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Topic: Prednisone (Read 618 times) |
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fubar
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Prednisone
« on: May 25th, 2003, 12:36am » |
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I am on day 3 of my first Prednisone taper. The schedule for taking this is agressive, 10 days going from 60mg/day down to 5 (60,60,60,60,50,40,30,15,10,5,0).
I have to say, I'm amazed. I only had one painful shadow (hardly a real attack) today, and last night I slept a whole night. Oh my GOD I'm feeling the light at the end of the tunnel feeling, but I know it's likely they will come back as soon as I stop taper off. In any case, the sanity index is on the uptick.
If you haven't tried it and you can't get a break, this may be the trick. Seems to work for me so far.
-Fu
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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brain_cramps
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Re: Prednisone
« Reply #1 on: May 25th, 2003, 3:09am » |
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glad you're getting some relief Fu. you sure need it.
good luck,
grant 
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cbolony
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Re: Prednisone
« Reply #2 on: May 25th, 2003, 5:16am » |
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fubar glad to hear you are getting a break from the beast i hope it last forever 
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Donna
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Re: Prednisone
« Reply #3 on: May 25th, 2003, 6:23am » |
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furbar...so glad you found something that helps. That's the good news we all love to hear. Hopefully you have found what works for you.
My son has also found relief with Pred. Although it is a nasty drug, sometimes it is the only relief one can find.
Your dosage and duration looks about the same as his, and his cycle does end with that one treatment, thank God. He does not take it until he is into his cycle. He has 3 faulty heart valves and the doc is strict with what he takes.
He wasn't on any med until I found this site. He was once prescribed Inderal, but that didn't do anything.
Good Luck!!!
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Roxy
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Re: Prednisone
« Reply #4 on: May 25th, 2003, 7:11am » |
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fu.....glad you are catching a break and that the sanity index is up. A full nights sleep always makes the world a little more tolerable.
Hope this knocks it out for a long time,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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don
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I always use a pred. taper while in cycle. Sometimes 2 or 3 per cycle.
Get ll the rest you can and sleep sleep sleep.
Are you on a preventative? PLot a stategy now, the cycle tends to start up again at the low end of the taper.
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jonny
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Watch the hip joints Bro, that shit ate away at my hips to the point I couldnt walk.
Becareful
...........................................jonny
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Bob_Johnson
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Re: Prednisone
« Reply #7 on: May 25th, 2003, 7:58am » |
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Let me echo Don--hope you have a plan with you doc for the next preventive med to use when this run of pred is complete.
Given your hard struggle, I'd highly recommend that you buy:
"MANAGEMENT OF HEADACHE AND HEADACHE MEDICATIONS, 2nd ed. Lawrence D. Robbins, M.D.; pub. by Springer. $49 at Amazon.Com. This volume is better organized and easier to read for nonprofessionals compared to Saper's book. It covers all types of headache and is primarily focused on medications. While the two chapters on CH total 42-pages, the actual relevant material is longer because of multiple references to material in chapters on migraine, reflecting the overlap in drugs used to treat. I'd suggest reading the chapters on migraine for three reasons: he makes references to CH & medications which are not in the index; there are "clinical pearls" about how to approach the treatment of headache; and, you gain better perspective on the nature of headache, in general, and the complexities of treatment (which need to be considered when we create expectations about what is possible). Finally, women will appreciate & benefit from his running information on hormones/menstrual cycles as they affect headache. Chapter on headache following head trauma, also. Obviously, I'm impressed with Robbins' work (even if the book needs the touch of a good editor!) (Somewhat longer review/content statement at 3/22/00, "Good book...." ."
This is the best single book covering the complexity of treatment which I 've found.
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Bob Johnson
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oringkid
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I'm sooo glad the pred is working for you!
Sherry
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paul_b
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Re: Prednisone
« Reply #9 on: May 25th, 2003, 2:17pm » |
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Glad you are getting a breather. Hope the turn around stays around.
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ZAIRA
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Re: Prednisone
« Reply #10 on: May 25th, 2003, 2:36pm » |
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... Hey Fu, I am happy to hear that Pred works for you, and... I hope the beast will leave you definitely...
All the best for you,
Zaira 
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Love yourself, Love others, Love often, Forever!
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AlienSpaceBabe
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Glad the pred is working for you!
and Don's right... the headaches do come back as you taper down.
side effects differ between people:
Jonny's hip problems sound horrible!
I actually lost weight on the first 14 days of my taper... then gained it all back the last 7 days...
Some have mood swings... crave rare meat... others have few problems.
Good luck!
Lizzie aka ASB
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don
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I crave live meat. Well I guess thats with or without the pred. anyway.
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Mark C
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Re: Prednisone
« Reply #13 on: May 25th, 2003, 4:56pm » |
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;D
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Click The Flag
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brain_cramps
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Re: Prednisone
« Reply #14 on: May 25th, 2003, 5:40pm » |
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on May 25th, 2003, 4:16pm, don wrote:
Funny Don, I usually prefer to kill my deer, moose, elk, bunny-rabbits and gophers  before I eat them.
just me,
grant
P.S. forgot geese, ducks, and even ducklings
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| « Last Edit: May 25th, 2003, 5:41pm by brain_cramps » |
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Miklos
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Re: Prednisone
« Reply #15 on: May 25th, 2003, 7:30pm » |
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Fu, please see my -editorial- in the Blissful Sleep topic.
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Mikey
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Re: Prednisone
« Reply #16 on: May 25th, 2003, 8:16pm » |
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FU,
Glad to see ya gettin some relief dude! Hope that the beast never comes back!!!!!!!!!
PFDAN to ya
Mikey, 
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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catlind
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Re: Prednisone
« Reply #17 on: May 26th, 2003, 7:32pm » |
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on May 25th, 2003, 5:40pm, brain_cramps wrote:
Funny Don, I usually prefer to kill my bunny-rabbits before I eat them.
just me,
grant
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Kiss a bunny between the ears?
Did I really just say that? 
Cat
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OneEyeBlind
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Re: Prednisone
« Reply #18 on: May 26th, 2003, 8:35pm » |
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Glad to hear you are getting some relief FU !!!!!!!!!
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kim
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Re: Prednisone
« Reply #19 on: May 26th, 2003, 8:43pm » |
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Good luck with the prednisone taper. I have read lots of success stories regarding a REPRIEVE...............
Just make sure you follow the docs instructions and don't suddenly stop taking it. I did that and ended up literally not able to use my arms and legs. Scary. Plus my face blew up like a friggin ballon and I was very testy. 
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DaveHar
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Re: Prednisone
« Reply #20 on: May 26th, 2003, 10:15pm » |
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Quote:Funny Don, I usually prefer to kill my deer, moose, elk, bunny-rabbits and gophers before I eat them.
just me,
grant |
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Quote:Kiss a bunny between the ears?
Did I really just say that?
Cat
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A Leesa likes to say.....Here comes Peter Cottin Tail hopping down the bunny trail. LMMFAO
FU...I am very glad to hear that your getting PFDANs. Good luck and keep your head high.
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JDH
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Re: Prednisone
« Reply #21 on: May 26th, 2003, 10:23pm » |
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Fu,
glad to hear your getting relief with the Pred.
Enjoy your pf time but like the others have said, be careful.
pfdan's
Jim
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Callico
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Re: Prednisone
« Reply #22 on: May 26th, 2003, 10:31pm » |
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Great news! ;D It's always good to hear someone is getting relief!!!
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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stuey
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Thankful it's helping you. ANything that does it is good. It worked for me three years ago but not this go round I even went up to 90 from 60 and tapered. Don't know why. I just hope it's over for you and you go into remission.
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SommelierCH
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Re: Prednisone
« Reply #24 on: May 28th, 2003, 5:34am » |
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Fu,
Way cool, whatever works, you know. Just a small PF break during my cycles, away from that constant Kip 1-3 shadow (doesn’t happen often), made even the sky a marvelous thing. And, you got a whole nights sleep, what’s the value of that, on the Master Card scale of priceless?
You sound like a different person, you have your love of life back, and it sounds like you have hope. I still can’t say that you’re sane, because I just read on another post that ……..jonny is now our benchmark for sanity. Personally, I have no frigging idea if that makes it easier or harder for me to be considered sane.
Fight the good fight, bro,
David J.
P.S. Send me your dang address, so I can send your OUCH Healing Doll!!!!
P.P.S. jonny—just wondering about the bad hip thing you all are talking about; is there a vitamin/mineral supplement regime that could help to curb that, like calcium, iron or osso buco?
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