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   Author  Topic: They're back!!1  (Read 265 times)
sfly
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They're back!!1
« on: May 21st, 2003, 9:19am »
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???after 5 years without a ch, they're back. not in full force but they are back. 3 last night, any clues as to this how this awful demon works? i go for botox injections nest wek, will let you know how it works.
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Re: They're back!!1
« Reply #1 on: May 21st, 2003, 12:17pm »
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 There are a few clues, however, the full mechanism remains unknown. Recent findings point to an enlarged hypothalymus being somehow involved in the mechanism. A study of CH sufferers using positron emission topography has shown activation in the hypothalamus solely in the pain state but not when they were out of the bout. Just about everything that is currently known can be gleaned from the archives of this site and in the OUCH website.
  Sorry to hear that you are back in cycle. Good luck with the Botox.
 
PFDANs
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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Re: They're back!!1
« Reply #2 on: May 21st, 2003, 12:59pm »
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sfly i would like to ask you a question.Did the neuro
ask you to try the Botox or did you ask for the Botox.
I hope the Botox makes you stay PF
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Re: They're back!!1
« Reply #3 on: May 21st, 2003, 1:41pm »
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Sfly....sorry your getting hit again, don't know much about the botox...hope it goes well for you.
 
Wishing you PF times.
 
Cathy  Smiley
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Re: They're back!!1
« Reply #4 on: May 21st, 2003, 2:19pm »
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Dang,  I thought my 1 year break was nice, hopefully they won't be as bad as mine get at times.  PFDs soon
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Re: They're back!!1
« Reply #5 on: May 21st, 2003, 5:14pm »
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Sfly, I’m sorry for the bad news and I'm sorry that the beast didn’t forget you... Cry
Try to be strong, you are brave and in a BIG family! Smiley
 
Good luck from Italy,
 
Zaira  Undecided Cry
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Re: They're back!!1
« Reply #6 on: May 21st, 2003, 6:02pm »
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I'm hoping I never have to post "they're back" !!!  Hope the botox does the trick for ya !!!!!!!!!!!!!!!!
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Re: They're back!!1
« Reply #7 on: May 21st, 2003, 10:17pm »
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I'm sorry the Beast is back.  
 
This is the first year I've had CH's.  I'm still learning, but printing out the medical info to read when I have PF times has worked well.  Read everything you can - all those buttons on the left.  Don't forget the OUCH site!
 
Check the past few pages for the Oxygen info web site.
 
Drink lots of water!    
 
Good luck with the Botox treatment.  
 
Wishing you PFDAN's
Kate
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Re: They're back!!1
« Reply #8 on: May 22nd, 2003, 12:12am »
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Welcome to the board sfly, sorry the beast found you again.  
Please read as much as possible here and over at the OUCH site, you'll be sick of learnin soon Smiley
Take care,
Mast
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Re: They're back!!1
« Reply #9 on: May 22nd, 2003, 4:56am »
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Sfly...Same thing happened to me,6 years free and almost forgotten and out of the blue they returned.I hope this cycle takes the same path as mine,only lasted 2 weeks.. not high Kips and gone.
Good luck  
Paul
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135447360 135447360   mondocharlie   mondocharlie
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Re: They're back!!1
« Reply #10 on: May 22nd, 2003, 3:10pm »
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Sorry they returned. Give your MDs a chance. I don't know anything about Botox other than I haven't seen much or any significant follow ups here. They seem to me to disappear. I hope it’s because it’s so successful.  
 
Good luck in any event and let us know.
 
Charlie
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Re: They're back!!1
« Reply #11 on: May 23rd, 2003, 11:09am »
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Welcome to the board!  Sorry that the beast is slowly feeding your cranium through a cross cut paper shredder.  Welcome to the family!  Good luck!
 
PFDAN.................................. Drk^Angel
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