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Topic: Some questions I need help with.... (Read 356 times) |
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Roxy
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Some questions I need help with....
« on: May 15th, 2003, 1:25pm » |
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I have read in the archives all I can find about Botox, and there really isn't that much information (worked for a few...didn't for some). This is the treatment that my doctor is recommending next. He was ready to shoot me up last week while I was in the office, and I told him to slow down a little.
I'm trying to understand why he is so all fired anxious to do this (other than the fact that insurance pays well for it). Are there any other people out there contemplating this? Does anyone have any new information about this? What do ya'll think I should do? I hope you can help me here, I really need some input.....cause I'm not sure what to do. 
Thanks,
Tracey
BTW: I asked him if my face would be lopsided after he shot me up....you know, one side with wrinkles and one side not. Oh...wait.....I don't have wrinkles..... ;D ;D
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Jackie
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Re: Some questions I need help with....
« Reply #1 on: May 15th, 2003, 1:33pm » |
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Roxy,
I don't know of many success stories with the Botox as a cluster treatment. It has shown some success for the migraine sufferes and has been used/studied for them.....imagine that However, there was one clusterhead, D. Truett, who did have results....check the medical page for his post.
Jacks 
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cootie
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Re: Some questions I need help with....
« Reply #2 on: May 15th, 2003, 1:36pm » |
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Hi Rox........I was readin about botox sum time ago and found this information site......hope the link works and it is informative. It probly runs along the same line as workin for sum and not for others......if you do it I HOPE it works for you !!!! Botox would be good for a face lift Pam
http://hometown.aol.com/drgulevich/
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Bob_Johnson
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Re: Some questions I need help with....
« Reply #3 on: May 15th, 2003, 3:32pm » |
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Your question prompted me to take a look at PubMed: found only 5 articles, none of them on cluster. One review of the literature reported finding a couple of case reports on cluster but with mixed reports on outcome.
Which is all to say, so far--no evidence that it's helpful for CH.
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Bob Johnson
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Ree
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Re: Some questions I need help with....
« Reply #4 on: May 15th, 2003, 6:42pm » |
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an old poster SamIAm had the injections done and shortly there after stopped posting... maybe it worked be worth a shot to look her up in the archives and send he an email... Her pic is on the pic page... good luck love Ree
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jonny
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Re: Some questions I need help with....
« Reply #5 on: May 15th, 2003, 6:52pm » |
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on May 15th, 2003, 6:42pm, Ree wrote:| an old poster SamIAm had the injections done and shortly there after stopped posting... maybe it worked be worth a shot to look her up in the archives and send he an email... Her pic is on the pic page... good luck love Ree |
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Or maybe shes dead.....LOL
Just kidding, I saw the opening and took it....sorry
Wish I could help you, Tracey.....I usually dont read posts that I have no intrest in and botox is one of them, but it was nice talking to you last night.
Painfree-ness to you, sweetie
......................................jonny
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Virginia
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Re: Some questions I need help with....
« Reply #6 on: May 15th, 2003, 7:28pm » |
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Hi Roxy,
I tried it. Mind you, my injection was from a plastic surgeon and not a neurologist. Not only did it not help with my clusters, it triggered a weird headache that lasted for about a week.
I did love the way it made me look though, 10 years younger. I have that problem with creases in my forehead because I'm always furrowing my brows (and squeezing my head) so that little prob was taken care of for a little while. I would say, try it once. If it doesn't help, just don't try it again. Not everyone gets the headache that I got.
Just my .02.
Virginia
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The Clusterhead formerly known as 9erfan.
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Not4Hire
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botox.....
« Reply #7 on: May 15th, 2003, 7:49pm » |
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rox said:
Quote:| I'm trying to understand why he is so all fired anxious to do this (other than the fact that insurance pays well for it). |
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Quote:| Oh...wait.....I don't have wrinkles.. |
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tracey: ya know I got yer back...but..... ya already said the *important stuff.....*
...use what ya *know*..... and what has worked....so far... you experimented with *something* and it gave you some relief....i applaud your *pioneer* spirit... but give one therapy TIME to work before you muddy the waters with another....
just my spin on yer *search*.......best.... not4
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Roxy
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Re: botox.....
« Reply #8 on: May 16th, 2003, 8:24am » |
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on May 15th, 2003, 7:49pm, Not4Hire wrote: but give one therapy TIME to work before you muddy the waters with another....
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I think I agree Steve... ;D
I appreciate everyone's response. Most of the people in the archives who tried the botox were also taking a lot of different meds along with the treatment. Seems no one was real sure what was helping.....or even if it was helping. I think I would prefer to just keep plugging along like I am.
Thanks,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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nancyann
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Re: Some questions I need help with....
« Reply #9 on: May 16th, 2003, 11:26am » |
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I know that at the NE Headache Center where I am going they are doing a research study on it.
That's about all.
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TomM
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Re: Some questions I need help with....
« Reply #10 on: May 16th, 2003, 12:24pm » |
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Hey, Tracey. My Uncle, who gets a...sorry to say...migraine everyday, had Botox in his forehead. It helped him for just 4-5 days.
My Neuro wanted to shoot me with it last fall and I said no because I got the distinct feeling he saw $$. I would not but I'm episodic.
My humble opinion. Ok, I'm not so humble but it is my opinion.
Are you still getting hit several times a day?
TomM
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NewHeadPLZ
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Re: Some questions I need help with....
« Reply #11 on: May 16th, 2003, 1:51pm » |
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Roxy,
If BOTOX was known to be helping others, and the fact that it was new, I'd go for it. But, since it's not, why mess with something that my not be effective.
But, that's just my opinion
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