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Topic: :-[ :-[ :-[ :-[Im at the end of my rope! (Read 833 times) |
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KSM
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:-[ :-[ :-[ :-[Im at the end of my rope!
« on: Jun 6th, 2003, 2:28pm » |
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My head telling me he wants another IMITREX shot! im just about to give this mother fucker a shot he will never for get a killer gun shot!! I'm so sick of this shit fucking with my life IVE HAD IT!!!!!!!    [flash=200,200]URL[/flash][color=Red][/color]
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CH have f**ked with our life's for yrs when will the pain stop!!!!!
CH Is this what people call a brain fart??
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TomM
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #1 on: Jun 6th, 2003, 2:40pm » |
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Mccarke,
Relax...say this out loud "I will surive. This will end." You must not give in.
The HA, the cycle, and the pain always ends and we always survive.
Be tough and do not let the best win! ;D
TomM
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JDH
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #2 on: Jun 6th, 2003, 2:57pm » |
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Mccarke,
Just keep telling yourself IT WILL END!
Around here suicide is NOT and option so get your mind set on beating this instead of giving in to it.
good luck & pfdan's to you,
Jim
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Opus
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #3 on: Jun 6th, 2003, 3:13pm » |
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Mccarke,
I can't seem to get the right plugin to view your file so you will have to let me know what it is. Most of us have been where you are now. Do you have a supporter. If so this site can help them too. Are you running out of Imitex? If so then check the imitex tip to the left. If you are having problems with the meds you can try many no-med treatments. I aways sleep in an incline or recliner when in a cycle. this seems to help stop most of the wake up CH's. Here is a link with lots of treatments you can try.
http://www.clusterheadaches.org/resources/non_script_treat.htm
Hope you have PFDAN very soon.
Opus/Paul
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Zed-Zed-nine plural-Zed alpha,
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Margi
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #4 on: Jun 6th, 2003, 3:25pm » |
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Hi Kevin,
Boy, I've sure heard THAT before....good news though - we have an endless supply of rope here, ok?
I'm so sorry to hear that you're getting hit so hard - you sound like maybe you're at the peak of your cycle? Sleep deprived? Getting hit a million times a day? Yep - we've been there in my house. My hubby gets to the point you're at right now with each and every cycle.
There ARE some things you can try to help you through to see the light at the end of your tunnel. Dramamine before bed will help you get to sleep and STAY asleep. Ice on the back of your neck at the onset of an attack - keeps you calm, dulls the pain a LITTLE (frozen peas/corn works just as well in a pinch). Strenuous exercise at onset of attack can oxygenate you enough to abort an attack. (Better yet, get yourself a prescription for oxygen.)
Now....if you are indeed feeling serious about suicide - call 911, Kevin! Cluster headaches are not fatal unless you allow them to be. Don't let the Beast win! At the VERY least, call your neuro and tell him how you're feeling. DEMAND that he do something for you - be it an oxygen prescription, verap/lithium combo, prednisone burst.
And, finally - know that you're not alone with this. There is someone hanging around here 24/7 (because of all the time zones we come from). Always someone here who knows your pain and wants to help you get through it.
Keep us posted, Kevin - stay with us, please?
Hugs
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cbolony
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #5 on: Jun 6th, 2003, 3:26pm » |
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Mccarke hang in there we all go threw this shit.just keeping on venting we will listen.I get 3+ cycles a year
3-5 CH aday each cycles lasting 8-10 weeks.Want to kill myself each cycle but i'm still here the beast will never win.Please let us know what kind of meds you are taking.
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TomM
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #6 on: Jun 6th, 2003, 3:28pm » |
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Read what Margi wrote.
It's the best dam advice you'll ever get!
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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ZAIRA
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #7 on: Jun 6th, 2003, 3:41pm » |
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Kevin, I’m afraid to read you’re bad... I always think to the reason of this BIG pain...  Try to be strong and never be demoralized... you are brave and in a BIG family, here for helping you.
Stay with us,
Zaira
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Love yourself, Love others, Love often, Forever!
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jonny
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #8 on: Jun 6th, 2003, 3:41pm » |
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on Jun 6th, 2003, 11:37am, Mccarke wrote: ??? I have suffered from Clusters since 14 years old im 40 now. I have tried every drug they have for clusters and the Sansert worked great, didnt stop a cluster but is shorten the cycle from 2 or 3 months to about 2 weeks and i would be pain free for about a year. Now the drug company that made Sansert stop making it due to lack of sales. Now im stuff trying to find other ways to get thur this cycle of HELL. I just wanted to post this let y'all know that Sancert is NO MORE crying here....
Kevin |
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ya know, Kev
I could have wrote that the only difference between you and I is that im chronic and the med they discontinued on me was Indomethacin supps. I to got CH at 14 and am now 40 and finally found an abortive that worked and the fucking bastards stopped making it, FUCKERS!!!!!
Dude, I just kept pushing on till I found something else that worked. Did I mention that I had no meds the first 14 years?.....All the non-med tricks these people are telling you about is how I survived those years.
If I can do that as chronic you can do it better episodic.
....................................jonny
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kissmyglass
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #9 on: Jun 6th, 2003, 5:30pm » |
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Kev,
Be glad you are eposodic..your cycle will end.
If you're at the end of your rope,tie a knot & hang in there...
Kev
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"It does so fucking look like her" - Picasso
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don
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #10 on: Jun 6th, 2003, 7:11pm » |
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Been there, said that, didn't do it.
Hit the beast with another shot of imitrex. Stick your face in front of an air conditioner and blast it.
How long are your attacks. Look at the clock at the onset and set the end time as a goal to reach. If it goes past normal attack time, keep adding on 5 more minutes until it's gone. It will be gone bud. It will be gone.
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Mark C
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #11 on: Jun 6th, 2003, 7:42pm » |
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FIGHT FIGHT FIGHT
NEVER QUIT..NEVER LET THE BEAST WIN !
FIGHT FIGHT FIGHT
.........and welcome!
Mark
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Peppermint
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #13 on: Jun 6th, 2003, 8:40pm » |
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Kevin,
Are you still out there? Scroll up to the upper right hand side of your screen. Look at the top - see that Hey McCarke thing? click on it. Read. check your email.
Please tell us how you're doing now. Its been HOURS..... ??? Lots of good advice here.
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You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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suzy617
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #14 on: Jun 6th, 2003, 8:47pm » |
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Kevin,
Hang in there for yourself and for all who love you. This pain WILL pass and better days are coming for sure.
Dont ever let the beast win, never!
suzy
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When God measures men, He puts the tape around the heart, not the head.
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Mikey
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #15 on: Jun 6th, 2003, 9:19pm » |
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Kevin, Just keep saying to yourself "this will NOT kill me", and it won't unless YOU let it. I'm chronic Kevin, and haven't ever had a pain free day untill just recently.
With some help from some of the very best people in the world here, i actually got 3 pain free days last week.
So what i'm saying is, Don't let the beast get you man, kick his ass and find that something that works for you. You sound a lot like me, i've been at that point several times, i've actually had the gun at my temple ready to squeeze the trigger, but i would always wait for a minuet more, and guess what, the pain would always subside, then go completely away!
Kevin, believe me when i tell you, WE CARE FOR AND ABOUT YOU, AND WE KNOW WHAT YOU ARE GOING THROUGH. So please, let us know how you are right now, and give us more info about you. You would be surprised what we can do for you!!!!
Brothers in pain,
Mikey,
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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dellp
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #16 on: Jun 6th, 2003, 9:26pm » |
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Hang tough Mccarke.
Sounds like you were on the Sancert for at least a few years - LOTS has been going on in that time . New findings, new combos and lots of new ideas.
This is when we could use your help, too. All you have to do is deal with it and get through it. Whethere you find frozen carrots work better than frozen brocoli or find a neuro with a novel approach  , we would like to know - we need to know.
At the very least we need to know that we are stronger than the beast. It WILL End.
I'm just down the road in San Antonio. MY cell is 210-710-2838 and it is on for you 24/7. Call me.
Check your email.
Dell
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ShariRae
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #17 on: Jun 6th, 2003, 9:28pm » |
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You can get through this...use every tip you find here to help you...we will help you...you are stronger than the pain..never give up..never give in..
Huggs
Shari
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cootie
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #18 on: Jun 6th, 2003, 10:50pm » |
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Hey bud.......how ya doin...hangin in there ok ? DON'T let that beast win........don't let him get anuther notch in his belt. Fight for your life.......your worth it !!! Fight no flight Pam
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Charlie
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #19 on: Jun 6th, 2003, 11:12pm » |
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Welcome.
Yeah. I thought about it....for 5 seconds. Since I found out what it is, rather than some tumor or other debilitating horror, it never again crossed my mind. Too much fun stuff around to check out.
Stick around and let us know how you're doing.
Charlie
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Charlie
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #20 on: Jun 6th, 2003, 11:14pm » |
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Give this little technique a try. It worked great for me and some others.
Dr. Wright's Circulatory Technique
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.
I wish you the best of luck - Charlie Strand
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There is nothing more satisfying than being shot at without result---Winston Churchill
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gene
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #21 on: Jun 7th, 2003, 12:40am » |
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me too buddy!! every cycle every attack it crosses my mind but mostly when their coming close together!! Fight a bad one off/ Feel so relieved and then a half hour later here comes another. I think shit how can I keep fighting this?
A supporter said to me if u are dead you wont feel the relief? I know pretty weak but for some reason has stuck w me.
You're going to make it and so am I.
Gene
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BillyJ.
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #22 on: Jun 7th, 2003, 1:27am » |
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I don't know what your beliefs are but a very wise man
once said "Suicide does NOT stop the pain it just keeps
us from dancing"that was enough to make me put the gun down,and keep looking for other ways to cope.
HOLD ON it will end
wishing you pain free soon!
BillyJ
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arby
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #23 on: Jun 7th, 2003, 1:37am » |
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Hey Mccarke,
Hang in there Buddy - it WILL end.
Remember, there are two ends to a rope - just pull yourself up to the other end. That's where the rest of us (your family) hang out.
Ross
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If the meds don't kill me the CH doesn't stand a chance!
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cbolony
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Re: :-[ :-[ :-[ :-[Im at the end of my rope!
« Reply #24 on: Jun 7th, 2003, 6:33am » |
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Mccarke what better support do you want that the people her care about you.Hang in there and keep posting we are here to help you.
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