Author |
Topic: New To The Board (Read 417 times) |
|
Cluster_Head101
Guest
|
I was diagnosed last march with Cluster Headaches. I am 28 years old and have been getting them my whole life.
I get them every year right around this time and am currently going through a rough cycle. I found this web site and am very excited to read other stories about sufferers.
I noticed that in comparison, mine are not that bad as I average about 1 per 24 hours and they last about 2-3 hours.
I see that some people get multiple CH a day and knowing the pain that would be brutal.
I hope to be a regular here on this site!!!!!
|
|
 IP Logged |
|
|
|
Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
Gender: 
Posts: 2660
|
 |
Re: New To The Board
« Reply #1 on: Apr 3rd, 2003, 9:40pm » |
 Quote  Modify
|
Welcome aboard CH,
Tell us a little about yourself.....what meds have you tried? What works.... what dont.....that kind of thing. There is much information here and on the OUCH site, go take a look. Good luck with the head.
PFDAN's
Mark
|
|
IP Logged |
Click The Flag
|
|
|
Mikey
New Board Hall of Famer
Rock till ya Drop and DON'T mess with the FAM!!!!!
Gender:
Posts: 585
|
|
Re: New To The Board
« Reply #2 on: Apr 3rd, 2003, 9:47pm » |
Quote Modify
|
welcome to the board Cluster. You will find alot of good
people here and info to help you along. We are like a family here. There is always someone here that you can turn to, believe me i know. So my best advice to you right now is to read alot and that alone will help you lots. Just remember you're not alone.
Mikey, ;D
|
|
IP Logged |
I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
|
|
|
catlind
CH.com Alumnus
New Board Hall of Famer
Taz taught me the cluster dance
 
Gender: 
Posts: 3433
|
|
Re: New To The Board
« Reply #3 on: Apr 3rd, 2003, 10:08pm » |
Quote Modify
|
Welcome aboard 101! Sorry you have the need to join the family, but glad we are here for you. You will find a wealth of information in these pages. Read, read and read some more.
What kinds have meds have you used? Do you have any tricks that you use to help you cope?
Grab an oar and help row this boat to a cure!
Cat
|
|
IP Logged |
A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
|
|
|
Cluster_Head101
Guest
|
Well I have been getting cluster headaches for years and was finally diagnosed last year.
He gave me Maxalt and I just recently starting taking it with my new episode beginning in March.
I get about 1 CH every 24 hours and they last 2-3 hours and the pain is unbearable. I cannot even sleep next to my wife at night because her swallowing annoys me.
I go downstairs or she goes on the couch and that is how we deal with it.
I have been on this web site a few days now and it is awesome.
|
|
IP Logged |
|
|
|
don
Guest
|
Wecome aboard 101.
You have just found the most incredible home you will ever find. Pull up a chair and get comfortable. You get frustrated, rant and rave right here. You feel better, share with us what has helped. You go out of cycle, stick around to support the less fortunate.
OUCH has an annual convention coming up in July.
We have a supporters corner for your wife and family.
We have a lot of local get togethers when we all act like fools. It's a blast.
First, what can we do to help you right now. Ask away.
|
|
IP Logged |
|
|
|
cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
Gender:
Posts: 8406
|
|
Re: New To The Board
« Reply #6 on: Apr 3rd, 2003, 10:45pm » |
Quote Modify
|
Hello Cluster_Head101........how-di-do-Pam
|
|
IP Logged |
Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
|
|
|
Woobie
CH.com Alumnus
New Board Hall of Famer
I luv you guys!!!!!!!!
Gender:
Posts: 3800
|
|
Re: New To The Board
« Reply #7 on: Apr 4th, 2003, 1:31am » |
Quote Modify
|
on Apr 3rd, 2003, 10:08pm, Cluster_Head101 wrote: I cannot even sleep next to my wife at night because her swallowing annoys me.
|
|
WOW!! NEVER heard a man say THAT!!! LMAO!! ;D
Anyhow, welcome to the board. Hope you find some help here.. I KNOW you will..
Just wanted to say HI!
Tina 
|
|
IP Logged |
|
|
|
brain_cramps
New Board Hall of Famer
Gender:
Posts: 2103
|
|
Re: New To The Board
« Reply #8 on: Apr 4th, 2003, 3:57am » |
Quote Modify
|
on Apr 4th, 2003, 1:31am, Woobie wrote:
WOW!! NEVER heard a man say THAT!!! LMAO!! ;D |
|
ROTF!!! TOOOO FUNNY!!!
|
|
IP Logged |
|
|
|
suzy617
CH.com Alumnus
New Board Hall of Famer
Love is friendship set on fire
Gender:
Posts: 1902
|
|
Re: New To The Board
« Reply #9 on: Apr 4th, 2003, 6:47am » |
Quote Modify
|
Hello and welcome 101,
Hope you stick around. Oh and the swallowing thing got me cracking up, LMAO. ;D
suzy
|
|
IP Logged |
When God measures men, He puts the tape around the heart, not the head.
|
|
|
Linda T
New Board Old Timer
Gender:
Posts: 440
|
|
Re: New To The Board
« Reply #10 on: Apr 4th, 2003, 10:40am » |
Quote Modify
|
Hi CH101. Welcome. My first two cycles were the same as yours. 1 hit per 24 hours. I actually used to be able to sleep. Don't know why it changed but it did. Hope things work out ok for you tho.
Wishing you all PFDAN always, Linda T
|
|
IP Logged |
What a long, strange trip it's been!
|
|
|
ShariRae
New Board Hall of Famer
 
Gender:
Posts: 927
|
|
Re: New To The Board
« Reply #11 on: Apr 4th, 2003, 10:45am » |
Quote Modify
|
Sorry ya need us...but...WELCOME HOME! Stick around, there is a wealth of information here..as well as the best group of folks you will ever know. Read all the info you can & never be afraid to ask a question..or vent..or whatever floats yer boat. Better end the welcome here before I get in trouble with a swallowing comment!! *giggle*
Shari
|
|
IP Logged |
Only two defining forces have ever offered to die for you,
Jesus Christ and the American Soldier.
One died for your soul, the other for your freedom.
|
|
|
TomM
New Board Hall of Famer
Gender:
Posts: 2006
|
|
Re: New To The Board
« Reply #12 on: Apr 4th, 2003, 11:54am » |
Quote Modify
|
101--Welcome!
Do some poking around and ask questions. We have many very well informed people on this board who are willing to share thier experiences about meds and relief with you.
Quote:| I go downstairs or she goes on the couch and that is how we deal with it. |
|
Yeah, my wife hides when I get hit too. I usually end up in the MBR and she goes to the guest room until the dust settles. The cat...he just hides.
Again. Welcome.
TomM
|
|
IP Logged |
"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
|
|
|
BruceD
CH.com Alumnus
New Board Hall of Famer
Got Atrium?
Gender:
Posts: 507
|
|
Re: New To The Board
« Reply #13 on: Apr 4th, 2003, 12:46pm » |
Quote Modify
|
101, Bummer that you had to find this place, but like everyone else has said THIS is THE place to be if you have CH (or support a ch'r) Like you I'm a relative newcomer to the board but have had CH for many-a-year. Tons of info here and lots 'O good people. The word family is certainly an understatement!
Take care
BruceD
|
|
IP Logged |
Childhood is short, maturity is forever. (The Indispensable Calvin and Hobbes)
|
|
|
cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
Gender:
Posts: 2267
|
|
Re: New To The Board
« Reply #14 on: Apr 4th, 2003, 12:47pm » |
Quote Modify
|
Hi Cluster_Head101...welcome to the mad house sorry you are a sufferer but hope you get all the help and support you need... 
Woobie you really too rude....I can't believe I missed that!....LOL
Cathy
|
|
IP Logged |
My own tears would mean nothing to me, if I could stop you from just shedding one....
|
|
|
ZAIRA
New Board Hall of Famer
Brave to Stand !!!
Gender:
Posts: 1577
|
|
Re: New To The Board
« Reply #15 on: Apr 4th, 2003, 4:06pm » |
Quote Modify
|
WELCOME HOME CH_101!!
Stay with us... in this site you are in the right place!!
PFDAN, Zaira
|
| « Last Edit: Apr 4th, 2003, 4:07pm by ZAIRA » |
IP Logged |
 
Love yourself, Love others, Love often, Forever!
|
|
|
jonny
Guest
|
Man!!!!, I aint even here yet and poking and swallowing are being discussed ;D
Welcome aboard 101,
The word "Alone" does not exsist here. ;D
..................................jonny
|
| « Last Edit: Apr 4th, 2003, 6:17pm by jonny » |
IP Logged |
|
|
|
Cluster_Head101
Guest
|
Thanks everyone for the kind welcome. I have only been on this site for 1 day and I have already learned a lot about my headaches so thanks to everyone.
CLUSTERHEAD101
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
 
Gender:
Posts: 14968
|
|
Re: New To The Board
« Reply #18 on: Apr 4th, 2003, 8:46pm » |
Quote Modify
|
Welcome to our ward 101. We've all been there or still are. If you stick around, you will find things to lessen the effects of this horror in some fashion. In the meantime, here is the technique that has been so helpful to me and some others:
Dr. Wright's Circulatory Technique
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.
I wish you the best of luck - Charlie Strand
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
 
Gender:
Posts: 1786
|
|
Re: New To The Board
« Reply #19 on: Apr 4th, 2003, 8:53pm » |
Quote Modify
|
Welcome to the board! Sorry that the beast is kickin' your head into a bloody, steaming pile of mush with his big ol' pair of steel-toed shit kickers. Welcome to the family!
PFDAN................................ Drk^Angel
|
|
IP Logged |
"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
|
|
|
Not4Hire
CH.com Alumnus
New Board Hall of Famer
...WAS PF since Oct.'02, but ...oh my...(CBusters)
Gender:
Posts: 1190
|
|
Re: New To The Board
« Reply #20 on: Apr 4th, 2003, 9:04pm » |
Quote Modify
|
Quote: Welcome to the board! Sorry that the beast is kickin' your head into a bloody, steaming pile of mush with his big ol' pair of steel-toed shit kickers. Welcome to the family!
PFDAN................................ Drk^Angel |
|
CH_101.....ya been greeted by one of the *best*..... ;D
dorkAngle....(sp)....good to see ya back! ...keep 'em comin'......
|
|
IP Logged |
Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
|
|
|
brain_cramps
New Board Hall of Famer
Gender:
Posts: 2103
|
|
Re: New To The Board
« Reply #21 on: Apr 4th, 2003, 9:06pm » |
Quote Modify
|
on Apr 4th, 2003, 8:53pm, Drk^Angel wrote:Welcome to the board! Sorry that the beast is kickin' your head into a bloody, steaming pile of mush with his big ol' pair of steel-toed shit kickers. Welcome to the family!
PFDAN................................ Drk^Angel |
|
Drk!!! Great to see you back! ;D
grant
 
|
|
IP Logged |
|
|
|
Callico
New Board Hall of Famer
Proud Dad of a US Marine!
Gender:
Posts: 1395
|
|
Re: New To The Board
« Reply #22 on: Apr 5th, 2003, 12:16am » |
Quote Modify
|
;D Glad you found us, but sorry you're here. 
You will find all the support and love you can use here. This is really a great family with some "older" brothers and sisters who can share a lot of info that will help you through the struggles. (See Jonny's thread "Got Support"
jc
|
|
IP Logged |
"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss