Author |
Topic: Am I wrong or the doctor (Read 236 times) |
|
Phillygoat
New Board Newbie
Gender: 
Posts: 3
|
 |
Am I wrong or the doctor
« on: May 22nd, 2003, 9:01pm » |
 Quote  Modify
|
So I just got back from the doctor today after I just walked in and said I could not wait three weeks like they had scheduled me for. So this doctor came in, I told him what was going on, and he looked me over. He said that it was a sinus problem because my throat was swollen and my ear was red on the same side. I told him it wasn’t sinus pressure because it hurt so badly. I told him I think it CH because of the pain and because they happen the same time each day and year. Then he told me CLUSTERHEADACHES ARE NOT CONSISTANT AND HAPPEN AT RANDOM TIMES OF THE DAY AND YEAR. Is this guy on something or am I? So he gave me antibiotics and nasal spray and said that a lot of people are getting this right now and although it may be these headaches to not think the worst. Then he left not giving me anything for my pain. What’s going on? No one seems to know what I really have and I’m still getting headaches.
|
| « Last Edit: May 22nd, 2003, 9:03pm by Phillygoat » |
 IP Logged |
|
|
|
don
Guest
|
 |
Re: Am I wrong or the doctor
« Reply #1 on: May 22nd, 2003, 10:04pm » |
Quote Modify
 Remove
|
Did you take the cluster quiz ? What was the result?
Never mind. just reread your post.
Quote:They could not tell me much but to take painkillers and that might be clusterheadachs. So I'm thinkin what the heck are clusterheadaches, but the doctor coulden't tell me anything about them. ( goes to show you how much they know.
Trust me, for a doc to even suggest CH means they are lightyears ahead of when i first strated seeing Docs. You need to get to a good neuro. Not all neuros are up on CH. Some are willing to learn some already know. If the neuro you get to doesn't fall in either one of these categories, drop him and seek out another.
The pain will not kill you in the interum. Use ice packs or heat. Try vigirous excercise. Unfortunately a newly diagnosed clusterhead needs to learn how to manage pain. It's unavoidable. Walk it off, try breathing in deeply in front of an air conditioner. Go to your nearest fire station and ask for O2. Go to the ER if neccesary, they are legally and ethically obligated to treat your pain.
------------------------------------------------------------------------ --------
That which doesn't kill us......will probably take another shot at it. Keep your eyes peeled.
|
|
IP Logged |
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
 
Gender: 
Posts: 3090
|
|
Re: Am I wrong or the doctor
« Reply #2 on: May 22nd, 2003, 10:37pm » |
Quote Modify
|
The dr. you saw is crazy. My ch are consistent and occur at the same time of day every day for the last 5 years. You need to find a different dr. I agree with what Don said try some of his ideas they really do work! You can live with this pain. It is time for you to get creative and find ways to deal with it when you are peaking. It won't kill you just make you a little crazy. Good luck!
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
katethecelt
New Board Veteran
Gender:
Posts: 158
|
|
Re: Am I wrong or the doctor
« Reply #3 on: May 22nd, 2003, 10:38pm » |
Quote Modify
|
I just read your first post. I'm very sorry you are suffering. The great advice will help you cope and become informed.
It's possible that you have a sinus infection along with the Cluster Headaches. That should not stop treatment your CH's.
Welcome to the MB.
Kate
|
|
IP Logged |
|
|
|
Callico
New Board Hall of Famer
Proud Dad of a US Marine!
Gender:
Posts: 1395
|
|
Re: Am I wrong or the doctor
« Reply #4 on: May 23rd, 2003, 12:11am » |
Quote Modify
|
Don is right! You have to experiment with different ways to deal with the pain until you can find an educated Dr. Print out any pertinent information from the buttons on the left and take them with you when you go see him (or her). In fairness to them, we are a rare breed, and most have not seen one of us, but that does not excuse their remaining ignorant.
One thing that I use to help deal with mine is from the LaMaze method of childbirth. I find something to focus on and keep my mind occupied while doing something with my hands. Sometimes I can come on here, or if it is getting bad I try to play a computer game that requires concentration with activity. If I don't get on it early though it doesn't work. The main thing is to find what works for you. Focus on something OUTSIDE of yourself and the pain you are in. Hang in there and remember this: THIS WILL END!!!
jc
|
|
IP Logged |
"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: Am I wrong or the doctor
« Reply #5 on: May 23rd, 2003, 4:17am » |
Quote Modify
|
If you've taken the CH quiz and have ascertained that you do have CH - FIND a NEW doc that has a clue!
In the meantime - go to the archives and look up what works for some of us to help with the pain until you can see a real doc.
I use Excedrin Extra Strength (or Excedrin Migrain -same ingredients) X 3 and a strong cup of black coffee. This works if I get to them quick enough. BUT if you do it too often - it can cause rebounds (damned if you do and damned if you don't). Anyhow it's worth a try for a quick fix. Exercise (banging your head, walking, sit-ups, etc).
Go to the OUCH site and find a recommended doc in your area. These are docs who actually know what a CH is and how to treat it.
I know it's disgusting, but we've all been there, so just hang in there till you find a doc who will work with you. But when you go to the next one go armed with literature. YOU have to do the research for them - they won't do it. Take it with you and "educate" the doc.
Good luck and lots of hugs. BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
suzy617
CH.com Alumnus
New Board Hall of Famer
Love is friendship set on fire
Gender:
Posts: 1902
|
|
Re: Am I wrong or the doctor
« Reply #6 on: May 23rd, 2003, 4:38am » |
Quote Modify
|
I agree with the others. Take the quiz and make an appt. with a different neuro if you are not satisfied. Unfortunately many of us went years misdiagnosed and being treated for sinus problems also. Some of us have to educate our drs. Print out all the info you can from here that you think will help.
I wish you luck,
Suzy
|
|
IP Logged |
When God measures men, He puts the tape around the heart, not the head.
|
|
|
Wendy1
New Board Veteran
Posts: 154
|
|
Re: Am I wrong or the doctor
« Reply #7 on: May 23rd, 2003, 6:26am » |
Quote Modify
|
GOSH!!! I HATE doctors who think they know what they are talking about when in reality, they don't know shit!! Why not just admit, that you don't know the signs and symptoms of C/H. "They happen all times of the day and all times of the year." Sounds like a very unsympathetic doc if he's grabbing at straws and not actually working with you.
Just by what you say, I personally would find another doctor before wasting any more time with him. For him it could be a witchhunt and your his guinie pig.
JMO..... Wendy
|
|
IP Logged |
|
|
|
Bob_Johnson
New Board Hall of Famer
Gender:
Posts: 1796
|
|
Re: Am I wrong or the doctor
« Reply #8 on: May 23rd, 2003, 6:47am » |
Quote Modify
|
For many folks Clusters do not come on a highly regular pattern.
It's really important to understand that any description of a medical condition is a kind of "ideal model". No description can account for all possible variations in symptoms, etc. One of the reasons that physicians may have a difficult time making an accurate diagnosis with a complex disorder is that the patient's symptoms don't fit into a neat, clear category.
Much of medical diagnostic effort goes into ruling out other possible conditions.
|
|
IP Logged |
Bob Johnson
|
|
|
cbolony
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
|
|
Re: Am I wrong or the doctor
« Reply #9 on: May 23rd, 2003, 7:25am » |
Quote Modify
|
Quote:| Unfortunately many of us went years misdiagnosed and being treated for sinus problems also. |
|
And i'am one of them 5+years.Five years of hell till
i came to this site and found out what i had.Read every thing here then went to a neuro.When i went to the neuro in ten mins. he told me i had CH. He gave me imitrex injections what a life saver they are.Stops the CH all the time.Don't wast your time with OTC drugs
they will not stop a CH.
Quote:The pain will not kill you in the interum. Use ice packs or heat. Try vigirous excercise. Unfortunately a newly diagnosed clusterhead needs to learn how to manage pain. It's unavoidable. Walk it off, try breathing in deeply in front of an air conditioner. Go to your nearest fire station and ask for O2. Go to the ER if neccesary, they are legally and ethically obligated to treat your pain.
|
|
Don is giving you good advice here
|
|
IP Logged |
|
|
|
CLR
New Board Junior
I love YaBB 1G - SP1!
Posts: 85
|
|
Re: Am I wrong or the doctor
« Reply #10 on: May 23rd, 2003, 9:36am » |
Quote Modify
|
Philly,
Print out the info on clusters and give it too your parents, you really need them to understand what clusters are and go from there.
I'm praying that you don't have clusters, but if thats the case you'll have lots of support.
Sending positive vibes your way!!!
Cindra
|
|
IP Logged |
Be glad of life because it gives you the chance to love and work and to play and to look up at the stars.
Cin
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss