Author |
Topic: Fu-man update (Read 342 times) |
|
fubar
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 1933
|
 |
Fu-man update
« on: May 17th, 2003, 12:48pm » |
 Quote  Modify
|
Having recieved so much wonderful support from this family, I feel obligated to give an update.
Headaches: Still getting 2-3 Kip8-10's per day, generally at night. Usually I get the bonus headache somewhere around mid afternoon, but that isn't on any particular schedule. I stopped taking the Depakote completely. My neuro appointment is next week (was supposed to be this week, but I couldn't make it) Stopping the Depakote seems to have helped my general happiness. I'm still very worn out.
Job: I tried to quit my job this week. I asked about short time disability and other options. They aren't going to let me just quit. That's actually a good thing. In fact, my boss (who happens to be pretty well known around the globe) is insisting that I consult a doctor in Bangalore India who specializes in homeopathic (Jonny, that's not homo, OK?) remedies for just about any condition. He wants to fly me to Bangalore for a week to see this doctor. Wow. In the short term, I have insisted that I need time off to rest and deal with the rest of the crap going on in my life.
Home: Wife is gone for the moment, which drastically reduces the stress level for me. She says she has left for good, but I doubt it. Right now she is in a hospital being treated for her newly diagnosed bipolar condition (something I've been telling her for years). I have my house and my kids, so I am happy but at the same time worried that I won't be able to do everything.
Meds: Wow, I got 2 packages in the mail from family here, and one from my sister. Linda Howell and Kev, you are great people. I am starting to get little bits of the sleep I need so much. Thank You Thank You Thank You.
Attitude: Not nearly as desperate today, since my biggest fear was figuring out how to cope with work on top of it all. With that temporarily out of the way, stress level should come down and desperation level is much lower.
So, there ya go. Not a bad report really.
-Fu
|
|
 IP Logged |
"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
|
|
|
DaveHar
New Board Veteran
Proud American, Proud Servicemember, CH Fighter
Gender:
Posts: 175
|
|
Re: Fu-man update
« Reply #1 on: May 17th, 2003, 1:02pm » |
Quote Modify
|
FU,
I'm sorry to hear about the hits going on like they are and I pray that the beast will get lost very soon. LIKE YESTERDAY!
As for the job thing, KICK ASS MAN! That is one hell of a boss. You are a very lucky guy to have him. Most would kick you out on your can and that I speak from expeariance. One thing I have learnt from this family is that there is not to much any one would not try to make this beast go away for ever. I have done the H2O thing, tried starving myself, taken trex in a manner that is not recomended, and I am sure that there are many others on this board that have tried even more then me. I am sure of it. I guess what I am trying to say is GOOOOOO MAN GO!!!!!!!!!!!!!!! Take the bosses offer and run with it.
If you need anything drop Leesa and I a line and we will do what we can.
As far as the family goes just keep looking forward and not back. The family thing will work itself out. Things will get better. Your kids will always be there for you and it soulds as if your wife is getting the help she needs so she can help you and now you can help her.
Keep the faith.
Dave
|
|
IP Logged |
|
|
|
Wendy the Brit
Guest
|
Fu
Thank you so much for keeping us up to date. Your post made me well up, and truthfully I'm not prone to that.
You sound so much more positive, try and hang on to that.
r.e. the boss, what a rare being, hang on to him!
r.e. the wife, what I know about bipolar I'm afraid comes from Abbie's mum and brother in ER. Sorry, that's pathetic I know! It sounds pretty horrendous to deal with if you are the person's family.
r.e. the kids, little buggers make life worth living
Love to you and hoping you reach the peak soon and start ebbing. Then life can really carry on properly
W the B
|
|
IP Logged |
|
|
|
CathiP
Guest
|
Ahhh, Fu- You really have been through so much lately-and you've GOTTEN through it! When you're being sucked into a vortex, the only thing you can do is hang till you get spat out on the other side......you know you've got people pulling you to safety.......
I think your boss is a keeper, Shawn- maybe with this guy, quitting is NOT the best option- glad it didn't work for you, after all.
I'm glad the kids are okay, and that life is a bit more peaceful right now.
India, for some help? Remains to be seen, but a nice trip, nonetheless....homeopathic? Worth a try- who knows, right? Don't worry, I'll correct Jonny again and again and again-as many times as it takes! if that doesn't work, I'll let you beat him up when you get back...okay?
Thanks for the update, Shawn....you already know there IS a light at the end of the tunnel, right?
PF!
Cathi
|
|
IP Logged |
|
|
|
Sean_C
Guest
|
Fu,
Gald to here it brother. And its nice to feel the love. This is what this boards all about.
A clusterhead in need.........is a friend indeed.
You made my day
Sean
|
|
IP Logged |
|
|
|
Virginia
New Board Hall of Famer
 
Gender: 
Posts: 1067
|
|
Re: Fu-man update
« Reply #6 on: May 17th, 2003, 5:07pm » |
Quote Modify
|
Fu-
I'm so glad to hear that things are getting a little better! I know the h/a's are still kickin your a** but it's just a matter of time before those start getting better too.
It sounds like your boss is really supportive and that is awesome. That takes a big weight off your shoulders, I"m sure. I know how bad it can be to work for someone who has NO sympathy for some who "just has headaches".
I posted in your other thread last week and I meant what I said...if you ever need anything, don't hesitate to call. I'm in the neighborhood, remember?
Thanks for keeping us posted!
V.
|
|
IP Logged |
The Clusterhead formerly known as 9erfan.
|
|
|
jonny
Guest
|
Keep looking ahead Bro, rear view is BS.
...................................jonny
|
|
IP Logged |
|
|
|
cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
 
Gender:
Posts: 2267
|
|
Re: Fu-man update
« Reply #8 on: May 17th, 2003, 5:18pm » |
Quote Modify
|
Fu......thanks for the update, you've been in my thoughts, you will cope fine with the kids, house etc and we'll all be here to help you.......sending you sleep vibes so you have the energy to see each day through....homeopathy thats water with memory, maybe it'll work lets face it nothing could forget a clusterheadache...
Cathy
|
|
IP Logged |
My own tears would mean nothing to me, if I could stop you from just shedding one....
|
|
|
Miklos
New Board Hall of Famer
Gender:
Posts: 620
|
|
Re: Fu-man update
« Reply #9 on: May 17th, 2003, 7:25pm » |
Quote Modify
|
Glad to hear that you may be turning the corner even if you cannot see around it yet.
Family is everything. Fibromyalgia (sp?), RA, clusters, macular degeneration , a dope bust, cancer and death. The site supports; the family is everything.
|
|
IP Logged |
Don't be offended by my frank analysis. Think of it as personality dialysis.
|
|
|
brain_cramps
New Board Hall of Famer
Gender:
Posts: 2103
|
|
Re: Fu-man update
« Reply #10 on: May 17th, 2003, 7:28pm » |
Quote Modify
|
Fu:
Keep it going!!! No-one said it would be easy, but you're showing up like a superstar!!!
Keep us posted,
grant 
|
|
IP Logged |
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: Fu-man update
« Reply #11 on: May 17th, 2003, 7:31pm » |
Quote Modify
|
thanks for the report, Fubar - what the hell IS your name, anyways?
i didn't post to your other post, but i've been worried about you. i'm glad to hear you're finding some relief finally.
keep punching, man - it's really worth it.
p.s. as to the homeopathy....that's literally treating "like" with "like". in other words, they will introduce histamines into your system to treat and build immunity to you your 'histamine' headaches. Think about THAT for a minute. I don't know how YOU do math, but in my little pea brain, that sounds like more attacks........We really have explored that and...it's kind of like treating clusters with feverfew or.....um... pissing on a forest fire, ok?
If your boss wants to spend money on you, ask him to send you to a beach instead. Or, better yet, go sky diving or something. I believe the adrenaline rush would have more positive effect on you. Seriously.
|
| « Last Edit: May 17th, 2003, 7:40pm by Margi » |
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
fubar
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1933
|
|
Re: Fu-man update
« Reply #12 on: May 17th, 2003, 8:46pm » |
Quote Modify
|
Margi, my name is Fubar. My dad was a Marine and not real thrilled when he got his 13 year old cousin pregnant, hence the name.
bwahahahaa
Nah. The name is Shawn. I think most people here know what fubar means. That's what I feel like, so I picked that name. Signing off with "Fu" pretty much sums up the way I feel most of the time.
I wasn't really considering going to India, but I was amazed he offered. Homeopathy sounds scary. The idea being to treat the illness with something that would normally induce the same symptoms in otherwise healthy people. I'm not keen on some doctor trying to give me a remedy that would induce cluster pain in anybody.
-Fu
|
| « Last Edit: May 17th, 2003, 8:48pm by fubar » |
IP Logged |
"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
|
|
|
TomM
New Board Hall of Famer
Gender:
Posts: 2006
|
|
Re: Fu-man update
« Reply #13 on: May 17th, 2003, 9:19pm » |
Quote Modify
|
Fu--glad you are doing better. I am amazed your boss offered such a great venture. If he/she is serious, take him/her up on it.
I'm glad to read an uplifting post from you.
Tom
|
|
IP Logged |
"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
|
|
|
JDH
CH.com Alumnus
New Board Hall of Famer
We will get by, We will survive!
Gender:
Posts: 2453
|
|
Re: Fu-man update
« Reply #14 on: May 17th, 2003, 9:22pm » |
Quote Modify
|
Fu,
Glad to hear things are a "little" better.
Keep fighting the good fight. 
pfdan's
Jim
|
|
IP Logged |
9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: Fu-man update
« Reply #15 on: May 17th, 2003, 10:11pm » |
Quote Modify
|
Fu, thanks for the update, and I'm glad you're feeling a little better. Sounds like everything is starting to head in the right direction somewhat.....I know it will keep on going that way.
Take care,
Tracey
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: Fu-man update
« Reply #16 on: May 17th, 2003, 10:13pm » |
Quote Modify
|
LOL hi Shawn - I've often wondered if your sign off was a suggestion instead of a closing....
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
paul_b
New Board Old Timer
I love YaBB 1G - SP1!
Posts: 371
|
|
Re: Fu-man update
« Reply #17 on: May 17th, 2003, 10:52pm » |
Quote Modify
|
Thanks for the up date. You is one of the GOOD people and your kids are lucky to have you. Read somewhere that nitroglycerene tablets was the test for CH. If you took one and it brought on an attack, then you got the Beast in your body. I might be wrong, but if you take your boss up on the trip, let us know. You are one valuable employee---Talented.
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
Gender:
Posts: 14968
|
|
Re: Fu-man update
« Reply #18 on: May 17th, 2003, 11:07pm » |
Quote Modify
|
Wow. Some people have real lives and problems. I hope you are as tough as you sound. So far it looks like you are.
I cannot let go the homeopathic thing. Uh uh. Make someone else pay for it if you must go. Bangalore may be an interesting trip but spend your money for something useful. Homeopathy ain't it. I'm no fun.
Mean old Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Callico
New Board Hall of Famer
Proud Dad of a US Marine!
Gender:
Posts: 1395
|
|
Re: Fu-man update
« Reply #19 on: May 17th, 2003, 11:23pm » |
Quote Modify
|
Thanks for the update. I'm glad to hear you are off of the Depakote. I know it can be helpful, but the side effects are one of the things that was wearing you down. Keep looking up. You have been in our prayers.
As to the homeopathic medicine, I don't know much, but what a boss! Wouldn't it be great if all employers cared about their people like that! We wouldn't be having the financial problems we are in in this country right now.
God bless,
jc
|
|
IP Logged |
"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
|
|
|
Wendy the Brit
Guest
|
Just a thought, try and persuade kind boss that you could get treatment at a Spa in the Maldives and that snorkelling is known as a fantastic cure!
|
| « Last Edit: May 18th, 2003, 12:09am by WendyHowe » |
IP Logged |
|
|
|
fubar
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1933
|
|
Re: Fu-man update
« Reply #21 on: May 18th, 2003, 12:25am » |
Quote Modify
|
Charlie,
No worries. It was an offer to send me there on his dime, not mine, and it was out of genuine care. I don't think homeopathy is an answer either, but it was an incredible offer.
-Fu
|
|
IP Logged |
"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
|
|
|
fubar
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1933
|
|
Re: Fu-man update
« Reply #22 on: May 18th, 2003, 2:58am » |
Quote Modify
|
Wendy,
I think you may be on to something. I should see if he'd be willing to fund a trip to the convention. 
-Shawn
|
|
IP Logged |
"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
|
|
|
Peppermint
CH.com Alumnus
New Board Hall of Famer
Work it out baby!
Gender:
Posts: 2605
|
|
Re: Fu-man update
« Reply #23 on: May 18th, 2003, 10:12am » |
Quote Modify
|
Good to hear things are looking up Shawn.
Take some time to breathe.
on May 18th, 2003, 2:58am, fubar wrote:Wendy,
I think you may be on to something. I should see if he'd be willing to fund a trip to the convention.
-Shawn |
|
Now THAT is an IDEA.
|
|
IP Logged |
You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss