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Topic: Help needed - All replys welcome (Read 648 times) |
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AlfieAtkins
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 Ive suffered clusters for 8 years, tried all kinds of tablets and by the time they get in my system, im at the near end of an attack. Ive been on Imagran injections for 4 years and they do stop the current attack within minutes, but dont stop the next. My doctor gave me unlimited prescriptions, but unfortunately has now retired. My new doctor has cut my prescription down to 2 jabs a day, and im currently suffering 6 attacks and bad they are, the worst ive ever had. Nights are the worst, i dare go asleep for the fear of Freddy Kruger getting me!Can anyone suggest any anti-cluster medications that work for you. All replys are appreciated, and will be looked in to. We are all suffering and need to stick together!!!!!!!!
Alfie
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Big Dan
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Re: Help needed - All replys welcome
« Reply #1 on: Apr 28th, 2003, 11:22am » |
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Predinsone workes well for me... and I've heard that Depakote does too, but it fucked my stomache up, so I cant take it anymore...
... I use Imitrex as an abortive, but I only get two per 24 hours....
-Big Dan
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nancyann
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Re: Help needed - All replys welcome
« Reply #2 on: Apr 28th, 2003, 11:30am » |
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I wish I could help. I definently understand your pain. They won't prescribe the imitrex and nothing works for me. I wish you luck and will keep you in my prayers.
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Mr. Happy
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Re: Help needed - All replys welcome
« Reply #3 on: Apr 28th, 2003, 11:39am » |
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Alf,
Welcome, good to meet you, grab a seat and an oar, blah blah blah.......
You have a lot of _Required Reading_ starting with the buttons to the left, and another excursion over to the OUCH site.
Imitrex is fine and dandy for aborting a headache, but there are many other options, including the all new, top secret Mystery Treatment.
While you're reading, it sounds like you want to pay attention to ~Anything~ in the preventative categories, like Verapamil, et.al.
Clean those reading glasses, and git to it! 
Myopically yours,
RJ
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| « Last Edit: Apr 28th, 2003, 11:41am by Mr. Happy » |
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andy
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Re: Help needed - All replys welcome
« Reply #4 on: Apr 28th, 2003, 12:18pm » |
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Alfie, i tried the imitrex tabs before and they didnt work for me either. But i never took one before going to sleep to see if it would help keep me from being woken up with a 10. Imitrex shots work for me. Quote:top secret Mystery Treatment.
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02 is not a mystery, i have been doing it for years. I hope you find what works for you! ..............andy
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Mikey
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Re: Help needed - All replys welcome
« Reply #5 on: Apr 28th, 2003, 12:51pm » |
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Welcome aboard Alfie. Just like Happy said do all the reading that you can do by pushing the buttons to the left of the screen. You'll find that different meds work different for many people. Some of the same old regular meds like Verapamil and lithium and depakote, topamax, sansert, and a lot others in this category, are called preventive meds. Some do not work for any of us and some, they work wonders for.
Then there's the abortive category of meds like pure Oxygen,Imitrex Injections, Imitrex Nasal spray, maxalt Injections and tabs, and the list goes on.
So do your research at the left of the screen and come to the board with any and all questions you may have, and usaually there's always somebody that can help you with your questions.
So stick around, DON'T leave, we are a bunch of Clusterheads searching for some of the same answers as you are! Don't be afraid to jump into a subject either, i promise we don't bite, except for maybe Jonny!
Mikey, 
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ZAIRA
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: Help needed - All replys welcome
« Reply #6 on: Apr 28th, 2003, 12:58pm » |
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Nice too meet you Alfie and WELCOME HOME.
I’m also CH sufferer and I’m afraid to read that you’re bad.
If I can help, I take lithium an verapamil. I take lithium’s tablet 300 gr and then 1200 mg, plus verapamil until max 960 mg. My neurologist tells that the quantity of meds I take is hight, but I have to take them otherwise the cluster doesn’t leave me.
Imitrex, Lidocaine and O2 during the attacks  .
Stay with us... the share of CH with other sufferer has been very important.
Good luck from Italy,
Zaira 
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firebrix
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Re: Help needed - All replys welcome
« Reply #7 on: Apr 28th, 2003, 3:01pm » |
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Greetings and Welcome Alfie Atkins!
O X Y G E N might help you more than you imagine!
Wishing you PFDAN
firebrix
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Karla
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Re: Help needed - All replys welcome
« Reply #8 on: Apr 28th, 2003, 3:21pm » |
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Get a perscription for oxygen. If that doesn't work for you. Try some strong painkillers like stadol ns or percacet or vicodin. They won't take the pain away completley but they may knock a kip10 down to a kip8 so you can at least think a little bit while you are getting hit.
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Karla
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cathy
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Re: Help needed - All replys welcome
« Reply #9 on: Apr 28th, 2003, 3:30pm » |
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Hi Alfie....just wanted to say HI and WELCOME ABOARD..
Cathy
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cbolony
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Re: Help needed - All replys welcome
« Reply #10 on: Apr 28th, 2003, 3:33pm » |
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Quote:| My new doctor has cut my prescription down to 2 jabs a day, and im currently suffering 6 attacks and bad they are |
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Did you ever use the imitrex tip on the left side of the board.I get 4-5 CH aday in cycle and the imitrex tip saves me all the time.I am also on verapamil 240 mgs .2x a day
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AlfieAtkins
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Re: Help needed - All replys welcome
« Reply #11 on: Apr 28th, 2003, 3:44pm » |
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cheers mate, but im new on here today, and when you say imitrex tip on the left side of the board, where do i find that exactly?(left hand side of the board)
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Wendy the Brit
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Re: Help needed - All replys welcome
« Reply #12 on: Apr 28th, 2003, 3:49pm » |
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Hello Alfie!!! 
Welcome to the family of fellow sufferers. You will get help, information, support and advice,abuse and potty mouths here, all in equal measure.
What a fantastically English name you have! Do you have Brit blood by any chance?
Wendy the Brit
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vig
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Re: Help needed - All replys welcome
« Reply #13 on: Apr 28th, 2003, 3:51pm » |
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The tips are at the left side of the home page, look for Imitrex tip. I think it amounted to cutting your prescriptions into smaller pieces so they last longer. Are they still effective in smaller doses? my experience says yes.
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never, Never, NEVER quit. -Winston Churchill
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AlfieAtkins
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Re: Help needed - All replys welcome
« Reply #14 on: Apr 28th, 2003, 4:44pm » |
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Got u vig, its gotta be worth a try,,,anything to cain that devil bastard eh,,,many thanks
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cathy
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Re: Help needed - All replys welcome
« Reply #15 on: Apr 28th, 2003, 4:49pm » |
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Wendy Alfie is from the UK and will be at the UK convention.....you'll recognise him believe me he'll stand out from the crowd...thats right isn't it Alfie...lol
Cathy
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AlfieAtkins
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Re: Help needed - All replys welcome
« Reply #16 on: Apr 28th, 2003, 5:00pm » |
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You got it cath, follow me with the mop yeh,lol
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Wendy the Brit
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Re: Help needed - All replys welcome
« Reply #17 on: Apr 28th, 2003, 5:09pm » |
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Oh, you two know each other.
Does that make me still the only one who won't know anyone?
Wend
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AlfieAtkins
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Re: Help needed - All replys welcome
« Reply #18 on: Apr 28th, 2003, 5:21pm » |
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Just met u both same time
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Wendy the Brit
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Re: Help needed - All replys welcome
« Reply #19 on: Apr 28th, 2003, 5:28pm » |
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Bizarre coincidence Alfie but when I officially became a clusterhead last year, I called it Freddy Kruger as well (see post history from last year) all that afraid to go into REM sleep stuff.
Bizarre because Freddy is American culture, not British.
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AlfieAtkins
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Re: Help needed - All replys welcome
« Reply #20 on: Apr 28th, 2003, 5:37pm » |
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Suppose were all special in a way, just a shame its an evil way, Im gonna beat the war, but the battle is another story, thank you all for your help. 
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Not4Hire
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Re: Help needed - All replys welcome
« Reply #21 on: Apr 28th, 2003, 5:47pm » |
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dubya the Bee: ...me thinks 'e hasn't got a pot of glue...
and ...vig....well, He’s dropped a bloody orson......innit?
;D
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cathy
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Re: Help needed - All replys welcome
« Reply #22 on: Apr 28th, 2003, 5:51pm » |
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Not4Hire
LOL....I think you're a top gertie getana....have you got a pot of glue...???
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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paul_b
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Re: Help needed - All replys welcome
« Reply #23 on: Apr 28th, 2003, 6:11pm » |
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I is an O2 man. Have it near your bed and as soon as you awake with an attack, hit the mask.
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Azrael
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Re: Help needed - All replys welcome
« Reply #24 on: Apr 28th, 2003, 10:41pm » |
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Welcome to the board! Sorry that the beast has filled your cranium with kerosene, and is using you eye sockets as lanterns. Welcome to the family! Good luck!
PFDAN.................................. Drk^Angel
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