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Topic: New Vistors Page (Read 526 times) |
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don
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Quote:Hello and welcome!! We LOVE to have new visitors find OUR (that includes you) site. If you suffer from, or live with/love/care about someone who suffers from, Cluster Headaches, this is THE place for you!
Our site can be a tumultuous, fast-moving, contentious world at times, but first and foremost, it is the most caring, compassionate, supportive family of cluster headache sufferers (and their supporters) in the world.
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Dont see a single line warning any sufferer to "be carefull what you say.......professionals might be watching"
So to the newbies......If you have something to say.......SAY IT........and dont be intimidated by anything that infers that this site is for or about anything but sufferers/supporters and our trials and tribulations
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| « Last Edit: Jun 12th, 2003, 8:15pm by don » |
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paul_b
New Board Old Timer
I love YaBB 1G - SP1!
 
Posts: 371
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Re: New Vistors Page
« Reply #1 on: Jun 12th, 2003, 8:33pm » |
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And I would add that the longer you are on the Board, the more you will enjoy the variety of personalities that make up this family. So, Welcome 
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don
Guest
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Quote:
and massive understatements
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cbolony
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
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Re: New Vistors Page
« Reply #3 on: Jun 13th, 2003, 8:13am » |
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Don i liked what you said. I just want to bring it back to the top before it gets lost
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Hound_Dogg
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on Jun 12th, 2003, 8:12pm, don wrote:
So to the newbies......If you have something to say.......SAY IT........and dont be intimidated |
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St. Fud has fleas, and his breath stinks! There I said it and I don't feel intimidated. Well, maybe a little bit.
Jim
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Jackie
CH.com Alumnus
New Board Hall of Famer
Go For It!!!
Gender: 
Posts: 2963
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Re: New Vistors Page
« Reply #5 on: Jun 13th, 2003, 10:48am » |
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Don,
I read your/the above quote and agree fully.
Now can you find me a quote were it is stated that this site is for practicing a*shole-ism, vulgarity, personal attacks and rude insulting behavior 
True...this site was created for clusterhead and their supporters.... a place for them to get acquainted, exchange information, rant, etc. However, I don't find where professionals have been banned. Should they come here (I know for a fact that some do/have) and read some of this shit they would think we were all a bunch of fuckin' nuts....candidates for Jerry Srpinger and not Oprah. I've been in my share of flame wars, bullshit posts, etc....and I truly believe that a good "knock down drag out" is good once in awhile (keeps the board rockin')...but I still believe there should be a thought process/feeling that bad behavior is the exception around here rather than the rule.
Now...shut up, Don...and no sassin'... ;D or I'm gonna tell on ya... 
Jacks 
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| « Last Edit: Jun 13th, 2003, 10:49am by Jackie » |
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Jimi
CH.com Alumnus
New Board Hall of Famer
Who loves ya baby!
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Posts: 2286
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Re: New Vistors Page
« Reply #6 on: Jun 13th, 2003, 11:19am » |
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Hi Jacks!
I gotta agree with you. Nobody used to pick anymore than me. But it was always in good fun. And if I found out that I had hurt someones feelings, I would usually apoligize. Over the last few months, the tone on some posts have gotten past the teasing to posts that I could only catagorize as mean. Many on here have a few beers and I sometimes wonder if the person is half lit and wouldn't be saying some of the things they have said sober. Anyway, these are apparentely feelings that many have that are registered on here. But hey, it ain't my board and I love the guy who owns it, so what do I know? I don't posts too often but I read it daily. But then, neither does DJ so I guess it is ok. Have fun at the
convention. I know you will. 
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| « Last Edit: Jun 13th, 2003, 11:22am by Jimi » |
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I am convinced that life is 10% what happens to me and 90% how I react to it.
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Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
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Re: New Vistors Page
« Reply #7 on: Jun 13th, 2003, 11:29am » |
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Rockin post, Jackie - as always.
I need to repeat a point I've enjoyed making (ad nauseum) over the years though... ;D
I mean, really - why WOULD a doctor take the time to read these conversations between sufferers and supporters? Sure we do come up with some new research stuff here on the board, but it's real rare anymore, (even though Curtis has been doing some yeoman service in that regard lately) it's mostly just gossip/personal stuff here. Not that there's anything wrong with that - last time I checked, THAT's the purpose of a message board.
Wouldn't the doctors be reading the buttons to the left? Wouldn't they show up here more from a researchers point of view, rather than a party-goer/flamer/support needer? The message board is only one button in a sea of many. Unless they are psychiatrists (or scouts for Jerry's show), why would they bother to read the message board at all?
If they've got time to dig through and read post after post after post, their patient load must be non-existant. That's never a good sign with a doctor. 
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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CJohnson
New Board Old Timer
Cannot kill the family, Battery is found in me
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Re: New Vistors Page
« Reply #8 on: Jun 13th, 2003, 11:37am » |
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Whoa, there's a visitor's page? I must have overlooked it and proceeded directly to posting nonsense and wild speculation.
Margi, I know a lot of words, but not "yeomen". I'm scared to look it up.
PFDANs
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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Elaine
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I agree with both of you Jackie and Margi. A lot of people say OUCH is the place doctors and people who want information should be.
Most everything on OUCH doctors already know. If they keep up with things they should. If I was a doctor I would want to know what is going on with THE people getting hit. I would come here myself.
For people who are getting hit and in cycle that just find us, we all know finding people is more important than any information we can get. Most all of us were told clusters are rare, and not many of us ever talked to another who had this pain. My biggest problem with dealing with clusters before I found this site was thinking I was nuts, and that the doctors were missing something. It eased my mind finding this place and made it much easier to deal.
You two rock as always !
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Jackie
CH.com Alumnus
New Board Hall of Famer
Go For It!!!
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Re: New Vistors Page
« Reply #10 on: Jun 13th, 2003, 11:46am » |
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I agree with you, Margi. I highly doubt that the medical professionals would spend countless hours checking out the message board. One of my concerns is the media. We've tried and tried to get some recognition from talk shows, newpapers, TV news....anyone that will give us any space. I've wondered...should we get their attention where would it lead .....my thinking is they might want to get a feel for who we are and check us out on a more personal level...re: the board.
Hell....what do I know ??? I just think we need to behave a little better(not all the time...I love some of the controversy ;D)...just in case...and not to mention how it makes some members of the family feel.
Jacks
Oh, just one more thing...I'm proud to call you two ladies my friends
You too, Jimi...
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| « Last Edit: Jun 13th, 2003, 12:00pm by Jackie » |
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Elaine
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Maybe the midia has already been here and read the board, could be why we are not getting anywhere.
If you was a talk show host and open this message board what would you think? I would think we were all nuts! internet groupies!!!!
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Margi
CH.com Alumnus
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Nuthin like a good neck rub!
Gender:
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Re: New Vistors Page
« Reply #12 on: Jun 13th, 2003, 3:57pm » |
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OK, Curtis you freaked me out with your post!! Made me figure I screwed up the usage of the word. I stumped YOU??
But..nope, I used it right. It means 'ya done good, kid'.
"Yeoman: performed diligently: characterized by loyalty, diligence, and reliability performed yeoman service in completing the task on time"
so, there ya go. Too cool. I got one over on Dr. Thought. Life is good.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
Gender:
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Re: New Vistors Page
« Reply #13 on: Jun 13th, 2003, 4:18pm » |
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on Jun 13th, 2003, 11:41am, Elaine wrote:
Most everything on OUCH doctors already know. |
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Maybe the first time I have ever disagreed with you E. If this were true things would be different. Mis-diagnosis is becoming more rare because this MB and OUCH is educating Clusterheads AND doctors. There are still a bunch of horror storys about continued mis-diagnosis for long periods of time.
on Jun 13th, 2003, 11:41am, Elaine wrote:
For people who are getting hit and in cycle that just find us, we all know finding people is more important than any information we can get. (AMEN!) Most all of us were told clusters are rare, and not many of us ever talked to another who had this pain. My biggest problem with dealing with clusters before I found this site was thinking I was nuts, and that the doctors were missing something. It eased my mind finding this place and made it much easier to deal.
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It made me cry like a baby to find you all....someone else actually knows what I go through.....and I can be educated about my disease...what a bargain! The rest of the crap is just that...crap...I leave it alone...usually. 
Good topic.
PFDAN's
Mark
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Callico
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Proud Dad of a US Marine!
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Re: New Vistors Page
« Reply #14 on: Jun 13th, 2003, 10:40pm » |
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Great post Don. Was away yesterday and almost missed it.
I don't think the media people would be put off by what they would find if they actually deigned to look here. This board is obviously personal communication on a public scale. This part of CH.com is not intended for to be taken seriously by anyone other than those of us who are here and need it. Personally I find it to be a haven at night while fighting this thing.
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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don
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Quote:| "Yeoman: performed diligently: characterized by loyalty, diligence, and reliability performed yeoman service in completing the task on time" |
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Thats funny. Up here in Boston Yoeman is ussually followed by "got a smoke or some spare change"?
Hound your only 1/2 right. St Fudds breath is so bad even the fleas wont get near him.
Curtis: Just be happy she didn't call you Seaman. No tellin where this post could have gone.
Media/Profesionals; fuck fuck fuck fuck fuck fuck fuck fuck
(Thanks DJ, I needed that)
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| « Last Edit: Jun 14th, 2003, 10:17am by don » |
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Elaine
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LOL Mark, I can see you have not read all my post if this is the only one you disgree with !
I should have worded that a little better. We use to have a Doc Greg that posted on here. He has been missed. I am not sure if he still reads the board or not. I know he moved.
It would be nice to have a Doctor posting again. Then again I bet he couldn't stand it cause we would all email him for sure LOL!
Disagreeing with me is cool...I don't learn a lot from people who always agree with me. I learn more from people who disagree. I am always willing to learn.
hugs your way!
E
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don
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Quote:| [quote][Disagreeing with me is cool.../quote] |
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I disagree. I'm cool!
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| « Last Edit: Jun 14th, 2003, 12:31pm by don » |
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