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Topic: New To Your MB (Read 520 times) |
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katethecelt
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New To Your MB
« on: May 6th, 2003, 6:27pm » |
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Hello,
I'm in my 2nd or 3rd episode. This one is in it's 3rd week - longest of them to date.
My regular doc, not a neurologist, diagnosed me. I have all the classic symptoms. Some of my attatcks last longer than 2 hours.
I'm not taking a preventative. Plan to ask my doc about Verap next time I see her - in June. That's if I can make it that long.
I'm taking Neurontin 1-200mg at bedtime, Imitrex tabs, and Fioricet.
I'm 34, married, and substitute teach.
I've had high pain levels before, but nothing like this. I've been researching the archives when the pain levels allow, but I'm still largely uninformed.
Any advice is welcome!
PFDAN's to All,
Kate
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don
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Welcome Kate,
If you have CH there are a lot of home pain management techniques here.
Bag of frozen peas for your neck and noggin.
Vigirous exercise will sometimes abort.
Dramamine as a sleep aid
Have you tried O2 as an abortive?
JOIN OUCH !
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Jackie
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Go For It!!!
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Re: New To Your MB
« Reply #2 on: May 6th, 2003, 7:37pm » |
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Hi Kate.... 
Welcome to the family. It's a nasty condition that brought you here....but, this is a good bunch and they'll help you and support you to the max. Again....welcome.
Jacks 
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katethecelt
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Re: New To Your MB
« Reply #3 on: May 6th, 2003, 9:12pm » |
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Don,
Thanks for your advice and the Welcome!
I've been using ice packs (had them from a sprained ankle) and they help a great deal.
I'll try using my exercise bike - I can't sit still when one hits. I haven't tried O2 yet...wondering what my wonderful insurance (gag) will say. It's worth a shot!
I've done some reading on the OUCH site. Time for me to join. I'm getting there.
Wishing you PFDAN's
Kate
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brain_cramps
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Re: New To Your MB
« Reply #4 on: May 6th, 2003, 9:13pm » |
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on May 6th, 2003, 6:39pm, don wrote:If you have CH there are a lot of home pain management techniques here.
Bag of frozen peas for your neck and noggin.
Vigirous exercise will sometimes abort.
Dramamine as a sleep aid |
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Try sleeping upright in a chair, a lot of pillows, open window
a lot of fresh air during the day
lots and lots of water
don't skip meals... lots of small meals.... no big meals
works for me  ???
good luck and keep in touch,
grant
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katethecelt
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Re: New To Your MB
« Reply #5 on: May 6th, 2003, 9:15pm » |
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Hey Jacks,
Thanks for the welcome to your family. This seems like a great group of people. I've learned more from reading posts and archives than I've found in any books.
Hope you have PFDAN's
Kate
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cootie
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Re: New To Your MB
« Reply #6 on: May 6th, 2003, 9:19pm » |
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Hi Kate......real nice ta meet ya Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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don
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Plant your puss directly in front of the air conditioner.
There are ways around the insurance company dance with 02
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brain_cramps
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Re: New To Your MB
« Reply #8 on: May 6th, 2003, 9:49pm » |
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Don,
Preview button might be a good idea every now & then 
grant 
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Charlie
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Re: New To Your MB
« Reply #9 on: May 6th, 2003, 9:54pm » |
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Ah.....Found you Kate. Welcome again to our ward. Don's right. There is some great stuff here. I think you already have the tehnique. Don't give up on it. It works for some.
Stick around kid
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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don
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Quote:Preview button might be a good idea every now & then
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What and ruin my rep?
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Callico
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Re: New To Your MB
« Reply #11 on: May 6th, 2003, 10:21pm » |
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Welcome aboard Kate,
Glad you found us, and I hope you will be able to find something to help. Ice makes it worse for me. I somethimes will try a hot shower, as hot as I can stand it right on the back of my neck. I use the pulse setting on the shower head. If I can get there early somethimes it helps.
You said you are married, but you didn't mention whether or not you have kids. I learned the LaMaze method of childbirth with our kids and use the focus and relaxation techniques also. It doesn't stop them, but it does help to deal with the pain if you can keep your concentration.
Hope it breaks soon.
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Ree
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Re: New To Your MB
« Reply #12 on: May 6th, 2003, 10:39pm » |
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Welcome Kate... we are glad you found us... sorry you are suffering so badly right now jc above has some great advise for pain management... I quite frankly havent ever heard anyone that used lamase for CH pain but why not... Charlie has a great method also... he will probably post it too... Talk to your doc about uping your Neurontin that is what my hubby is on and the stuff worked miracles for him. He takes it 3 times a day. He is also on clonazepam for sleep. good luck and if you need us give a shout. Prayers going out to you Ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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suzy617
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Re: New To Your MB
« Reply #13 on: May 7th, 2003, 4:52am » |
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Hi Kate and welcome to our world.
I have nothing more to add, the others have said it all just wanted to say hi and hope your pain leaves you soon.
Suzy
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Joanie
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Re: New To Your MB
« Reply #14 on: May 7th, 2003, 7:57am » |
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Hi Kate,
Sorry you're going through such a rough time, but this is the place to be. Welcome! Definitely speak to your doc about preventatives and be careful of the fioricet, it can be nasty stuff if you take it too often.
Hope you're feeling better soon!
Joanie
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KingOfPain
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Re: New To Your MB
« Reply #15 on: May 7th, 2003, 10:26am » |
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Glad you found this site but wish you didn't have the beast visitor.
Read all you can & have an open mind & sense of humor.
This bunch is/are the best!
KingOfPain
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Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
- Denis Diderot
Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
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KingOfPain
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Re: New To Your MB
« Reply #16 on: May 7th, 2003, 10:30am » |
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suzy617,
Really cool welcome gif.
Way to go!
KOP
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Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
- Denis Diderot
Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
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oringkid
Guest
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Welcome Kate the Celt. You have found the best place for CH info and support! Lot's of great people here!
I like this so-and-so the so-and so thing.... Wendy the Brit, Kate the Celt.... I would be Sherry the FrenchIrishBritishIndianWelshman!.........hmm guess I'll stick with oringkid.
Sherry ;D
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echo
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Re: New To Your MB
« Reply #18 on: May 7th, 2003, 12:42pm » |
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Welcome Kate. Sorry you needed to search us out, glad you found us.
Echo - the DislocatedMinnesotianKansanEnglishScottishBaldSharpDresserNiceGuy.
Never mind - Echo will do just fine
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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CathiP
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 Little did I KNOW you'd be out flirting on another post QUITE that fast, Echo!
My turn: 
Couldabeenyreverlovin.....Puddin, now, I'm just Cathi
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echo
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Re: New To Your MB
« Reply #20 on: May 7th, 2003, 12:56pm » |
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You're quick one the keyboard today puddin. 
echosuckinguptothecouldabeeneverlovinandstillispuddin. ;D  
Damn -- thats hard to type without spaces.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Peppermint
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Work it out baby!
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Re: New To Your MB
« Reply #21 on: May 7th, 2003, 2:03pm » |
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Welcome to the MB Kate. Lots of good people here. Just wanted to say hello and good luck!
Peppi
on May 7th, 2003, 12:50pm, CathiP wrote: Little did I KNOW you'd be out flirting on another post QUITE that fast, Echo!
My turn:
Couldabeenyreverlovin.....Puddin, now, I'm just Cathi |
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Looks like tit for tat Cathi.......OH Behave!
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You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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Slammy
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Re: New To Your MB
« Reply #22 on: May 7th, 2003, 2:05pm » |
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on May 7th, 2003, 12:50pm, CathiP wrote:
Couldabeenyreverlovin.....Puddin, now, I'm just Cathi |
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Finally! Thank God! ( oh, another rant? ;D
Slammy
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That's it! Everyone out of the pool!
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cathy
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Re: New To Your MB
« Reply #23 on: May 7th, 2003, 2:32pm » |
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Hi Kate,
WELCOME.....!!!!
Like I told you Kate, they're a nice bunch...
Cathip's got a snotty nose lol, see what goes around comes around...roflmao....Echo...never mind about her really Im much better!!!!...... although I do have my yanky man and I just luvssssss him.... Okay give her a kiss and make up I told you it's her hormones... ;D
Cathy
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| « Last Edit: May 7th, 2003, 2:33pm by cathy » |
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Mack
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Re: New To Your MB
« Reply #24 on: May 7th, 2003, 2:36pm » |
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Welcome Kate,
You have stumbled upon the best site and group to help you get through this wicked nightmare called cluster.
Best advice is get to your doctor early and often. Get as many meds as you can before your next cycle. ( I'm learning the hard way)
Best wishes and may the beast go back to sleep so you can,
Mack
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