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Topic: Who's (Read 841 times) |
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Donna
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your Hero in Clusterville? ???
We all have one (or more). Let's recognize them for
their good attributes.
Maybe we should make catagories, because I have
a bunch of Heros for different reasons.
I think I'll go make a list now.
Hope you all have a pain free day! 
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Margi
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Re: Who's
« Reply #1 on: May 21st, 2003, 9:09am » |
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Wow, Donna - that's a thinker.
Top of my list would have to be Elaine. she's like that damned Energizer Bunny. The traumas my twisted sister has survived with a smile never cease to amaze me. She just radiates goodness - Buddy's post the other day really captured her spirit. The woman goes dumpster diving to find unopened cans of food to feed the homeless!  (ooooh, she's gonna kill me for that one!)
Next would be Ted. Ted is chronic and gets hit real hard but...has he ever come here and mentioned that? It's like pulling teeth trying to get him to talk about his pain but you won't find a better friend who always has time to listen to you talk about yours. Ted is a rock.
Third, but first in a lot of ways is Jackie. My mind just can't wrap around what it means to be a supporter to a chronic sufferer. Jackie just takes it all in stride when Blake's cycles peak and he's getting hit a million times a day. Quiet strength and class personified, that's my friend Jackie. Her pain is always put on the back burner and she is always first on the scene with a hug or an encouragement for anyone who needs it.
Linda Howell is right up there too...as are Piper, Den, Georgia, Slammy, BobP, and YOU, Donna!
Last, but never least, are the real-life supporters - each and every one of them - they all give ME strength and courage to carry on. Firebrix, Cootie, Ree, Cathy, Deb Lovejoy, Bonnie Woods, Monique....the list is long - I learn so much from you all. Thank you for all that you do.
Oh yeah - some guy called DJ made my list, too. 
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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JDH
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Re: Who's
« Reply #2 on: May 21st, 2003, 11:08am » |
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After DJ I would have to say Mastiff & 'Bama.
They are the first people I met when I came on board and they kind of got me educated as far as what to ask & tell the Dr.
thanks for all of your input Mast & 'Bama, at the time it meant a lot!
Another hero in my book would have to be Woobie. She has organized the meeting of a few clusterheads this weekend in Chicago. It'll be my first time in 18 yrs of this crap that I've actually met another clusterhead in person so I'm really looking forward to this...stay tuned, updates to follow.
Thanks again Tina ;D
pfdan's
Jim
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| « Last Edit: May 21st, 2003, 11:29am by JDH » |
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ECH established 1985
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cootie
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Re: Who's
« Reply #3 on: May 21st, 2003, 11:52am » |
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Brad was just in Chicago on business for almost a week......I knew sum CH'rs lived out there but couldn't remember who at the time......he'd of loved to of gotten to meet them guys (Woobie and Cerebus).....dang it.....that'd of been KEWL ! He didn't have much goin on in the evenings either. Dang it girl Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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CJohnson
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Re: Who's
« Reply #4 on: May 21st, 2003, 1:51pm » |
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Ueli.
I picture Grissom from CSI when I read his posts.
PFDANs
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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TomM
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Re: Who's
« Reply #5 on: May 21st, 2003, 4:20pm » |
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Anyone who ever posted here and there's too many to mention 'cause I'd miss someone for sure.
Anyone who really knows me understands I'm NOT a suck up. This comes straight from the heart. 
TomM
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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jonny
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To me?.......its DJ!!
Without him we would still all be alone!!!!!!!!
................................jonny
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Elaine
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Outside of Buddy and my family!
I would say !
First is more than one person! DJ, Margi, Jackie, Jonny, and Bob P, and Jack B, Michelle
and Marc.
DJ not around a lot but he is always around when I need him. Always has time and a encourging word. I can't forget the day he sat be hind me rocked with me through a cluster. A hard thing for a cluster head to do. DJ always was stright with me and he kicked my butt a few times, I needed it, he is just a wonderful supporter.
Margi, she has been my supporter through every thing. Always there, she is a true friend. Even durning a misunderstanding she was here for me. She and I have been through a lot together. I include Mike in on this. Margi was with me on IM durning the day, when clusters had me so depressed. Mike he was here for me at night. Their humor and prayers and some hard pushing saw me through some really hard times. After three long years she and I meet just to find out we are both really twisted.
Jackie, she took me under her gun slinging wings and she just knows when I need her. She has always had good advice and she as Margi has laughted with me and cried with me. There were times she had to pull me up. That lady has sure kept the phone company from going under. Jackie even took me on a relaxing trip to her moms
Jack B someone who always made me feel like I was needed and that I was somebody.
Bob P someone who gave me hope, he gave me lots of work to do for OUCH to keep my mind off my troubles. A real slave driver, a real life saver !He gave me a hug in Atlanta he promised me
Jonny...Hard core...cusses like a sailor...tells it like he sees it...but you know what he has a heart of Gold. He calls me when I am down send a hug when I need it. He stands beside not in front or behind me. He is just special.
Marc a friend that always has time someone thats there no matter what.
Michelle, she works undercover and is always on IM for me at night. Always finds time to give that smile of hers to me.
I have many more that have always been here for me! I can't name them all as no one can cause there are just to many... Donna, Mia, Hub, Judy, Cathy, Pep, Edna. Ree, Cat, Roxy, Mike, Hub, Ken, Barbara, Jane, Jayne, Linda H. and the list just goes on and on and on!
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| « Last Edit: May 21st, 2003, 5:00pm by Elaine » |
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OneEyeBlind
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Re: Who's
« Reply #8 on: May 21st, 2003, 6:35pm » |
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I'm only gonna mention some names that haven't been mentioned yet cause each and every one has touched someone on this board in some way. Whenever you post or pm, you touch someone.
CathiP
Cindra
Echo
Kim
NancyC
Not 4 hire
Opus
Ted (oh heck ... you were mentioned already but you are soooooo old you deserve it !)
TerryS
Listed in alphabetical order of course ........ and heck ........ I just should have went to the page with everyones name on it and cut and pasted !!!!!!!
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| « Last Edit: May 21st, 2003, 6:36pm by OneEyeBlind » |
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Ree
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Re: Who's
« Reply #9 on: May 21st, 2003, 6:36pm » |
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DJ FOR SURE
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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cathy
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Re: Who's
« Reply #10 on: May 21st, 2003, 6:51pm » |
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My Hero....My yanky man 
oh yeah and CathiP!!! ;D 
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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jonny
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I thought this was name the person.
Ill name one that has helped as many as I have but takes no credit and dosent even post cause he wants no credit (But he reads the board)
That would be my man MOB......This dude has used his expertise to help so many people here. I know the new poeple dont know him.....Click on the link at the bottom of my posts to see how good this dudes work is, jonny's website.
HSG....is another place you can see MOB'S work.
.................................jonny
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cathy
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Not all those that wander are lost......
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Re: Who's
« Reply #12 on: May 21st, 2003, 7:24pm » |
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I forgot to say Jonny
Jonny's mule is cool....lol
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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Jackie
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Re: Who's
« Reply #13 on: May 21st, 2003, 8:25pm » |
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Wow....where do I start with this one, Donna?
There are several people who are heros in my book.... People who have been there for Blake and I. People who have fought and won hard battles of their own.
Elaine....my dear sweet friend... who has been my friend from almost day one. Without her help and advice I couldn't have been nearly as much help to my husband with the "beast battle". We've been through deaths and births, ups and downs, good times and bad. She's a fine lady with a heart of gold.
Margi...thank you for the kind words. I feel very flattered and humbled. Margi has also been there to help with everything from Blake's horrible cycles to sending words of wisdom to get me through some tough times. She is THE SUPPORTER of all supporters and clusterheads alike.
Jonny...now there's a "piece of work" and I love him dearly. He's called and talked to Blake during some really bad times....those calls kept us going more than once. Don't let him fool ya....he'd do anything for the deserving...he'd kill you if ya deserved that too.. ;D
NancyC....she's been there with pep talks and help even when she was having terrible times herself. She's one kind hearted and giving person.
Don...he's been through hell and back himself but still manages to hang in here with us....working for the "cause". Thank you Don.
Donna....sweet Donna. Imagine what it must be like to have suffered clusters yourself and then watch/support your son through the battle.
There are sooooo many...BobP, Paco (damn I miss him), Drummer, Ueli, The MOBster....on and on it goes. Actually, anyone who suffers this terrible affliction or supports a suffer is a hero.
Jacks
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| « Last Edit: May 21st, 2003, 8:28pm by Jackie » |
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Who's
« Reply #14 on: May 21st, 2003, 9:01pm » |
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I don't really know any of ya well enuff to name names cuz.....oh hell....yer ALLl my hero's !!!!! All of ya !!! Hero house Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Callico
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Re: Who's
« Reply #15 on: May 21st, 2003, 11:02pm » |
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I haven't been here long enough to really know much of who is who, but you are all hero's in my book because you have taken the time to help those of us who are just learning what is going on in our heads. DJ for sure for providing this haven, and Elaine for being there for all of us even though you have gone through more than most could stand. Your faith shows through. Jonny has been a real help to me with O2. Charlie, even though he has been PF has stayed around and encouraged.
Now I'm going to leave a lot of people out, just because your names aren't coming right to mind at the moment. Those of you who are in leadership positions I really appreciate you. I honestly don't know what I would have done had I not found this board and OUCH.
Thanks from the bottom of my heart from a newbie that is a veteran just because he talks a lot.
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Edna
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Re: Who's
« Reply #16 on: May 21st, 2003, 11:25pm » |
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Well gee..........I know it would most certainly be hard to believe, BUT...........MY FIRST HERO HERE FOR ME WAS
He was the first person I chatted with during a hard time............but then right behind him would HAVE to be
who else??? if not for him I would never had found such a great place of help.....NOT to mention all the wonderful ppl I've met...............topping the list.....
SVENN
ELAINE
BARBARA G
MICHELLE
BAMA
LINDA H
JONNY
LIZ
TRACY
CATHY
KATE
JUDY
JIM (whom I can never find anymore...rats)
KEN
LEESA
DAVE
NANCY
DEN
REE
KING OF PAIN
WILEY (who I think fell from the earth)
and did I mention CHARLIE???? LUV YA PAL
PEPPERMINT
KIRK
DRK ANGEL
EYES
NOT4
9ERFAN
CEREBUS
WOOBIE
CATHY
SHARON
gee.....should I still be called "needabuddy" ?? ;D
Thank you all and forgive me if I forgot you......just would mean I probably haven't seen you in a while.
pf wishes
EDNA
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The mad viking
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Always Look on The Bright Side of Life
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Re: Who's
« Reply #17 on: May 22nd, 2003, 4:40am » |
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I think everybody that`s contributing to make the life easyer to us in "Clusterville"deserve to be called a HERO.At least in my eyes 
Take care Friends
Svenn
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| « Last Edit: May 22nd, 2003, 7:50am by The mad viking » |
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Always Look on The Bright Side of Life
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Donna
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Re: Who's
« Reply #18 on: May 22nd, 2003, 6:54am » |
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You guys are wonderful.....it is a pleasure to know and love you all.
Your replies make me teary eyed. Keep 'em coming.
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nancyann
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Re: Who's
« Reply #19 on: May 22nd, 2003, 9:18am » |
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I have to say that being quite new here, each and every one of you in some way has touched my life in the short time I have been coming here. I have read many posts which have brought many tears, smiles, goosebumps, frowns and grunts to my eyes, mouth and voice. I have understood your feeling and felt your emotions and felt as though I have known some of you if not all of you most of my life.
You have been the hand up I have needed on some of my most difficult days. You have given me hope when I though all was lost. I have been able to turn to all of you when I needed a reminder that I was not alone. When I have been on the edge of sanity you have been the strong link, keeping me from falling over the edge.
All of you are my hero!!! And for that I wish to that EACH AND EVERY ONE OF YOU!!!
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CLR
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I love YaBB 1G - SP1!
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Re: Who's
« Reply #20 on: May 22nd, 2003, 9:19am » |
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When I first found out I had clusters I was in bad shape I didn't know what too expect, there was a very special Lady that helped me understand what was next in the pain of hell. That was Kim!!! If it hadn't been for her I think I would have lost my mind. Or maybe I have who knows. LOL!!!
Than came so many supporters Nancy, Opus, Catnip who takes her time to help others, she puts a smile on my face. I know there are even more to name. Hard to have just one.
Thanks from the bottom of my heart, Yes I have tears right about now.
Pf days too all,
Cindra
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Be glad of life because it gives you the chance to love and work and to play and to look up at the stars.
Cin
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Charlie
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Happy to be here
 
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Re: Who's
« Reply #21 on: May 22nd, 2003, 3:27pm » |
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It has to be DJ who puts up with this bunch and does all the work. He has the patience of Job.
It’s likely that without Jonny, I wouldn’t have stuck around, for several reasons-not all CH related.
What can I say Edna? Don’t know what I’d do without all the abuse I get here. Cheaper than the dominatrix dot coms too 
Charlie
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| « Last Edit: May 22nd, 2003, 4:08pm by Charlie » |
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Linda_Howell
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Re: Who's
« Reply #22 on: May 22nd, 2003, 4:14pm » |
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DJ of course. That's a "given"
Margi and everyone on the supporters corner.
Now here's where it gets tough.....I don't want to name too many names for fear of embarrassing anyone.
All those who e-mailed me when I was incognito because they were worried.
Charlie, for even being here when he hasn't been hit for a long time. and for posting his method which has relieved many of my HA's
Drummer. who was the first person I talked to here and actually gave me his work/home number to call him.
the several people who helped me in person when I was getting hit.....
1. and carried me to my room to get 02
2. The person who gave up an e-tank of his and paced with me.
3. the person who put pillows in front of my head to keep me from bashing it into a piece of furniture.
4. two of you in particular who call and e-mail me at the exact right time.......with words of real wisdom
5. The person who sent me Imitrex.
Elaine of course for too many reasons to mention here....and the rest of you for comic relief sometimes and for being here day after day to help others.
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Ueli
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My vote for the greatest supporter (but not necessarily a hero) goes to terrylch, for his unrelenting support of the often bashed Subluxationskill.
Also, it is a good idea to be on good terms with terrylch, he has a direct connection to the highest authority:
Quote:| Someone else must have beat me to it. Like GOD, maybe. |
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kim
New Board Newbie
I love YaBB 1G - SP1!
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Re: Who's
« Reply #24 on: May 22nd, 2003, 9:19pm » |
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That one person who said to him/herself..............Wow...........I knowwhatshemeans..............
And no one woulda said that butfur that one guy............you know..........he says the F-word lots (and it aint FART ).......
WOW. Over a year ago I was ALL ALONE. Now.........I aint
Bunnyhugs***********I jes luv ya more than words**********
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| « Last Edit: May 22nd, 2003, 9:27pm by kim » |
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