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PINKY BABY
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ATTITUDE IS EVERYTHING
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NEW TO BOARD
« on: Jun 5th, 2003, 11:22pm » |
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[color=Pink][/color] 
hello to all. i am new, and just wanted to talk. i am up right now. the rest of my family is in bed asleep. i wish i was. he has left his calling card. anyway, just wanted to talk with someone that might undrstand.  do any one of you ever have your teeth hurt on the side of your head with the pain?
thanks pinky
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NEVER GIVE UP. LIFE IS WORTH IT.
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gene
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I love YaBB 1G - SP1!
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Re: NEW TO BOARD
« Reply #1 on: Jun 5th, 2003, 11:58pm » |
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Hey Pinky,
Yeh sometimes teeth hurt too. I think they call it sympathetic pain.
Anyway i'm new to the site also.
I am episodic, every yr or two for about 6/8 wks// 4-8 chs per day. Whats your story?
Gene
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Jeff_W
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Pinky- Every tooth upper jaw cluster side,feels like a toothache. Lots of pressure, teeth nerves seem to wrap around eye!
Hope you are PF soon! _ Jeff
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Charlie
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Re: NEW TO BOARD
« Reply #3 on: Jun 6th, 2003, 2:24am » |
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Welcome Pinky. You are among others who know exactly what you're going through. I can't say my teeth have ever hurt from CH but I know others here have said so. The beast isn't particular.
Stick around; you'll likely find good ideas in coping with this horror. Here is one I used very successfully:
Dr. Wright's Circulatory Technique
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.
I wish you the best of luck - Charlie Strand
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cathy
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Re: NEW TO BOARD
« Reply #4 on: Jun 6th, 2003, 3:52am » |
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Hi Pinky.....sorry you've had to seek us out, but welcome to the board...my husband is a sufferer and yes his teeth sometimes hurt. Hope things improve for you soon....in the meantime sending you good vibes to help you through.
Cathy 
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echo
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Re: NEW TO BOARD
« Reply #5 on: Jun 6th, 2003, 6:49am » |
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Hello Pinky. Can't say the teeth thing is something that bothers me personally. Guess in that regard I should concider myself lucky. Sorry that the beast has found yet another victim. Gald you were able to find us. Sorry you needed to search us out.
Hang in there.
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dellp
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Re: NEW TO BOARD
« Reply #6 on: Jun 6th, 2003, 7:06am » |
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Hi Pinky,
Generally over my last 25 years episodic with the beast, my teeth have not been involved.
For most of that time I have been wearing a night gaurd because I grind my teeth at night. a few months ago a chronic low grade tooth problem has upgraded causing some trouble before this episode hit; now that tooth is a MAJOR focus when HE comes around. Haven't been able to wear the gaurd for the past month.
While there are common features, clusters don't seem to have any norms at all.
Glad you found us, welcome aboard, and wishing you PFDAN,
Dell
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ave
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Re: NEW TO BOARD
« Reply #7 on: Jun 6th, 2003, 8:31am » |
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My teeth ache every time. All of them, even the ones without a nerve, where I had root canal! Like phantom pain in an amputated arm, I sometimes think.
Painfree days, pinkster
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don
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There is a good graphic around here somewhere that provides a good visualization and explanation as to why your teeth may hurt with CH.
Archives? Ouch site? Its somewhere. Somebody will find it.
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CJohnson
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Re: NEW TO BOARD
« Reply #9 on: Jun 6th, 2003, 9:02am » |
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The trigeminal nerve, which is active in a CH attack, has three branches, the opthalmic branch, which is in the area aroung the eye, the maxillary branch, which is in the area of the cheek, and the mandibular branch which is in the area of the jaw and teeth. The OUCH website has a picture (artist rendering) of the trigeminal nerve.
Don't make the mistake of doing anything to your teeth, because it will not help with the CH pain.
Dramamine might help you sleep at night, by keeping you out of REM sleep. Also one of the long lasting triptans (Amerge) might get you through the night because it remains pharmacologically active long enough to keep the CH at bay for a few hours.
PFDANs
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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stevegeebe
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Re: NEW TO BOARD
« Reply #10 on: Jun 6th, 2003, 11:54am » |
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Hurts right down to the enamel.
Welcome Pinky.
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oringkid
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Yep, uppers and sometimes lowers as well.
Welcome Pinky!
Sherry
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ZAIRA
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Re: NEW TO BOARD
« Reply #12 on: Jun 6th, 2003, 1:05pm » |
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on Jun 5th, 2003, 11:22pm, PINKY BABY wrote:[color=Pink][/color]
do any one of you ever have your teeth hurt on the side of your head with the pain?
thanks pinky |
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NO, only the eye and front are...
by the way.... WELCOME PINKY!!!
Stay with us,
Zaira
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| « Last Edit: Jun 6th, 2003, 1:06pm by ZAIRA » |
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nancyann
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Re: NEW TO BOARD
« Reply #13 on: Jun 6th, 2003, 1:30pm » |
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Yes, Teeth hurt. Lots of times too, my left side of my face hurts too much for me to even touch it. Best wishes to you.
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Opus
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Re: NEW TO BOARD
« Reply #14 on: Jun 6th, 2003, 3:23pm » |
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Pinky,
I have a rotation of ear, teeth, jaw pain that changes with each CH. Some have had their teeth pulled becouse it was the cure at the time. anyway....
Opus/Paul
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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PINKY BABY
New Board Newbie
ATTITUDE IS EVERYTHING
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Re: NEW TO BOARD
« Reply #15 on: Jun 6th, 2003, 5:27pm » |
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thank you for the information. i will be hanging around here for a while. thanks pinky 
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NEVER GIVE UP. LIFE IS WORTH IT.
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Cerberus
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Re: NEW TO BOARD
« Reply #16 on: Jun 6th, 2003, 6:23pm » |
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Welcome and condolances to having found us here. Glad that you found the best place on earth for clusterheads, sad that you actually have to suffer the hell we all know so well.
Can't personally say for sure the teeth thing is a factor for me, reckon its always a problem fer me, I gotta get some new teef. ;D
anyhow, stick around a while, give us a bit of background info about ya, providing ,of course, that I haven't already missed that part.
Ramon
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cootie
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Re: NEW TO BOARD
« Reply #17 on: Jun 6th, 2003, 11:02pm » |
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Hello PINKY BABY...cute name......this is a good place to be !! Late nite baby Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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PINKY BABY
New Board Newbie
ATTITUDE IS EVERYTHING
Posts: 20
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Re: NEW TO BOARD
« Reply #19 on: Jun 7th, 2003, 9:09pm » |
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thank you bob g. i looked at the web link, and it helped.
pinky
[s thanks to all for you warm welcome
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NEVER GIVE UP. LIFE IS WORTH IT.
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katethecelt
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Re: NEW TO BOARD
« Reply #20 on: Jun 8th, 2003, 6:05am » |
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Welcome Pinky.
I regularly get pain in my teeth. I hope you keep reading, researching, and send the Beast on its way.
There's a letter to family, friends, co-workers that explains Ch very & you should be able to find a link to it on one of the more recent pages.
Remember you are not alone and we do understand!
Wishing you PFDAN's,
Kate
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Jackie
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Go For It!!!
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Re: NEW TO BOARD
« Reply #21 on: Jun 8th, 2003, 9:21am » |
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Pinky Baby,
I asked Blake if his teeth hurt during CH...he said yes but the head hurts so bad the teeth become secondary. Sorry you're getting hit...hang in there and good luck....
Kate...you might be a newbie/junior but you're doing a good job, kiddo....
Jacks 
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Live4Fun
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One day at a time, we WILL make it through.
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Re: NEW TO BOARD
« Reply #22 on: Jun 8th, 2003, 11:21am » |
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No tooth pain for me, THANK GOD, although I am sure my right eye would LOVE to share the pain with parts of the rest of my body (sure would be nice if the demon moved around a bit).
But, anywho, welcome to the family! Glad you found us, sorry you had to...
Bryan
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"If you hear a different drummer, dreamer take a chance... The road you choose to follow means the difference in the dance." (D. Morgan) -- Bryan
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jonny
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on Jun 8th, 2003, 11:21am, Live4Fun wrote:
LMAO.........Teef?.....what are those....LOL ;D
............................jonny
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BruceD
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Re: NEW TO BOARD
« Reply #24 on: Jun 8th, 2003, 1:09pm » |
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No tooth pain here. Although I guess it may feel like one of the roots on my teeth suddenly grew 3 or 4 inches and smashed into my right eye. -- For me it's all the eye ... the eye 
Take care
BruceD
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