Author |
Topic: Help I am new to the board (Read 387 times) |
|
hanisdee
New Board Newbie
  
Gender: 
Posts: 26
|
 |
Help I am new to the board
« on: Apr 11th, 2003, 6:20pm » |
 Quote  Modify
|
I guess I am supposed to share my story. I have had "spells" of migraines as I have called them since I was 12, I am now 34 -yuck! With research on the internet I have now figured out I really do have clusters which my mom diagnosed years ago(as well as a neurologist) Right now I am in about my eighth week of them after a two year break and am not only exhausted and week but feel dreadfully sorry for my children and husband.
Is the hangover part really bad for everybody or is it just me? The pain itself is unbearable but I just don' t ever seem to recover completely before I am hit again.
I have read many interesting things on this board, one being the water and the other being oxygen both new to me, I will have to try.
I am sorry all of you suffer the way you do, but feel thankful to have people that understand what it feels like. Just a nightmare!!
Chrissy
|
|
 IP Logged |
Chrissy
Work like you don't need the money, love like you've never been hurt, and dance like nobody is watching.........
|
|
|
cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
Gender:
Posts: 8406
|
|
Re: Help I am new to the board
« Reply #1 on: Apr 12th, 2003, 1:25am » |
Quote Modify
|
Hi Chrissy......jus wanted ta check in and say hi to ya...sorry for you pain Pam
|
|
IP Logged |
Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
|
|
|
cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender: 
Posts: 142
|
|
Re: Help I am new to the board
« Reply #2 on: Apr 12th, 2003, 1:56am » |
Quote Modify
|
Water has never ever ever helped me.
Oxygen has worked for me if I catch a Cluster staring. In many cases it will either alleviate the pain or abort the CLuster if I get on the mask quickly.
I use about 11 litre flow for 10 minutes to a half hour.
With 3-4 attacks a day I go thru about 4 EE tanks a week. Insurance picks up most of it for me so my cost is around $20.00 per month.
Cheaper tha Imitrex Injections every month.
|
|
IP Logged |
Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
|
|
|
Bonniegirl
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 35
|
|
Re: Help I am new to the board
« Reply #3 on: Apr 14th, 2003, 3:31pm » |
Quote Modify
|
Chrissy, I am so sorry to hear how burned out you are.  I know for me, I seriously can't think straight when I'm in a cycle. ??? Even between the real hell, the constant fear of the next one and shadows seem to really wear me down. Try to catch some time in between so you can sleep, (or rest upright,like I do when I'm too freakin' tired to sleep.) I'm new around here too, so I know the relief you feel when you find this place. I've gotten tons of advice and support. I'll be thinking of you and hoping you get relief soon. -Bonniegirl
|
|
IP Logged |
|
|
|
Wendy the Brit
Guest
|
|
Re: Help I am new to the board
« Reply #4 on: Apr 14th, 2003, 5:26pm » |
Quote Modify
 Remove
|
Hello Chrissy
Welcome to the board  .
Are you taking any preventatives?
I only ask because there are good ones e.g. Verapimil, but my doctor was prescribing a heavy duty antihistamine- Pizotifen (this can work to prevent migraines) but all they did was compound my lack of sleep and make me feel really ghastly in between attacks.
I was so out of it in the end I crashed the car. Stopped taking them then as they do dick all to prevent Ch for me anyway.
W the B
|
|
IP Logged |
|
|
|
hanisdee
New Board Newbie
Gender:
Posts: 26
|
|
Re: Help I am new to the board
« Reply #5 on: Apr 14th, 2003, 5:30pm » |
Quote Modify
|
Nope, not taking any preventatives. I am very wierd about taking medicine, and I do not always get these. This is my first spell in 2 years, but it is about to kill me. I just started a new job and thank God my bosses are so nice, otherwise I would have just lost a new job!
|
|
IP Logged |
Chrissy
Work like you don't need the money, love like you've never been hurt, and dance like nobody is watching.........
|
|
|
cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender:
Posts: 142
|
|
Re: Help I am new to the board
« Reply #6 on: Apr 14th, 2003, 5:33pm » |
Quote Modify
|
Are you seeing a Neuro for your HA?
Are you just trying to ride out the pain or are you taking something for it?
I would reccomend that even though you do not like meds it would be wise to get checked out.
Your body will need the relief from constant pain. If not other nasties start.
|
|
IP Logged |
Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
|
|
|
Wendy the Brit
Guest
|
|
Re: Help I am new to the board
« Reply #7 on: Apr 14th, 2003, 5:36pm » |
Quote Modify
Remove
|
Sounds to me like the best thing you could do is to use the information you have found on the site and get yourself an official diagnosis. You can then get the treatment you need. In my experience, until you get the diagnosis, doctors often prescribe a lot of wrong things, and sometimes things that are potentially dangerous. Mine prescribed oral Pethidine, but as I am, like you only a drug taker when I absolutely have to, I didn't take them.
If you are very anti drugs of any kind, it strikes me that your best option is 02.
W the B
|
|
IP Logged |
|
|
|
hanisdee
New Board Newbie
Gender:
Posts: 26
|
|
Re: Help I am new to the board
« Reply #8 on: Apr 14th, 2003, 5:40pm » |
Quote Modify
|
I have an appt with my general practitioner on Wednesday, called him today to see about getting O2. Found a neurologist that was recommended to me and have an appt OCTOBER 6th, by then my spell will be over, but I am still going to go just so I get in.
I am not anti-medicine at all, its just I have had these since I was 12 years old and I was always afraid of becoming addicted to medication or taking something that would make it hard to have babies or hurt my little ones when I was pregnant. I have had three now I guess its time to get over it huh?? 
|
|
IP Logged |
Chrissy
Work like you don't need the money, love like you've never been hurt, and dance like nobody is watching.........
|
|
|
cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender:
Posts: 142
|
|
Re: Help I am new to the board
« Reply #9 on: Apr 14th, 2003, 5:45pm » |
Quote Modify
|
O2 helps with 40% of the Clusters I get.
Unfortunatley you need a prescription to get it.
Another thing that recently has improved my chronic HA is taking 9mg of melatonin a night.
I find that I sleep thru the normal REM cluster and don't get one until my 6 am rem cycle since going to it.
It has gotten me off valium and Sonata that I used so I could rest.
|
|
IP Logged |
Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
|
|
|
Wendy the Brit
Guest
|
|
Re: Help I am new to the board
« Reply #10 on: Apr 14th, 2003, 5:46pm » |
Quote Modify
Remove
|
Appointment in OCTOBER!!!!!!
What's that about? Is that how it works in America? I thought the National Health Service here was bad but that's outrageous!
I saw my neuro when out of cycle and it was fine, the symptoms are so distinct that when I described them, he diagnosed in about three seconds flat.
Good luck with the Doctor. I took some material I had printed off from here, that might help you get the right diagnosis if you are very sure it is CH.
W the B
|
|
IP Logged |
|
|
|
jonny
Guest
|
|
Re: Help I am new to the board
« Reply #11 on: Apr 14th, 2003, 5:50pm » |
Quote Modify
Remove
|
on Apr 14th, 2003, 5:45pm, cluster0557 wrote:
Unfortunatley you need a prescription to get it. |
|
Theres a way around every thing, even a prescription.
Its called welding 02.
Its the same thing thats in the medical tanks.
...................................jonny
|
|
IP Logged |
|
|
|
hanisdee
New Board Newbie
Gender:
Posts: 26
|
|
Re: Help I am new to the board
« Reply #12 on: Apr 14th, 2003, 5:53pm » |
Quote Modify
|
Where do I get it?
|
|
IP Logged |
Chrissy
Work like you don't need the money, love like you've never been hurt, and dance like nobody is watching.........
|
|
|
jonny
Guest
|
|
Re: Help I am new to the board
« Reply #13 on: Apr 14th, 2003, 5:58pm » |
Quote Modify
Remove
|
You need to buy a used medical regulator and convert it (I can tell you how, its easy)
Then all you do is send your husband down to a gas house and rent a tank of welding 02, never tell them you are going to breath it. Just say your from J&R welding and need some 02 for an onsite job and that you will need to keep getting re-fills.
............................jonny
|
|
IP Logged |
|
|
|
cluster0557
New Board Veteran
Migraines are bad. Clusters are Hell, I have both
Gender:
Posts: 142
|
|
Re: Help I am new to the board
« Reply #14 on: Apr 14th, 2003, 6:01pm » |
Quote Modify
|
Nice answer Jonny.
|
|
IP Logged |
Pain is Inevitable, Suffering is Optional
Life is too short so push thru the _amn pain.
Jim
|
|
|
jonny
Guest
|
|
Re: Help I am new to the board
« Reply #15 on: Apr 14th, 2003, 6:08pm » |
Quote Modify
Remove
|
If you want I can mail you a few of my buisness cards and you can tell them your in town for awhile working, once you get the first tank they will never question you again because you will be on file.
................................jonny
|
|
IP Logged |
|
|
|
hanisdee
New Board Newbie
Gender:
Posts: 26
|
|
Re: Help I am new to the board
« Reply #16 on: Apr 14th, 2003, 6:27pm » |
Quote Modify
|
Won't we get in trouble, I have a call into my doctor who is also my neighbor supposed to call me back tonight.
|
|
IP Logged |
Chrissy
Work like you don't need the money, love like you've never been hurt, and dance like nobody is watching.........
|
|
|
jonny
Guest
|
|
Re: Help I am new to the board
« Reply #17 on: Apr 14th, 2003, 6:30pm » |
Quote Modify
Remove
|
See if you can get 02 from the Doc, if you cant you can go this route and no....you cant get in trouble.
....................................jonny
|
|
IP Logged |
|
|
|
hanisdee
New Board Newbie
Gender:
Posts: 26
|
|
Re: Help I am new to the board
« Reply #18 on: Apr 14th, 2003, 6:36pm » |
Quote Modify
|
Check your email, I just sent my address.
Thanks!!!!!!!!
|
|
IP Logged |
Chrissy
Work like you don't need the money, love like you've never been hurt, and dance like nobody is watching.........
|
|
|
jonny
Guest
|
|
Re: Help I am new to the board
« Reply #19 on: Apr 14th, 2003, 6:47pm » |
Quote Modify
Remove
|
Envelope is stuffed and ready to go ;D
..................................jonny
|
|
IP Logged |
|
|
|
hanisdee
New Board Newbie
Gender:
Posts: 26
|
|
Re: Help I am new to the board
« Reply #20 on: Apr 14th, 2003, 6:55pm » |
Quote Modify
|
Thanks!
|
|
IP Logged |
Chrissy
Work like you don't need the money, love like you've never been hurt, and dance like nobody is watching.........
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss