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Topic: First Post (Read 367 times) |
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fzapped
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I have had episodic clusters since 1978. I was first diagnosed correctly in Dec. 2000, before that I was told it was sinus infection, allergies, tension HA, etc. I just started a new cycle the begining of this month. Over 2 years since the last cycle was joyfull.
Last cycle I was given topomax, which helped, but I'm prone to kidney stones and I got one from it. Ended up having to have a procedure performed to remove it.
After scouring the internet for info on CH, I saw a study on melatonin and started taking 9mg a day about 1 1/2 weeks ago. It appears as though I may be one of the few people it helps, last 4 days have been pain free or nearly pain free, time will tell. Since this cycle started I was getting 2-3 HA a day, increasing in intensity and duration each day.
Fzapped
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echo
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Chronic and still alive --- I Win!
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Re: First Post
« Reply #1 on: Apr 24th, 2003, 9:09am » |
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Hope it works for you. It has always amazed me the widespread differences in preventative meds and how they help some and not others.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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SommelierCH
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I’m awed by the amazing resiliency that we possess
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Re: First Post
« Reply #2 on: Apr 24th, 2003, 10:40am » |
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Welcome bro,
You gots ta know your cycles by now, so if anything makes a dent in the routine, FUCKENEH, go for it. Thanks for sharing. However, like you said, “you are one of the few”, we can only wish to be so lucky.
With that much “Cluster Time” under your belt, you will be an asset to this board. Keep on posting.
David J.
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Mark C
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Onward through the fog.
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Re: First Post
« Reply #3 on: Apr 24th, 2003, 11:07am » |
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Welcome FZ,
I too have tried Melatonin with some success for insomnia, albeight at a lower dose, 3mg.
OUCH Article
PFDAN's
Mark
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fzapped
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Re: First Post
« Reply #4 on: Apr 24th, 2003, 1:00pm » |
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I take it back, Melatonin may not be doing it. Just got hit with a kip 7 at work.
Fzapped
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oringkid
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Well hell, sorry you got hit, especially at work, that sux! But hey! You did have those pain free days! Gotta look on the bright side!
Welcome! There are lots of other things you will find here to try!
Sherry
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firebrix
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Re: First Post
« Reply #6 on: Apr 24th, 2003, 3:10pm » |
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Welcome fzapped
Pity 'bout the melatonin. Hope this cycle passes quickly.
have you tried oxygen?
firebrix
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Azrael
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Re: First Post
« Reply #7 on: Apr 24th, 2003, 7:37pm » |
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Welcome to the board! Sorry that the beast is roasting your cranium in the pits of Hell to a nice charcoal black. Welcome to the family! Good luck!
PFDAN...................................... Drk^Angel
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Callico
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Re: First Post
« Reply #8 on: Apr 24th, 2003, 11:22pm » |
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Glad you found us. Stick around. THere are plenty of caring people here who know what they are talking about that can help you find what yo need. Welcome to the family.
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Charlie
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Re: First Post
« Reply #9 on: Apr 24th, 2003, 11:40pm » |
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Welcome aboard fzapped. If you look around and do lots of reading, I guarantee you'll find things to help you handle this horror.
Stick around and let us know how you're doing.
Charlie
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Edna
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Re: First Post
« Reply #10 on: Apr 25th, 2003, 7:37am » |
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Welcome fzapped, and thanks for posting..........glad you found us here but sorry you had to.
Hope your pf times in between become longer and longer.........use all there is here and you'll be sure to want to stick around with the rest of us.
Keep us posted on your progress
EDNA
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Mikey
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Rock till ya Drop and DON'T mess with the FAM!!!!!
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Re: First Post
« Reply #11 on: Apr 25th, 2003, 8:32am » |
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Welcome Fzapped, i've got the same problem with the kidney stones(past 25 now and 7 existing among both kidneys still to come out! Oh JOY!) and topomax messed me up with them too. As for the melatonin, sorry that it's seeming not too be the one to help.
Good luck, and please keep us informed of any progress.
Come back and see us ya hear? LOL!!!
Mikey, ;D
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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