Pam
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don
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Re: Whats wrong with this picture ?
« Reply #7 on: Jun 23rd, 2003, 11:31am »
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Quote:
Why do YOU think the old timers don't post anymore?  

 
I cant speak for them but if I were to venture a guess I would say it is because the focus of the MB has become to blurred.
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Re: Whats wrong with this picture ?
« Reply #8 on: Jun 23rd, 2003, 11:42am »
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I think another problem is that the option of reading the 10 most recent posts is available.  That way, only the last post in a thread is read and replied to, completely missing the original intent of the thread in many cases.  
 
I think that's why we're getting FIVE PAGES of replies to a thread that should have ended when the question was answered (i.e. when Grant posted that he wasn't directing that "install humour" thing to Gene).   Roll Eyes  But, as that 10 Most Recent Posts thingy keeps getting refreshed, it just becomes a free-for-all and the thread quickly goes off topic.
 
I realize that this is answering a different question than you asked, Don, but I honestly do think it makes for big frustration for a lot of people.  I also don't think that ANYONE here can make posting rules or profile rules or any other kind of rules, other than DJ.  I think THAT trend is pushing a lot of regular posters away, as well.
 
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Re: Whats wrong with this picture ?
« Reply #9 on: Jun 23rd, 2003, 11:46am »
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 Maybe the general posts section should be divided into two areas. Serious discussion, and light-hearted discussion. Thats where the division seems to come from. Some people want to be serious most of the time, and some people want to be light-hearted most of the time. And some people want both equally.
 My personal feeling is that this board is great as it is. It has a perfect blend. If I want to laugh, I'll find something funny. If I want to talk about neurological mechanisms of pain and neurotransmission, I can. And if I was feeling really down and hurting, I would have to beat the supporters back with an oar to keep from being smothered with love (mom always said "a warm handshake is as good as a hug"Wink
 With that said, I don't expect people to care about my opinion or to take what I say seriously. If they do, great, if they don't, I don't care. But that is just me.
 
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Re: Whats wrong with this picture ?
« Reply #10 on: Jun 23rd, 2003, 11:52am »
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Well since you asked,  I'll give you my opinion.
 
It's as with any other volunteer organization.  Only a few volunteer.......usually within a realitivly short time of joining.  The joiners work their asses off for a couple of years trying to get the organization off the ground. ...to get the words "cluster headache" known. Remember how big our Liaison Committee was under Steve?  What happened?  Remember our "Publications Committee?  Several people worked on the "first" brochure and newsletter.......Ted has done the last what, 3?, pretty much by himself.  If you haven't done one, you can't imagine how much work it is.
 
Then, in frustration, most just fade away.  And some stay, hoping that someday more will volunteer.
 
In the past 4 years or so,  can you compile a list of the people that put forth hours and hours of their time researching, organizing, typing, making phone calls and delivering brochures, and puting conventions together?  Ask Barb how many it took her to incorporate OUCH, just for one example. ?    
 
Yes, we need all the supporters we can muster up.  Yes, we need other sufferers to bond with, learn from and to build friendships with.
 
But this will never get us all that we really need....a  joint effort to make this malady known!!  A real feeling of construction.  A big number of people willing to work for the cause.  The vast majority are just happy to have found that they really aren't alone.  That's not a bad thing.  It is a small miracle just to have found this site.  
 
I'm just offering my opinion of where our people eventually go.
 
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Re: Whats wrong with this picture ?
« Reply #11 on: Jun 23rd, 2003, 11:56am »
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I seem to have forgotten...............The old timers were interested in organizing OUCH.  
 
The message board has a different meaning now.
 
But none the less, that's what the old timers had in mind ........to further the cause of cluster headaches.
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Re: Whats wrong with this picture ?
« Reply #12 on: Jun 23rd, 2003, 12:03pm »
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? What 10 most recent post thing??
What am I missing?  
 
Evidently stupid as dirt today, Sherry
 
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don
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Re: Whats wrong with this picture ?
« Reply #13 on: Jun 23rd, 2003, 12:14pm »
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Dirt contains nutrients and minerals that provide life.
 
When dirt is properly compacted it will provide stability to the most massive, complex,  structures on earth.
 
When seeded, dirt will provide a wonderous assortment of colors and fragrances pleasing to the eye and nose.
 
 
I like dirt.
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Re: Whats wrong with this picture ?
« Reply #14 on: Jun 23rd, 2003, 12:26pm »
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Sherry,
It's in the Forum Statistics area, right above where you see who's online on the home page of the message board.  
 
(don't feel bad - I had no idea you could go subject to subject by pressing the "Next" button at the bottom of each thread either until Don mentioned it in another thread.)
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Re: Whats wrong with this picture ?
« Reply #15 on: Jun 23rd, 2003, 12:32pm »
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Thanks Margi LOL!
 
Don, ok, ok,  I'm stupid as a box of hair.  How bout that?
 
Sherry
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Re: Whats wrong with this picture ?
« Reply #16 on: Jun 23rd, 2003, 12:34pm »
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Oh for gosh sake..........a "next button"!!  I haven't seen it until now.  Thanks Margi.
 
don...if all things beautiful were buried in one spot, would the flowers be brighter and smell more fragrant?
 
stfu,
Donna.
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Re: Whats wrong with this picture ?
« Reply #17 on: Jun 23rd, 2003, 12:39pm »
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I knew about the next button, but never noticed that 10 posts thing.  
 
That's purty cool.  
 
I think I'll just use that from now on.... Just kidding. LOL I couldn't stand leaving those little "new" tags sitting there. LOL
 
Sherry
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Re: Whats wrong with this picture ?
« Reply #18 on: Jun 23rd, 2003, 4:32pm »
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I don't see anything wrong with the picture, except for the fact that some people expect everyone to announce publically anytime they do something good... Sorta like when your kid first starts potty training, how they'll run up to everyone they can, and tell them they pooped in the potty.  
 
I for one spend as much time as I can to help promote awareness for CH whenever possible, but I do not, and will not post everything I have done, nor post anytime I do something else.  Why not?  Because I do not feel I need to.  I do what I do because I feel I should... Not because I want recognition... Not because I want to fit in.
 
I'm not saying that everyone that replies to threads like the ones don mentioned are just doin' it for a "Yay me!" But I do think that a lot of people are like me, and would rather not tell everyone everytime they do something.
 
It all boils down to the fact that if someone wants to help, they will... If they don't, they won't.  Mayhaps we should spend more time doing something, and less time complaining about the posts.
 
PFDAN................................... Drk^Angel
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Re: Whats wrong with this picture ?
« Reply #19 on: Jun 23rd, 2003, 4:53pm »
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The message board. Who should post ? What should they post about? Can the post be funny? Personal? Flaming? Prayer? What post should be answered? What post get the most replys? The questions go on and on> I been here since April of 1999. There is one thing I have learned!!!
 
There are more friggen what this board should be post than anything else here! No matter what you do no matter what ya say there will ALWAYS be someone who will complain, and dislike it.
 
The board is what the board is...no one but DJ can change it.  
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Re: Whats wrong with this picture ?
« Reply #20 on: Jun 23rd, 2003, 5:33pm »
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ROCK-N-ROLL....E Baby!!!!
 
..............................jonny
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Re: Whats wrong with this picture ?
« Reply #21 on: Jun 23rd, 2003, 5:45pm »
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on Jun 23rd, 2003, 11:46am, CJohnson wrote:
 Maybe the general posts section should be divided into two areas. Serious discussion, and light-hearted discussion. Thats where the division seems to come from. Some people want to be serious most of the time, and some people want to be light-hearted most of the time. And some people want both equally.
 My personal feeling is that this board is great as it is. It has a perfect blend. If I want to laugh, I'll find something funny. If I want to talk about neurological mechanisms of pain and neurotransmission, I can. And if I was feeling really down and hurting, I would have to beat the supporters back with an oar to keep from being smothered with love (mom always said "a warm handshake is as good as a hug"Wink
 With that said, I don't expect people to care about my opinion or to take what I say seriously. If they do, great, if they don't, I don't care. But that is just me.
 
PFDANs
-Curtis

 
 
NOT a haiku  
 
just an observation.
 
LOL!!   ;D   <--------  (which means, JUST JOKING!!!)
 
tina   Kiss
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Re: Whats wrong with this picture ?
« Reply #22 on: Jun 23rd, 2003, 5:57pm »
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E......I am with you today... and Donna great post... someone is always complaining and Im just glad you are all here... even you Gene...  
 
what happens here is the welcomers welcome, the supporters support and those that post alot post alot... Everyone reads the conflicts like soap operas... and gets involved by...the appologizers apologize... the fixers fix and then someone says "Can't we all just get along"  I love it here... I post to what I want to post to... I welcome when I can, Support when I know what to say if no one has said it first... I apologize when I should, and try to fix when I dont know when to mind my own business............ thats just me  ree
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Re: Whats wrong with this picture ?
« Reply #23 on: Jun 23rd, 2003, 6:01pm »
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"Thats just me Ree"
 
You just sumed up this whole board in a few sentences, Ree......and did it nicely!!!
 
....................................jonny
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Re: Whats wrong with this picture ?
« Reply #24 on: Jun 23rd, 2003, 7:29pm »
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Quote:
Don, ok, ok,  I'm stupid as a box of hair.  How bout that?  
 

 
LMAO
 
Sherry, just breaking your........................
 
HMMMM?
 
 
What do you break on a woman?
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