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Topic: What triggers yours? (Read 911 times) |
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^Mark
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Edvard Munch's "The Scream". Did he see the Beast?
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What triggers yours?
« on: May 26th, 2003, 5:08pm » |
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Probably asked more time then you all care to remember, but I'm wondering, what kind of things you all avoid to do during a cycle of attacks?
Or more simply put, what triggers yours?
Here's my list:
- Alcohol (20 minute delay)
- Hot baths, sauna's, steamrooms, etc
- Cold wind blowing in my face
- Flying or any other serious altitude change
- Afternoon naps
I know some people need to avoid certain kinds of food because that triggers theirs. That does not seem to be a problem for me.
Is there a list of "things to avoid" ?
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catlind
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Re: What triggers yours?
« Reply #1 on: May 26th, 2003, 5:11pm » |
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So far for me there are only 3 things that I find are a sure fire way to bring on a CH when in cycle:
alcohol
vicks inhaler (thought I could clear the nasal congestion)
treadmill exercise
Cat
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If yer gonna be stupid, ya gotta be tough
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jonny
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people asking me what triggers mine.
............................jonny
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brain_cramps
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Re: What triggers yours?
« Reply #3 on: May 26th, 2003, 5:17pm » |
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on May 26th, 2003, 5:08pm, ^Mark wrote:| Is there a list of "things to avoid" ? |
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Triggers seem to vary from person to person.
For example, you mention alcohol, and afternoon naps. Both of these are triggers for me, whereas "cold wind blowing in my face" seems to help abort mine.
In addtition, smoking seems to trigger them for me, but others aren't affected by cigarettes at all.
You'll get a lot of suggestions, but you basically have to determine the "do's and don'ts" for yourself.
I know thats not a lot of help, but I'm sure you'll get more suggestions.
good luck,
grant 
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^Mark
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Edvard Munch's "The Scream". Did he see the Beast?
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Re: What triggers yours?
« Reply #4 on: May 26th, 2003, 5:40pm » |
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on May 26th, 2003, 5:15pm, jonny wrote:people asking me what triggers mine.
............................jonny |
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well then, excuse me for bringing one on, Jon
Excuse me for my frustration in not being able to find more information on the subject then the stuff I found 8 years ago. I know what they are, they hurt. I know what I must do, take the shot. I know people don't like to be reminded of them, I don't either. But the fact remains, we have them, otherwise we wouldn't be here. Maybe there are other things that I need to be aware of regarding this great affliction of ours that someone may have been able to work out.
More then bloody likely you share my frustration in that they haven't been able to figure out what causes these things. Because if they knew that, a cure would likely be on the way.
Don't get me wrong Jon, I get your humor; I share it. I have a feeling we'd get on like a house of fire. We'll go out on the town somewhere's, or a stripjoint or something, and not talk about clusters. But if I can't ask this question here, where can I?
I just .. need .. to know .. more
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jonny
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Ok dude, im just giving you a hard time.
Seriously....I have no triggers that I can pin point. I think I would notice one in 28 years but I cant.
.........................................jonny
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^Mark
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Edvard Munch's "The Scream". Did he see the Beast?
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Re: What triggers yours?
« Reply #6 on: May 26th, 2003, 6:00pm » |
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Fair enough, no offense was taken .. It's just that I was elated to have been PF for over 50 hours. Until an hour ago. That one shook me up bad. Double frustration talking..
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jonny
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LOL....Your right, this has been asked a million times.
Maybe I can help.
Ok folks, we got a new dude with an old question lets give him some answers.
Whats your trigger?
If not me do it for the children......LOL
............................jonny
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^Mark
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Edvard Munch's "The Scream". Did he see the Beast?
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Re: What triggers yours?
« Reply #8 on: May 26th, 2003, 6:16pm » |
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LOL
you .. you .. you, wanker, you ... 
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jonny
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on May 26th, 2003, 6:16pm, ^Mark wrote:LOL
you .. you .. you, wanker, you ... ;D |
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Dont worry, Bro.
People will answer, they always answer the sick one ;D
.......................................jonny
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eyes_afire
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Re: What triggers yours?
« Reply #10 on: May 26th, 2003, 6:22pm » |
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Hi Mark. My list:
1. Alcohol
2. Sleep.
I also suspect that brisk cardiovascular exercise may bring on a CH because when I used to bike I would get a CH exactly 2 hours later.
It's very hard to determine CH 'triggers'. Personally I don't like the term because people then usually say: "well, just avoid the triggers and you won't get cluster headaches"  . When I'm getting CH everyday in cycle it becomes very hard to determine a 'trigger' from a coincidence and when I'm not in cycle those 'triggers' aren't 'triggers'.
All I know is my odds of getting a CH are greatly increased when I partake in alcohol or sleep.
I believe the generally accepted list of things to avoid for CH are:
1. Alcohol
2. Nitroglycerin
(Apparently avoiding sleep is not recommended  )Beyond that I don't think there is anything else that is generally accepted to be a CH 'trigger'.
--- Steve, one of many...
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Jabeen
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Re: What triggers yours?
« Reply #11 on: May 26th, 2003, 6:44pm » |
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I can not identify any trigger for myself. I can drink several days and nothing happens-so if I get a CH after drinks-I can't really say it was the trigger. The only constant for me is sleep and opening my eyes too fast (???). I just hope they can find out more in my lifetime...this is the strangest affliction and there are no answers.
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don
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Re: What triggers yours?
« Reply #12 on: May 26th, 2003, 8:04pm » |
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Food.........
guaranteed hit 20 minutes after lunch or dinner.
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Miklos
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Re: What triggers yours?
« Reply #13 on: May 26th, 2003, 8:08pm » |
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Food...
Pay more for your meals.
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Don't be offended by my frank analysis. Think of it as personality dialysis.
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don
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Re: What triggers yours?
« Reply #14 on: May 26th, 2003, 8:18pm » |
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what?????
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OneEyeBlind
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Yea, I can do this
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Re: What triggers yours?
« Reply #15 on: May 26th, 2003, 8:31pm » |
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The one and only trigger for me is relaxing. Whether it be with a good book, or sleeping. Wham Bam thank you for the Slam.
Hey Don, just curious, if you get them after eating do you think it could be because eating makes ya sleepy and relaxed ?
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kim
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Re: What triggers yours?
« Reply #16 on: May 26th, 2003, 8:32pm » |
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Triggers:
Food
Alcohol
Any sort of relaxation whatsoever...
Here are some coping methods:
Pretend your not hungry;
Drink coffee like a friggin lunatic;
chain smoke;
sit up in a chair with tv on but sound off for weeks on end;
You'll be fine. Don't worry ;D
LOL! I've been doin it for decades an look how I turned out 
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| « Last Edit: May 26th, 2003, 8:34pm by kim » |
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BobG
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Re: What triggers yours?
« Reply #17 on: May 26th, 2003, 9:09pm » |
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Since I have no life except this friggin' job and I like to screw the company out of 8 hours pay I did a little list making of triggers.
These are all copied and pasted from the archives.
relaxing after being stressed
nitroglycerine tabs
sitting behind a woman who wore way too much perfume
Alcohol
paint fumes
citrus juices and products
smell of Clorox
the detergent section in the grocery store
good whiff of a citronella torch or candle
Fumes
changes in temperature (like being in the refrigerated aisle of the grocery store)
sun on my face
Computer screens
nutrasweet
body odor
chocolate
caffiene
chinese food MSG
cold wind in the face
Milk amd milk products, i.e.: cheese
During vigorous sex sessions at peak of episode
barometric pressure changes
walking into the dry air inside from running the heat and back out into the moist cool air
Driving on tree lined roads that cause the sunlight to be broken in patterns
drinking plenty of alcohol or smoking like a chimeny
a pattern of sleep loss
prolonged periods of high adrenal stress
a very bad weather system
Peanuts (the roasted kind usually)
Red wine
Nitrates
in hot dogs
WD40
4-6 8oz cups of coffee a day
odor of raw onions
trialkylamines
Sleep
Frozen Food department
repetitve motion of the shoulder
taking a nap in the afternoon
REM sleep
Take-Offs on commercial airlines
PepsiMax
TV
watching a movie in a movie theater
ginko biloba
alka seltzer plus
over exertion in heat
nasty flu virus
And the winner is “Wierd as it may sound, Jello will do it every time”
My personal trigger………lack of stress.
Bob no-life G 
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| « Last Edit: May 26th, 2003, 9:42pm by BobG » |
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Stay stressed. Never relax. Never sleep. Ever.
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don
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Re: What triggers yours?
« Reply #18 on: May 26th, 2003, 9:11pm » |
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I dont know. When I eat I almost immediately start to feel that body sick feeling then 20 minutes later BLAM!
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kim
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Re: What triggers yours?
« Reply #19 on: May 26th, 2003, 9:33pm » |
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Me too.
Jenny Craig Cluster Poster Girl
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rumplestiltskin
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Bob G....bubble boy!
Triggers? For me...Nothing now that Verapamil has me PF.
But used to be....relaxation and naps....but I'm hesitant to call them "triggers"...they could be more of a "when" than "what".
I've always strongly suggested an in depth journal to the serious researcher. ...uh... unless of course "journaling" is a trigger....then have one of the servants do it for you.
Feel free to search the archives....since there are such wide variations...I think a study grouping similar folks would be interesting and help one wile away the days.
Hi Ho Trigger....and Away!
Love
den
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BobG
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Re: What triggers yours?
« Reply #21 on: May 26th, 2003, 9:39pm » |
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Den.........Bubble Boy? those are not my triggers. The list was from the archives, cut and pasted.
Bubble Boy is the name given to Nick D a long, long time ago. You remember him? The fertilizer guy.
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| « Last Edit: May 26th, 2003, 9:40pm by BobG » |
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Stay stressed. Never relax. Never sleep. Ever.
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oringkid
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Re: What triggers yours?
« Reply #22 on: May 26th, 2003, 9:49pm » |
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Definite triggers for me:
Alcohol
Raw onion fumes
Mothballs
Sherry
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DaveHar
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Re: What triggers yours?
« Reply #23 on: May 26th, 2003, 9:57pm » |
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Triggers, well I don't know if I can add anything new but here is my list. Short and sweet.
Smoking and or cig smoke....boy I need to quit
beer....done quit that...only drink mixed drinks or straight burbon
heat and very bright light
migraines
heavy stress
high humidty
and I am starting to think the verap is a trigger. I was doing good with only a hit here and there untill I started taking the verap again. Now I am shadowing like crazy and getting hit just about every other day once or twice a day. Go figure.
Dave
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Callico
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Re: What triggers yours?
« Reply #24 on: May 26th, 2003, 10:17pm » |
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I agree with someone who posted earlier that trigger is probably not a good term, cause I gethit the same time every day, but there are a few things that will give me a bonus go-round:
Spray paint, esp. primer/sealers
Some perfumes/colognes
ham/bacon
some scented candles (Very bad! They will drop me to my knees in the middle of a store)
Nutrasweet (aspartame)
relaxing following work or stress
Keep track of anything that seems to bring on extras for you or make any more intense and then avoid it. It won't eliminate clusters, but it will cut down on the odd one or the severity of others.
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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