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Topic: Botox and Clusters (Read 257 times) |
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cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
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Posts: 142
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Botox and Clusters
« on: Apr 11th, 2003, 11:58pm » |
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I have Clusters compounded by Hemicrania Continua.
One of the Neuro;ogists I see says Botox will give me the relief I have been seeking for 18 months now at a cost of $400.00.
My other Neurologist is unsure if it will help the Hemicrania Continua HA.
Has anyone taken Botox for both or at least Cluster.
I am sort of at wits end because most prevents I have tried have given me such bad side efects I am desperate for any good news that has minimal side effects.
I can take droopy eye and numbness if it alleviates pain for 90-120 days.
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Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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don
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Your neuro is a liar or an imbicile.
Either way he is a bandit.
For $400.00 you might get sexy lips! Ch relief is highly doubtful
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cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender:
Posts: 142
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Re: Botox and Clusters
« Reply #2 on: Apr 12th, 2003, 12:15am » |
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Thanks for reply.
I suspect it helps some(hic) migraine sufferers but Clusterheads are a different story.
Thanks again.
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Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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don
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BINGO !
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cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender:
Posts: 142
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Re: Botox and Clusters
« Reply #4 on: Apr 12th, 2003, 12:21am » |
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Oh well, I guess I am running out of prevent options. Kinda sucks but heck so do Clusters.
Can't use Anti convulsants, Anti Depresants or Beta Channel Blockers. Really geeting limited here.
Botox was a hope. A short lived one but a hope.
Oh well Thanks again
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IP Logged |
Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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don
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There is an organic option that I dont odinarily advocate but when your out of options your out of options..
Shrooms
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cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender:
Posts: 142
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Re: Botox and Clusters
« Reply #6 on: Apr 12th, 2003, 12:38am » |
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Read about them months ago.
I am not excited about them. Brings back memories of my youth 
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IP Logged |
Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
 
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Posts: 3090
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Re: Botox and Clusters
« Reply #7 on: Apr 12th, 2003, 7:21am » |
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I tried botox and didn't have much luck with it. I would try it if your insurance covers it. You will never know unless you try it and we are all different and react differently to meds.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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Opus
New Board Hall of Famer
(Insert witty comment here)
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Posts: 2509
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Re: Botox and Clusters
« Reply #8 on: Apr 12th, 2003, 9:47am » |
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Cluster,
Check the med board and search the archives, a few have tried it with mixed results.
Opus 
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender:
Posts: 142
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Re: Botox and Clusters
« Reply #9 on: Apr 12th, 2003, 8:16pm » |
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I keep finding mixed information on Botox.
It seems like most meds in our arsenal of crap we either find one that works or not. Most screw me up so it is abortive meds that are my only savings.
Right now it appears that there is a 60/40 chance of it doing anything for anybody.
With my track record I am in the 40% group. Sounds like another crap shoot.
OBTW is nice to be back on this board. Been away for a while but is good to see the humor is still on the board.
At least people can say what they feel on this board.
Jonny and Opie have made the last day interesting 
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Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
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jonny
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on Apr 12th, 2003, 8:16pm, cluster0557 wrote:
Jonny and Opie have made the last day interesting ;D |
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I try to keep it interesting, but I play the cards im dealt ;D
..............................jonny
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