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   Author  Topic: Neuro visit  (Read 230 times)
Callico
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Neuro visit
« on: Apr 7th, 2003, 12:07am »
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I need some advice please.  My wife was able to finally get me an appointment with a neuro from Loyola who supposedly is familiar with CH.  He was referred to us by a friend who is an ICU nurse in neurology.  She talked with him about my case and he wanted to see me before my cycle ends.  (I think I may be going chronic, been dealing with them since last March.)
 
The primary thing he seems to be interested in is testing me for Apnea.  I have read a few articles about Apnea on here, but it doesn't seem to me to be a contributing factor.  Is this something I should pursue?
 
I know that often people have been advised to print out material and take it with them when the see the Dr.  Is there anything in particular I should take along, or do I wait to see how well versed he is on CH?
 
Presently I am taking no meds.  I have used Fiorinol a few times when I needed some relief.  (It did little more than take off a little of the edge.)  
 
What else do I need to do to prepare myself for the meeting with the Neuro?  I want to be able to talk with him intelligently and not just be a guinea pig.  I have no insurance, so I don't want to do any unnecessary tests or take a lot of expensive meds that don't work.
 
Please pardon this ramble, but I know so little I don't even know what questions to ask.  Thanks for all of the help you have been already.  
 
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Re: Neuro visit
« Reply #1 on: Apr 7th, 2003, 12:16am »
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Without question I would priny out the med pages from here and the OUCH site.
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andy
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Re: Neuro visit
« Reply #2 on: Apr 7th, 2003, 1:47am »
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Bummer, no insurance, me either. Just ask the doc for some samples of imitrex or whatever hes got that might work for you.  Since i had no insurance  my neuro charged me $35 per visit. About 1/3 of what he normally gets for insurance claims. Go figure!!! He gave me a stat pen and about $400 worth of imitrex (4 boxes) Nasal spray too!  I think we should have a PROTEST against the insurance companies!! NO, Bad Idea, too many protestors around here already (you know who you are, so STFU)  Samples,Samples,Samples     I hope i helped a little, Andy
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