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Topic: Another Clusterheadache site..... (Read 920 times) |
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DaveHar
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Another Clusterheadache site.....
« on: Apr 8th, 2003, 8:53pm » |
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National Clusterheadache Foundation
http://www.clusterheadache.org/
This one was founded in 2000
I do not know if anyone knows of this one
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tanner
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Re: Another Clusterheadache site.....
« Reply #1 on: Apr 8th, 2003, 9:08pm » |
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ok, just checked out the link. anyone left handed out there?
tim
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Frank
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Re: Another Clusterheadache site.....
« Reply #2 on: Apr 8th, 2003, 9:24pm » |
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I did some poking around to see who they are. The medical director for the National Clusterheadache Foundation is Dr. Alexander Mauskop, M.D. from the New York Headache Center in NYC.
So Don.... is Dr Mauskop on the Convention invitee list?
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| « Last Edit: Apr 8th, 2003, 9:25pm by Frank » |
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don
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Re: Another Clusterheadache site.....
« Reply #3 on: Apr 8th, 2003, 9:45pm » |
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Did anyone take the survey?
Is it spring 2002 yet?
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| « Last Edit: Apr 8th, 2003, 9:46pm by don » |
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Charlie
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Re: Another Clusterheadache site.....
« Reply #4 on: Apr 8th, 2003, 9:52pm » |
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I'll pitch in when they "launch the survey in Spring 2002"
Hope they're legit.
Charlie
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Ree
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Re: Another Clusterheadache site.....
« Reply #7 on: Apr 8th, 2003, 10:02pm » |
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OUR SITE IS BETTER!!!!! <3 ree  I THINK SO TOO... Turtle Tim
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Frank
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Re: Another Clusterheadache site.....
« Reply #8 on: Apr 8th, 2003, 10:18pm » |
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I wonder when that site was created if their goal isn't something similar to OUCH? To increase awareness of clusterheadaches and find a cure for the beast?
Instead of putting their website down for trying to do the same thing we are trying to do here... how about a nice "hello from clusterville" email?
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fubar
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Re: Another Clusterheadache site.....
« Reply #9 on: Apr 9th, 2003, 12:04am » |
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Wouldn't it also make sense that it is very possible the owner of that site is a member here? I think the site is quite well done. I'm not saying I would donate yet (if I could), but I think it is well done. It can only help our cause if the information remains credible and any donations are used to help us find a cure (as stated).
-Fu
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don
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Re: Another Clusterheadache site.....
« Reply #11 on: Apr 9th, 2003, 12:56am » |
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Frank
IMHO that site has cobwebs hanging all over it.
Last Updated On:27-Mar-2002 21:13:23
Thanks Ueli.
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| « Last Edit: Apr 9th, 2003, 1:01am by don » |
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Mikey
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Re: Another Clusterheadache site.....
« Reply #12 on: Apr 9th, 2003, 3:34am » |
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Yeah, Don, Ueli they are in no hurry at all are they?
Mikey, 
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catlind
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Re: Another Clusterheadache site.....
« Reply #13 on: Apr 9th, 2003, 7:02am » |
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I'll do some research on Dr Mauskop
No promises though 
My list of invited speakers is of people involved in NEW cluster information, I don't want someone preaching to the choir
Cat
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K.
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Re: Another Clusterheadache site.....
« Reply #14 on: Apr 9th, 2003, 11:41am » |
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I went to that site and was reading the info on cluster headaches. WTF? Some of the stats it mentioned for who gets CH: Most CH occur in men, overweight people and that CH has never been diag. in left handed people. I must be a freak then because I'm female, I'm thin AND I'M LEFT HANDED! Geez.
Karen
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Ted
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Re: Another Clusterheadache site.....
« Reply #15 on: Apr 9th, 2003, 12:03pm » |
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I never heard that CHs mainly hit fat people who are only right handed, but the majority of people who do get it are male, so that part is correct.
It might not have been updated in quite a while but it was sure nice to see someone concerned (or affected?) enough to put it together.
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brain_cramps
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Re: Another Clusterheadache site.....
« Reply #16 on: Apr 9th, 2003, 12:19pm » |
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on Apr 9th, 2003, 11:41am, K. wrote:| I must be a freak then because I'm female, I'm thin AND I'M LEFT HANDED! |
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I knew there had to be a couple of you out there.  
I found some of the *&(^% on there to be bordering on hilarious.
grant 
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BobG
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Re: Another Clusterheadache site.....
« Reply #17 on: Apr 9th, 2003, 1:03pm » |
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Fat clusterheads? Go to Bob P's picture and and look and decide for yourself.
Left or right? A quick search for "handedness" got this..
From
http://www.clusterheadaches.com/wwwboard/messages/15833.html
Glenn A. Miller……lefted handed, CH right side
BeeK…..left handed, CH on right
SteveB…right handed, CH on right
Nancy…….right and right
John Perez……left handed and CH on right
David Chalfant …right and right
Margi’s Mike is confused
Rick B……left handed, right pained
Bob Kipple…both and both
Derek……right and right
Phil D…right handed and right CH’d
Ted……ambidextrios and CH right
LP…..left and left
Bob Kipple…right handed and CH mostly on right.
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Ted
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Re: Another Clusterheadache site.....
« Reply #18 on: Apr 9th, 2003, 1:37pm » |
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on Apr 9th, 2003, 1:03pm, BobG wrote:
Ted……ambidextrios and CH right |
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That threw me off. I'm right handed and my attacks can hit the right or left side (I guess that's where I'm ambidexterous) and couldn't imagine why I'd write that. Then I checked the e-mail address of the Ted on that thread and saw it wasn't me. That Ted also predates me here by a few months.
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brain_cramps
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Re: Another Clusterheadache site.....
« Reply #19 on: Apr 9th, 2003, 1:46pm » |
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on Apr 9th, 2003, 1:03pm, BobG wrote:
Any comments, Margi?
grant
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Ree
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Re: Another Clusterheadache site.....
« Reply #20 on: Apr 9th, 2003, 7:39pm » |
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YA LETS SEND THEM SOME NICE EMAIL...you guys!! OUR SITE IS BETTER.!! I could have found any of that information in a medical book... we have the real deal here people... with experience from all walks of life... did you see that there huh huh huh...?? thought so... 
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rumplestiltskin
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Re: Another Clusterheadache site.....
« Reply #21 on: Apr 9th, 2003, 8:47pm » |
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The site smells funny to me....Here's a couple links ...send us money!!!
On OUCH's list of Docs... Harold Solomon listed him as a Cluster Doc. Hey Harold!!! Are you out there?
Here he is selling a book
http://www.abundant-health4u.com/store/migraines-det.html
Here he is selling Migra-lieve
http://www.naturalhealthmed.com/
Quote:| The New York Headache Center (NYHC) is an independent clinical facility dedicated to the treatment and research of headaches and related disorders. In addition to migraine, tension, and cluster headaches, we treat mood disorders, chronic fatigue, and other pain disorders. The Center has extensive experience in conducting Phase II, III, and IV clinical trials as well as post-marketing evaluations. We have a very large pool of patients who are motivated, intelligent and compliant with research protocols. |
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He's a research biggie? shrooms?
I'm not the one to do it but here is the research request form.http://www.centerwatch.com/professional/pro257.html#8
More from him: I found the following at this site: http://www.geocities.com/wstarron/capsaicin24.htm
Like magnesium. See your doctor about this one. A study at the New York Headache Center found that a shot of magnesium can relieve severe migraine or cluster headaches within 15 minutes. The shots worked only for people with low magnesium levels, but there's a 50-50 chance you're one of them, says Alexander Mauskop, M.D., who directed the study Oral supplements don't have the same effect, but daily doses may prevent migraines. Dr. Mauskop recommends 500 milligrams of chelated (check the label) magnesium, divided into two or three doses through the day.
Here he is throwing a party:
Conferences
15th Annual Symposium on the Treatment of Headaches & Facial Pain
New York Eastside Marriott, New York, USA
April 13, 2003
Contact: Alexander Mauskop, Director, NY Headache Center, 30 East 76th Street, New York, NY 10021, USA; Tel: +1 212 794 3550; Fax: +1 212 794 3550; Email: nyheadache@aol.com.
Busy lil beaver...he's all over the web.
love and peace
den
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don
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Re: Another Clusterheadache site.....
« Reply #22 on: Apr 9th, 2003, 10:47pm » |
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Trust me that is not a preventative.
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maggie_may
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Re: Another Clusterheadache site.....
« Reply #23 on: Apr 10th, 2003, 11:37am » |
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That site is a little off, but it's good that other people out there are aware of what CH is all about and how it may affect us.
I was also surfing around and found this site - http://www.chhelp.org Looks interesting - they do have a questionnaire up and some other things too. Might be helpful reading.
maggie
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don
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Re: Another Clusterheadache site.....
« Reply #24 on: Apr 10th, 2003, 11:54am » |
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IMMEDIATE RELIEF
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