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Topic: How Do You Become Chronic? (Read 317 times) |
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Cluster_Head101
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I have only been on this board a few days and noticed many of you are chronic cluster sufferers.
I still only get them once a year in a 4-8 week cycle which I am currently in.
How do people become chronic and is there a chance I ever become a chronic sufferer?
I cannot imagine having a cluster every single day of the year......
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2late
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Re: How Do You Become Chronic?
« Reply #1 on: Apr 7th, 2003, 6:50pm » |
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the answer is you might, hate to tell you that but it's true, i went from chronic to episodic so you never know. good luck to ya! ..........Jack
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jonny
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Re: How Do You Become Chronic?
« Reply #2 on: Apr 7th, 2003, 6:54pm » |
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Ive been chronic since day one, that was 27-28 yrs ago.....I can only hope to go episodic......LOL
If you go chronic you will adjust and deal. Hard to believe but you will.
...................................jonny
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don
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Re: How Do You Become Chronic?
« Reply #3 on: Apr 7th, 2003, 6:56pm » |
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Quote:| How Do You Become Chronic? |
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Why? You setting goals? I'd get a new one if I were you. LOL
Seriously it's like being an alcoholic. You only know you are one when you become one. Then all you can do is treat it. I dont there is any prevention methods for avoiding becoming chronic.
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fubar
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Re: How Do You Become Chronic?
« Reply #4 on: Apr 7th, 2003, 7:31pm » |
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Wouldn't that be nice to know... then we could maybe do something to avoid going chronic.
You cannot imagine it because it is unimaginable. No attempt to convey the experience to a non-sufferer has been successful. The torent of emotion and despair, the resolve to survive, the helpless feeling from the never-ending onslaught of terror... it's all too much to describe with any justice to the condition.
When I was episodic, I knew there was going to be an end, every time. Now, that comfort is gone. Even if this ends, I'm feeling like I'll have PTSD as a result. I've already watched myself degrade into a raving lunatic a few times on this board, and that is pure CH talking.
Crap, someday I'll be like Jonny.  (God willing bro!)
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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don
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Re: How Do You Become Chronic?
« Reply #5 on: Apr 7th, 2003, 7:44pm » |
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Quote:| watched myself degrade into a raving lunatic a few times |
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A FEW times?  ;D ;D
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Karla
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Re: How Do You Become Chronic?
« Reply #6 on: Apr 7th, 2003, 11:26pm » |
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I was born chronic at age 31. I would give anything to be eposodic but it just isn't in the stars for me. You learn to deal with it you have no choice.
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Karla
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catlind
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Re: How Do You Become Chronic?
« Reply #7 on: Apr 8th, 2003, 6:24am » |
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Karla, you use a very interesting term.
Born chronic. You and Jonny, among others have that unique and unwanted experience. I can't relate fully, but I can relate to the term you use.
Saying you are born to this is an apt description. It's a slow, distinct, deliberate, unpredictable process that is very frustrating and full of hard work to get to the diagnosis and understanding of CH. It's a very painful process. Too bad the end doesn't produce something wonderful and awe inspiring 
Cat
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das
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Re: How Do You Become Chronic?
« Reply #8 on: Apr 8th, 2003, 7:23am » |
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I started out episodic, went chronic for 2-3 years and then back to episodic. To Karla and Johnny I ask, have you tried shrooms? Just curious? When I was chronic, I started taking verapamil and valproic acid which was successful in getting me back to episodic.. at least I think it did. Then when I got hit with my next cycle, which coincidentally was the harshest I have experienced so far, I tried oxygen and shrooms and had a great deal of success. My last cycle was the mildest I've experienced... at least that I can remember.
I am also a newly convereted believer in the power of mind over matter. I also believe that a positive mental outlook will help you and others around you deal a lot better with your CHs. Remember, you don't deserve this, you can handle the pain and you will survive. Positivity my friends. I send it out to all of you.
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Linda_Howell
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Re: How Do You Become Chronic?
« Reply #9 on: Apr 8th, 2003, 1:12pm » |
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"How do you become chronic?"
After 8 months and it doesn't go away like it always did before, you start to wonder. Then a yr. passes and YOU KNOW ! This M-F loves me, for some reason and will continue to stalk me like an old boyfriend gone crazy........
And after a while longer....you accept it, you deal with it. Ten years later, I'm still dealing.
Linda H
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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BruceD
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Re: How Do You Become Chronic?
« Reply #10 on: Apr 8th, 2003, 1:25pm » |
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Whew! I really hesitated opening this thread because I was expecting a 5 step program to become chronic. Sure didn't want to something that told me I was already 4 steps into it and no way out.
I feel for all you guys who are chronic. My last episode lasted 5 months and by that time I was getting the "down-in-the-dumps" feeling like it would never end. I guess like Linda said, after a year or so, you just learn to live in spite of it.
Take care
BruceD
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brain_cramps
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Re: How Do You Become Chronic?
« Reply #11 on: Apr 8th, 2003, 1:29pm » |
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on Apr 7th, 2003, 7:31pm, fubar wrote:| Crap, someday I'll be like Jonny. (God willing bro!) |
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ROTF LMAO!!! ;D ;D ;D
sorry jonny 
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jonny
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Re: How Do You Become Chronic?
« Reply #12 on: Apr 8th, 2003, 2:37pm » |
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on Apr 8th, 2003, 7:23am, das wrote:| To Karla and Johnny I ask, have you tried shrooms? |
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No, and theres two reasons for that.
1) I have my HA's under control to the point that I only deal with maybe 10% of what I dealt with when I had no meds.
2) Due to a huge drug problem in the 70's and 80's I dont need the temptation of getting high on anything (but beer), I will not allow anyone around me to do drugs (Lost tons of friends...LOL) and I will not take any prescription drugs that will get me high.
Thank god for beer....LOL ;D ;D ;D
.............................jonny 
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brain_cramps
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Re: How Do You Become Chronic?
« Reply #13 on: Apr 8th, 2003, 2:45pm » |
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GREAT POST, jonny
(I have nothing against shrooms, but I can relate with your history!)
basking in the 'after-glow' of the younger years,
grant 
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don
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Re: How Do You Become Chronic?
« Reply #14 on: Apr 8th, 2003, 3:17pm » |
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Shrooms? Who needs shrooms?
I've already lost all sense of reality.
Wheres my play dough?
I believe the instructions for becoming chronic are over on ww.mustardgasmenow.com
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| « Last Edit: Apr 8th, 2003, 3:25pm by don » |
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