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Topic: Cured (Read 179 times) |
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donsurbeck
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I had CH for about 15 years a number of years ago. It was of the Norton Syndrome type and episodic. Before I left for vacatio about 20 years ago, my ENT gave me a vial to inject intermuscular to give me some relief.
After a few months, I realized that I might have been cured. Infact, I have not had an episode since that day.
I can empathize with anyone that has had the disease, and the terrible debilitating pain.
The Dr has since retired but thinks that the treatmentm was agressive antihistamine injections.
I would hate to thank that this simple history is going ignored while so many are suffering. I will thankfully and gladly give all the time I can to help find a cure for this disease.
If you know any ENT's or neurologist interested in my caseplease have them call or e-mail me.
I am 65 and have had a lot of pain, but believe me nothing approaches CH. May God be with you during your suffering.
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cluster cured
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Wendy the Brit
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Sorry Donsurbeck
I don't want to sound dismissive, and I am genuinely very, very happy for you and wish I was in the same boat but it would be good to know what was in these magic vials. I for one was given large dose antihistamines as a preventative but it did diddly squat apart from making me drugged and fat.
W the B
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Charlie
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Re: Cured
« Reply #2 on: May 17th, 2003, 10:40pm » |
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I'm happy for you and hope this horror never returns.
As you can see by this site, we need all the help we can get. It would be a good thing if we could know more. For instance: A vial of what? Perhaps it was a steriod of some type?
Take care and let us know.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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