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Topic: Hello...new kid on the block here (Read 284 times) |
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Tigger
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I love YaBB 1G - SP1!
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Hello...new kid on the block here
« on: Apr 27th, 2003, 3:06am » |
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I did not know that so many people were affected with this. I have had these for the last 6 years and yes....people I tell this to think I am nuts. Sorry to say but its a sigh of relief to just know that I am not the only one. And all I can say is Thank - God for this site!!!!!
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cbolony
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I love YaBB 1G - SP1!
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Re: Hello...new kid on the block here
« Reply #1 on: Apr 27th, 2003, 4:33am » |
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tigger you found the best site in the world and a lot of great people are here to help you.Please read everything on the left side of the board then start asking questions.tigger i been having CH for 7 years the meds i take are verapamil 240mgs 2x aday and imitrex injections when i get hit which is 3-4 times a day in cycle.
Welcome Aboard
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Mikey
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Rock till ya Drop and DON'T mess with the FAM!!!!!
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Re: Hello...new kid on the block here
« Reply #2 on: Apr 27th, 2003, 5:57am » |
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Welcome Tigger,
We are some of the best supporters you will ever meet.
You need to read and read and read some more. Get to know the disease you have, very well and what might help you that you've not tried already and get ideas on how to cope and maybe give as well. So just like Cbolony said push those buttons on the left side of the screen and find out all you can and ask a shit load of questions if ya want to. We are here for you like a family, so welcome to the family!
Mikey, ;D
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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Cerberus
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Whomever said that two heads are better than one?
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Re: Hello...new kid on the block here
« Reply #3 on: Apr 27th, 2003, 7:37am » |
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Welcome to the jungle known as Clusterville, Tigger!! Nice to meet you!
(sorry... was just listening to a little Guns N Roses on the way home from work this morning) LOL
Just wanted to say WELCOME!!
Tina
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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jonny
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Re: Hello...new kid on the block here
« Reply #4 on: Apr 27th, 2003, 10:31am » |
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Welcome aboard
Someone find the new guy an oar and seat his ass, we need to keep rowing ;D
.............................jonny
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Sean_C
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Re: Hello...new kid on the block here
« Reply #5 on: Apr 27th, 2003, 10:45am » |
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This is the place dude. Welcome aboard ;D
Sean
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cathy
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Not all those that wander are lost......
 
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Re: Hello...new kid on the block here
« Reply #6 on: Apr 27th, 2003, 11:14am » |
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Uh oh do you realise where your keyboard has bought you, not only to one of the best Clusterheadache support sites with a wealth of information and some of the nicest people.....it's bought you to the NUT HOUSE....!!
Cathy 
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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Mark C
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Onward through the fog.
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Re: Hello...new kid on the block here
« Reply #7 on: Apr 27th, 2003, 7:34pm » |
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Sit down....shut up....and hang on...
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ShariRae
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Re: Hello...new kid on the block here
« Reply #8 on: Apr 27th, 2003, 7:37pm » |
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Welcome tigger... you will find loads of information & support here.. best group of folks ya will ever find...
stick around!!
Huggss
Shari
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cootie
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Re: Hello...new kid on the block here
« Reply #9 on: Apr 27th, 2003, 9:53pm » |
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Hi Tigger........glad you stopped in for some family quality time....welcome......Quality control Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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JDH
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Re: Hello...new kid on the block here
« Reply #10 on: Apr 27th, 2003, 10:12pm » |
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You can find almost anything you ever wanted to know about CH right here.
pfdan's
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
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Turts
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Re: Hello...new kid on the block here
« Reply #11 on: Apr 28th, 2003, 12:02am » |
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Gday Tigger. As a Newbie myself i would like to welcome you aboard as much as I can.
Interesting mix of people, cerebus is quoting 'Guns 'N' Roses' and your talking about the "New Kids on the Block"
I have posters of both in my room. LOL
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Charlie
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Re: Hello...new kid on the block here
« Reply #12 on: Apr 28th, 2003, 12:08am » |
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Welcome to our ward. We need new blood so make yourself well-known. Lots of good and crazy people here. Here's my thing. Give it a shot:
Dr. Wright's Circulatory Technique
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.
I wish you the best of luck - Charlie Strand
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Charlie
CH.com Alumnus
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Happy to be here
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Re: Hello...new kid on the block here
« Reply #13 on: Apr 28th, 2003, 12:08am » |
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Welcome to our ward. We need new blood so make yourself well-known. Lots of good and crazy people here. Here's my thing. Give it a shot:
Dr. Wright's Circulatory Technique
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.
I wish you the best of luck - Charlie Strand
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There is nothing more satisfying than being shot at without result---Winston Churchill
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arby
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Med Free & Lovin It! 'cept for O2 o'course!
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Re: Hello...new kid on the block here
« Reply #14 on: Apr 28th, 2003, 12:10am » |
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Welcome Tigger
You don't say how you are dealing with the beast. I hope that you are pain free.
The best info and the best support are found on this site.
As jonny says get rowing (and reading)
Also if you haven't already - join OUCH.
Ross
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If the meds don't kill me the CH doesn't stand a chance!
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Azrael
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Sometimes... Being good just ain't worth it.
 
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Re: Hello...new kid on the block here
« Reply #15 on: Apr 28th, 2003, 12:57am » |
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Welcome to the board! Sorry that the beast is using his extra large, economy sized nail gun to nail your cranium to a thermonuclear warhead, then blowing it into a trillion little radioactive particles. Welcome to the family! Good luck!
PFDAN...................................... Drk^Angel
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ZAIRA
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Brave to Stand !!!
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Re: Hello...new kid on the block here
« Reply #16 on: Apr 28th, 2003, 1:41am » |
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Know that I will be whit you...  WELCOME HOME Tigger!! You are in a BIG family!!
My Best, Best wishes.....Zaira 
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| « Last Edit: Apr 28th, 2003, 1:42am by ZAIRA » |
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Love yourself, Love others, Love often, Forever!
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captdshea
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Re: Hello...new kid on the block here
« Reply #17 on: Apr 28th, 2003, 9:11am » |
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Tigger,
Welcome, The strenght you need is here.
David
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"Seek knowledge and truth"
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firebrix
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I must never weaken.
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Re: Hello...new kid on the block here
« Reply #18 on: Apr 28th, 2003, 3:11pm » |
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Greetings and Welcome Tigger!
Pleased to meet you but sorry you need this site. There's a lot of info here! Have you read Not4Hire's Oxygen news yet?
Hope you are soon PF
firebrix
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"All that it takes for the triumph of evil is for good men to do nothing."
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