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Topic: new guy (Read 308 times) |
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Maggie_may
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Hi everyone,
Ive been listening to you guys for a few months now and thought I could give this a shot. I have been suffering from CH for about 20 years (2-3 times a year)
my latest episode was about a month ago and it lasted about 3 weeks. I couldnt hardley take it. But get this Never had I been Diagnosed with anything but migraines. I accidentley bumped into CH on the net. There right in front of my eyes was MY HEADACHE. I couldnt believe it. I went to the doctor armed with my internet diognosis. The symptoms are very specific, Nasal conjestion, watery eye,piercing pain there is no mistaking this for anything else. My doctor agreed and gave me three different scripts. I have to tell you I feel Ive been suffering alone all this time and I now find out there are others. Another thing I have to say is I live in a small town in North Dakota (close to nowhere) so we are lucky to see any doctor let alone a specialist. I thank God for the internet. I wonder when the next clinical trial will come here. HA-HA.
I have learned fom this web site that some of you have cronic CH. I cant even imagine. I am lucky in that mine only last 1-2 hrs ( always between 6-9pm) and are gone in 3-4 weeks. But one thing is confusing to me they say they disappear as fast as they come. My eye and jaw are still tender days after my last CH. THanks every one.  Maggie-May
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TomM
New Board Hall of Famer
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Posts: 2006
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Re: new guy
« Reply #1 on: May 12th, 2003, 2:17pm » |
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Maggie_may: Welcome to the family. Say, are you related to Rod Stewart ??? Anyway, we have tons of information at this site and if you can't find it, just ask. Quote:My eye and jaw are still tender days after my last CH.
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I find that my jaw pain is an indicator of what will happen. I also have TMJ as do many CH'ers. Have you asked about that? Some of this can be considered 'shadows' if they occur with a lingering HA (headache).
Good luck.
TomM 
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
  
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Posts: 2267
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Re: new guy
« Reply #2 on: May 12th, 2003, 2:17pm » |
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Hi Maggie_may
You couldn't have come to a better site for the understanding and management of this terrible condition. Sorry your suffering at the moment, but I hope that now you've got your new meds and have found a new family, that you will find some hope and painfree time...
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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JDH
CH.com Alumnus
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We will get by, We will survive!
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Re: new guy
« Reply #3 on: May 12th, 2003, 2:22pm » |
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Hi Maggie and welcome,
There's lot's of good people here who go through the same thing as you so stick around and read, learn and ask questions.
I'm also episodic and my left eye and temple will usually stay sore for a few days after the cycle ends...no biggie.
good luck and pfdan's to you,
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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ZAIRA
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Brave to Stand !!!
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Re: new guy
« Reply #4 on: May 12th, 2003, 2:36pm » |
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Hello Maggie and WELCOME!!
Thank you for joinins us; fortunately you are in a big family and we help you...
Know that other people fight every day against the same beast... it makes a great difference...
"stay hard" ;D, now you are not alone...
Ciao, Zaira 
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Love yourself, Love others, Love often, Forever!
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jonny
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Welcome aboard, Maggie.
................................jonny
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Marianne
New Board Newbie
I love YaBB 1G - SP1!
Posts: 12
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Re: new guy
« Reply #6 on: May 12th, 2003, 2:54pm » |
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Hi Maggie,
I too am new here. Isn't this just amazing to have found these people? I don't know if you have seen it yet but if you have a minute you might want to look at the post page titled: 'Painful jaw and teeth' on the posts page. Er, I think that's the title well, something close to that anyway. If you get the fire ants in your jaw and Tmj is also a topic there as well.
I wish you painfree days and welcome to this great support group!
Marianne ;D
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: new guy
« Reply #7 on: May 12th, 2003, 2:57pm » |
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Hey new guy on the block Maggie May.....you'll be learnin alot on here. Used ta love that song Pam 
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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brain_cramps
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Re: new guy
« Reply #8 on: May 12th, 2003, 3:40pm » |
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Maggie:
Nice to meet you. Glad you found the board. There is SO much info and SO many people that are willing to help.
Welcome aboard.
grant
P.S. Did you realize there already is a "maggie_may" here on the board?
(any relation ? )
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| « Last Edit: May 12th, 2003, 3:47pm by brain_cramps » |
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: new guy
« Reply #9 on: May 12th, 2003, 4:03pm » |
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Welcome to the MB maggie.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Ree
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2008's my year to shine~SUN IS OUT!!!YAY
  
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Re: new guy
« Reply #10 on: May 12th, 2003, 7:33pm » |
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Maggie I am so glad you found CH.com... good for you. Keep coming back we need you. I noticed that no one answered your question yet... The reason they say they disappear as fast as they come or something of that nature is because they appear (the cycle starts) goes up... peaks and makes its way down until they disappear... I dont think they meant an attack persee...
good luck and Welcome Ive seen you around and you have alot of good things to say... Pain free days and cozy nights to you Ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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katethecelt
New Board Veteran
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Re: new guy
« Reply #11 on: May 12th, 2003, 10:19pm » |
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Welcome!
The others have already answered your questions and you'll find so much in the archives too. I haven't been here long and understand how gratifying it is to find people who understand...and care.
Wishing you pain free days and nights,
Kate
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oringkid
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Welcome Maggie_may! (sorry, I'm late but was confused due to maggie_may)
Sherry
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Wendy the Brit
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"Wake up Maggie, I think I got something to say to you"
WELCOME
Wendy the Brit
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maggie_may
New Board Veteran
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Posts: 196
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Re: new guy
« Reply #14 on: May 13th, 2003, 11:12am » |
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Welcome Maggie from the other Maggie!
I was a bit confused for a second there... i should probably figure out a new name as to avoid confusion  ;D
Sorry to see that you needed to find us, but glad you're here. There's tons of information here and LOTS of support.
btw Grant... I don't think there's relation.. but you never know!
maggie
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Strength does not come from physical capacity. It comes from an indomitable will. - Mahatma Gandhi
The human spirit is stronger than anything that happens to it. - C.C. Scott
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Roxy
CH.com Alumnus
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Re: new guy
« Reply #15 on: May 13th, 2003, 11:15am » |
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"I know I keep you amused.....but I feel I'm being used...."
Welcome to the jungle.....oh wait.....that's the wrong song!
Glad you're here,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Charlie
CH.com Alumnus
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Happy to be here
 
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Re: new guy
« Reply #16 on: May 13th, 2003, 8:43pm » |
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Welcome to the mad house MM. This place amazed and still amazes. If only this thing existed 35 years ago. Gotta thank DJ for coming up with it at all. He's the best.
Glad to have you and stick around.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
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Re: new guy
« Reply #17 on: May 13th, 2003, 9:27pm » |
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Two maggie mays spelled the exact same.......wow.....there's that echo agin I am hearin. Easily amused Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Azrael
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Sometimes... Being good just ain't worth it.
 
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Re: new guy
« Reply #18 on: May 14th, 2003, 5:18pm » |
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Welcome to the board! Sorry that the beast is whippin' ya cranium with an acid tipped whip. Welcome to the family! Good luck!
PFDAN..................................... Drk^Angel
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