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Topic: Newbie..wanted to say hello (Read 666 times) |
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Wolfmom
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Newbie..wanted to say hello
« on: Apr 22nd, 2003, 1:34pm » |
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I have suffered clusters for over 10 years. I've tried all the medications..all the treatments..some help for a while..then BAM!..it's all back again. I have developed a fear of leaving home since the clusters have become cronic. I came here because I feel so alone..no one seems to understand what I feel inside because of this. My husband tries his best to understand..but I see the frustration on his face each time an attack occures. Lately..I've found myself praying for death. They say that men suffers mostly with clusters..lol..sometimes I feel like God has played a joke on me..I have 7 brothers and not one suffers any type of headaches..but the only female in this family does. I feel so hopeless.
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Wolfmom
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echo
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Re: Newbie..wanted to say hello
« Reply #1 on: Apr 22nd, 2003, 1:43pm » |
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You have come to the right place. Many of us, me included have prayed for any end to these demons of life. Possibly your husband could gain additional understanding and support by reading the supporters corner of the MB. Welcome to the family Wolfmom. Let us know more about yourself and your situation. We are here to listen, support and give the occassional push on the back side needed to deal with CH.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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suzy617
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Re: Newbie..wanted to say hello
« Reply #2 on: Apr 22nd, 2003, 1:54pm » |
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Welcome Wolfmom, (curious bout that name)
I'm sorry your dealing with such pain but you have found the right place, here with us.
Please read all you can. Maybe there is something that you have not tried yet that will help. If there is not, then you still have us to help you deal with it.
Stick around....
Suzy
(whose boss keeps snagging her on the pc posting messages.  )
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totka
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Re: Newbie..wanted to say hello
« Reply #3 on: Apr 22nd, 2003, 2:02pm » |
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Hi Wolfmom,
Sorry for the pain you have, but I'm so glad you found us.
Welcome.
totka
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I have two enemies, cluster headache and English grammar.
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catlind
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Re: Newbie..wanted to say hello
« Reply #4 on: Apr 22nd, 2003, 2:23pm » |
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Hi Wolfmom,
I'm so sorry to hear that things have gotten bad for you. You have found a great place to get support, hope and help.
Read read and read some more. Ask any questions you have and make yourself comfie, you're home now.
Cat
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If yer gonna be stupid, ya gotta be tough
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Azrael
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Re: Newbie..wanted to say hello
« Reply #5 on: Apr 22nd, 2003, 3:31pm » |
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Welcome to the board! Sorry that the beast keeps slammin' your cranium into a pile of dull, rusty, infected, white hot, acid covered, dirty razorblades, and shards of glass. Welcome to the family! Good luck!
PFDAN.................................... Drk^Angel
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cathy
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Re: Newbie..wanted to say hello
« Reply #6 on: Apr 22nd, 2003, 3:47pm » |
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Hi Wolfmom and .........
Cathy 
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firebrix
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Re: Newbie..wanted to say hello
« Reply #7 on: Apr 22nd, 2003, 3:54pm » |
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Welcome Wolfmom!
Please tell us more about that name!
Glad you found the site, but sad that you need it.
Maybe here you'll find something that helps.
Wishing you PFDAN
firebrix
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Roxy
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Re: Newbie..wanted to say hello
« Reply #8 on: Apr 22nd, 2003, 4:08pm » |
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Welcome Wolfmom!
I hope this place and the people here can help you with your pain. I am chronic also, and you can't let it interfere with your enjoyment of life. Just load whatever your ammo is to fight the things......and go. Get out and enjoy your pain free times. Try to live as though you won't ever get hit again.
I know the look of frustration on your husbands face well. I see it every time I look at my husband as I'm getting hit. That look of frustration is just because he wants to help you and can't. It is very hard on our supporters.
Tell us what medications and treatments you have used. There are so many combinations and different methods.....you CAN find one that will help you. Do you have a good neuro? I saw in your profile that you are from Houston, my neuro is in Houston. He's not the warmest or most caring doc in the world, but he has helped with my meds, and gave me an 02 script.
My main question is: Have you tried 02? If not.....please read up on it and try to get some as soon as possible.
PFDAN,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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cbolony
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Re: Newbie..wanted to say hello
« Reply #9 on: Apr 22nd, 2003, 4:14pm » |
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Wolfmom we all felt hopeless until we found this site.You could thank DJ for putting this great website
up for clusterheads like us
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cootie
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Re: Newbie..wanted to say hello
« Reply #10 on: Apr 22nd, 2003, 4:17pm » |
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Hi Wolfmom....sorry abut yur situation and not wanting to go out of the house cuz of all this pain stuff.....you just mite find some new things to try on here.......so read up and stick around fer sure !!! Have learn'd lot myself on here Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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don
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Re: Newbie..wanted to say hello
« Reply #11 on: Apr 22nd, 2003, 4:33pm » |
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[quote]I came here because I feel so alone. [quote]
Stay here and you'll never have to feel that way again Wolfmom. You gave birth to a wolf? WOW !
Inquiring minds want to know !
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Wolfmom
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Re: Newbie..wanted to say hello
« Reply #12 on: Apr 22nd, 2003, 4:38pm » |
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Thank you everyone for such a warm welcome. Perhaps there is hope for me after all.
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Wolfmom
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Wolfmom
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Re: Newbie..wanted to say hello
« Reply #13 on: Apr 22nd, 2003, 4:41pm » |
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LOL@Don.....it's nice to see a sense of humor..been a while since I've had one. The name Wolfmom..comes from my love of wolves. I have been fighting for years to save these beautiful creatures..
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Wolfmom
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don
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Re: Newbie..wanted to say hello
« Reply #14 on: Apr 22nd, 2003, 4:59pm » |
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Thanks wolfmom.
You just totally blew my topic of conversation down at the Fraternal Order of Men With Hairy Backs Lodge meeting tonight. ................
You guys aint gonna believe this but I met this lady today and.....................
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Bonniegirl
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Re: Newbie..wanted to say hello
« Reply #15 on: Apr 22nd, 2003, 5:12pm » |
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 My God, I know all too well exactly how you feel. I, too felt so alone before I found this board. The people here,in general, kick ass, ;D and will hold you up when you feel like you're gonna crumble. I hope you have some pain free days and nites SOON.  -Bonniegirl
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oringkid
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Re: Newbie..wanted to say hello
« Reply #16 on: Apr 22nd, 2003, 5:38pm » |
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Welcome Wolfmom! Sorry you are suffering with this crap! But you have landed yourself in a whole nest of fellow CH'ers.
Can't say I felt alone exactly before I found this place, but I sure did feel like a freak! When I finally was diagnosed, I was told that it was rare, and my being a female with it was even rarer! But coming here, I found I was not the only one and I was also not anywhere near being the only female!
This place and the people in it will definitely help you in some way.
Welcome,
Sherry
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ShariRae
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Re: Newbie..wanted to say hello
« Reply #17 on: Apr 22nd, 2003, 6:18pm » |
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Welcome Wolfmom,
Check out all the info here and ask questions. You wont find a better bunch of folks ready, willing and able to help. You are no longer alone
Huggs
Shari
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Virginia
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Re: Newbie..wanted to say hello
« Reply #18 on: Apr 22nd, 2003, 8:55pm » |
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Welcome to the family Wolfmom...I'm glad you cleared up the confusion about you're name...I just thought you were really hairy! 
I know how you feel. I've felt so all alone many times during the past 18 years while battling this beast. The thing that made me feel better is the more time I spent reading this board...I found myself reading everyone's posts and saying to myself "wow, they get pain there too?"..."Hey, he/she feels like that when he/she gets a headache??that's how I feel!!", etc, etc...No matter what you have gone through with your clusters, whether it is physical, mental, emotional pain, there is someone on this board who has gone through the EXACT same thing! YOu will be amazed.
NOBODY understands what we go through except the people on this board. Invite your husband to read some of the posts on this message board, maybe it will help him be more understanding. But who knows? I've been with my boyfriend for many years and it still stuns me when I'm in the bedroom trying to ride out a h/a and he comes in and goes "what's wrong?" I just want to say "WHAT'S WRONG???? HAVE I NEVER MENTIONED IN THE LAST FEW YEARS THAT I HAVE SOMETHING CALLED CLUSTER HEADACHES????HEELLLOOOO!!!" It must be all the drugs he did when he was younger...that's all I can think of.
Anyway, didn't mean to be long-winded but did want to let you know that you are welcome....sometimes we get a littler ornery but just ignore us. We're generally a good group.
Hope to see you post often.
Virginia
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The Clusterhead formerly known as 9erfan.
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Callico
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Re: Newbie..wanted to say hello
« Reply #19 on: Apr 23rd, 2003, 12:35am » |
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Dear Wolfmom,
Glad you found us. You are not alone. I thought i was for 25yrs till I found this board a year ago. What a godsend these folks were. We all kno what you are going through and can understand fully your pain and fear of going out. Stick around and read, read, read.
One thing you need to understand. Being a clusterhead you are not normal. Normal is merely average, the best of teh worst and the worst of the best. The cream of the crap! Anyone who is a clusterhead and functional is far above normal.
Wishing you PFDANs
jc
BTW Don, LOL!!! I come on here looking for relief when being hit and laughing like that hurts! That is a good hurt though.
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cluster0557
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Re: Newbie..wanted to say hello
« Reply #20 on: Apr 23rd, 2003, 1:15am » |
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HI Wolfmom,
I am glad you found us and I hope thru all our nonsense and our advice we can give you help and hope.
You found the rightplace for support so pull up a chair tell us more and we will be happy to lend a sympathetic ear, our sympathies, and of course our collective support.
Remember there is hope. We just need to find the darn rock it is under this week.
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Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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echo
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Re: Newbie..wanted to say hello
« Reply #21 on: Apr 23rd, 2003, 3:44pm » |
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on Apr 22nd, 2003, 4:41pm, Wolfmom wrote:| The name Wolfmom..comes from my love of wolves. I have been fighting for years to save these beautiful creatures.. |
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Truly beautiful a n i m a l s. I once raised a Timberwolf whos mother was killed by a car. Had him from the ending of bottle feeding until about 6 months. Huge -- the wild was calling him back. He sure scared the hell out of the neighbors dogs and cats.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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Mark C
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Onward through the fog.
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Re: Newbie..wanted to say hello
« Reply #22 on: Apr 23rd, 2003, 4:01pm » |
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Welcome Wolfmom,
Just remember....if you lie with dogs you just might get fleas! I have no idea what that is supposed to mean here....welcome!!
PFDAN's
Mark
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| « Last Edit: Apr 24th, 2003, 10:19am by Mark C » |
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firebrix
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Re: Newbie..wanted to say hello
« Reply #23 on: Apr 24th, 2003, 3:16am » |
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O wow Echo! That is so cool.
Good on you too Wolfmom! This must be most rewarding work!
Hope you feel better soon; wishes for PFDAN coming your way!
firebrix
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"All that it takes for the triumph of evil is for good men to do nothing."
Edmund Burke
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wlsio
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Re: Newbie..wanted to say hello
« Reply #24 on: Apr 24th, 2003, 5:48am » |
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Hi Wolfmum,I've been here three days,and what a difference it's made to me already.You will find it very helpful when you are dancing just knowing we are there with you.
Good luck
weare with you
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Wayne
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