Author |
Topic: Oxygen mask photo (Read 1015 times) |
|
miCHel
New Board Veteran
Gender: 
Posts: 184
|
 |
Oxygen mask photo
« on: Mar 21st, 2003, 3:37pm » |
 Quote  Modify
|
Hello:
Went to see my doc this week. Had to get some new prescriptions and a referral to see a neuro. After two minutes with him... Bam... I had myself a Kip 10 right there in his office. In twenty years of visiting doctors for my CH problems, I had never ever had an attack when I was on the spot. It scared the living daylights out of him (he doesn't know much about CH).
Since I was there to talk him into prescribing me some O2 (which I have never tried - I feel like such a moron!!!), he decided to try it right there on the spot. Problem is, I had no idea what a non-rebreathable mask looks like (he wasn't sure either). So he plugged me with this cheap little mask and 6-7 liters per minute and told me to lie down and not move (during a Kip 10!!! forget it, I don't have that much control...). So I tried it for 15 minutes - no success. But no way am I giving up! Ann, she's great and has given me tons of good advice, has told me that Jonny posted a picture showing what a non-rebreathable mask looks like. Does anyone know where I can see that?
I can't believe how hard it is for me to get some O2. I think I am going to have to start kicking ass pretty soon 
Have a great week-end all!
miCHel
|
|
 IP Logged |
Good one Scotty! Now beam down my clothes...
|
|
|
das
New Board Junior
It's 2:22, make a wish.
Gender:
Posts: 95
|
|
Re: Oxygen mask photo
« Reply #1 on: Mar 21st, 2003, 3:40pm » |
Quote Modify
|
Holy shit dude!! Where do you live? Must be middle O nowhere from the sounds of it. Big cities will have the solutions for you.
Good Luck.
|
|
IP Logged |
|
|
|
jonny
Guest
|
I cant locate the pic but here is my rig, you can see that the mask has a bag on the bottom.
Your Neuro does not know what a non-rebreather looks like?
What up with that shit"
...................................jonny
|
|
IP Logged |
|
|
|
miCHel
New Board Veteran
Gender:
Posts: 184
|
|
Re: Oxygen mask photo
« Reply #3 on: Mar 21st, 2003, 4:06pm » |
Quote Modify
|
Hi Das,
It's not really that I live in the middle of nowhere (in fact I live in the same city as you ;D - Really!). It was only two years ago that I learned about O2 (through this site). My cycle ended without having the chance to try it and now that I am back on the pain wagon, I have been wanting to try it. As I said, I finally got myself a Neuro referral this week and I should be ready for my next cycle.
I guess I am trying to say it's more my fault than my doc or the place I live. I mostly have myself to blame!
Take care Das. Go Habs Go... Oups!!! Too late for that...
miCHel
|
|
IP Logged |
Good one Scotty! Now beam down my clothes...
|
|
|
miCHel
New Board Veteran
Gender:
Posts: 184
|
|
Re: Oxygen mask photo
« Reply #4 on: Mar 21st, 2003, 4:16pm » |
Quote Modify
|
Yo Jonny,
Thanks a lot for the pic. The mask my doc gave me did look like that (he's a GP - not a CH expert at all- I was there to get a referral to see a neuro).
I was a little discouraged that it didn't work. I told him that 6-7 liters per minute was probably too low but he wouldn't turn it up (which is why I want to see a neuro). Or maybe, I didn't give it enough time (15 minutes)? Anyway, I am very anxious to try it again... I thing I gained 3 pounds with just my Imitrex shots this week!
Have a good one!
miCHel
|
|
IP Logged |
Good one Scotty! Now beam down my clothes...
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: Oxygen mask photo
« Reply #6 on: Mar 21st, 2003, 4:40pm » |
Quote Modify
|
For your convenience, we long ago stole the salterlabs photo and you'll find it on the OUCH Medications page under Oxygen.
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
Kcir
Guest
|
miCHel,
I find that O2 works quick and always for me as long as I breath it at 100%. The easiest way to be asured of this is to put the plastic tube in my mouth and turn the regulator up to inhale at a fairly fast rate. When my lungs are full I turn the regulator off, wait a few sec, exhale and start again. I always get partial relief on the first or second breath and full relief in less than five minutes. This way you don't waste any oxygen.
My son has CH also and he thought that O2 didn't help until he tried it this way.
Good Luck
Rick T
|
|
IP Logged |
|
|
|
Not4Hire
CH.com Alumnus
New Board Hall of Famer
...WAS PF since Oct.'02, but ...oh my...(CBusters)
Gender:
Posts: 1190
|
|
Re: Oxygen mask photo
« Reply #8 on: Mar 21st, 2003, 10:22pm » |
Quote Modify
|
Quote:I cant locate the pic but here is my rig, you can see that the mask has a bag on the bottom.
Your Neuro does not know what a non-rebreather looks like?
What up with that shit"
...................................jonny |
|
great pic jonny.......is dat trunk where ya cool yer beer? 
jonny!....on another tack: can ya call up ole Zipperhead and see if he can't have the gremlins update the *buttons* at left -- we oughta make this o2 deal EASIER to access the GOOD SHIT....... like how to use it, how much, when, did-i-mention-HOW?, who ya gotta convince it's SAFE/EFFECTIVE/CHEAP/how/what the mask looks like/how to get around tight-ass/ignorant doctors......etc.
(o yea ...Kcir/rick......are you sure yer not talking bong technique ? Quote:| put the plastic tube in my mouth and turn the regulator up to inhale at a fairly fast rate. When my lungs are full I turn the regulator off, wait a few sec, exhale and start again. I always get partial relief on the first or second breath and full relief in less than five minutes. This way you don't waste any... |
|
;D ;D
|
|
IP Logged |
Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
|
|
|
Edna
New Board Hall of Famer
Gender: 
Posts: 1596
|
|
Re: Oxygen mask photo
« Reply #9 on: Mar 22nd, 2003, 12:08am » |
Quote Modify
|
wow thanks jonny and bobg.........myself needing little more info on the O2
My cycle time should be upcoming.....starting to get just a few too many of them shadow scares.....and O2 is what I want from my doc this time.......hoping it will work so that I don't need to rely so much on my imitrex shots.
Anyway, thanks, your info provided here helped a lot and made it much easier to find.
MiCHel, good luck dude......don't give up
EDNA
|
|
IP Logged |
|
|
|
das
New Board Junior
It's 2:22, make a wish.
Gender:
Posts: 95
|
|
Re: Oxygen mask photo
« Reply #10 on: Mar 22nd, 2003, 9:09am » |
Quote Modify
|
Michel,
Here's is what you should do next. Call La Clinique de Migraine de Montreal: 514.337.0432. As I have said many times, don't let the name fool you. They have neuros that deal only with CHs.
Good Luck, and don't waste your time with Docs that think they know what they're doing. Make sure they know. CMM knows.
|
|
IP Logged |
|
|
|
miCHel
New Board Veteran
Gender:
Posts: 184
|
|
Re: Oxygen mask photo
« Reply #11 on: Mar 22nd, 2003, 11:37am » |
Quote Modify
|
Hey guys!
Great info! Thanks a lot. Finally got myself a neuro appointment... June 16th. Das, have you ever heard of a Dr Bellavance? He's supposed to know a lot about CH? I am going to call CMM, see if they can fit me in sooner. I've been in this cycle for five weeks so I am looking (praying would be a better word) at a break in two to three weeks... hopefully.
One word about my doc, he's very cool cause he admits he knows very little about CH so I basically tell him what I want and he gives it to me. I haven't pushed hard enough for O2 cause I didn't know exactly what to ask for. You can bet I will try again this week. In the meantime, I am shooting myself with Imitrex as if there was no tomorrow. As someone who knows told me : "Fuck the consequences!" Pardon my English  So far, it's working great with little side effects (except for my bank account... OUCH... but that's the least of my problems right now). But I know I must substitute it as much as possible with O2.
Thanks again for the support! You guys are great!
miCHel
|
|
IP Logged |
Good one Scotty! Now beam down my clothes...
|
|
|
jonny
Guest
|
on Mar 21st, 2003, 10:22pm, Not4Hire wrote:
jonny!....on another tack: can ya call up ole Zipperhead and see if he can't have the gremlins update the *buttons* at left -- we oughta make this o2 deal EASIER to access the GOOD SHIT....... like how to use it, how much, when, did-i-mention-HOW?, who ya gotta convince it's SAFE/EFFECTIVE/CHEAP/how/what the mask looks like/how to get around tight-ass/ignorant doctors......etc. |
|
Not,
Zip says if you build it he will make a button for it.
For the pic of the mask you could add a link, I think the OUCH site has a pic of a mask you could link to.
....................................jonny
|
|
IP Logged |
|
|
|
K.
New Board Veteran
Gender:
Posts: 127
|
|
Re: Oxygen mask photo
« Reply #13 on: Mar 22nd, 2003, 2:33pm » |
Quote Modify
|
For those of you who haven't tried O2 or are just thinking about it, PLEASE make it your top priority to get it. I'm sure there are a few people who it may not work for but for most it is a life saver!!!! It has to be used correctly....for me....10L/min for 15 minutes, non-rebreather mask. If I get it right when the attack starts, the O2 will abort the attack 95% (or more) of the time by itself....no imitrex needed. I use it sometimes for shadows too.
Question for jonny......
For non-rebreather masks...the medical supply has vented and non-vented. Yours looks to have two bladders instead of one bladder and one side that has just holes...am I making sense? I remember a while back on the MB that someone said they just taped over the side with the holes. Does non-vented mean it has two bladders instead?
Karen
|
|
IP Logged |
|
|
|
jonny
Guest
|
Two bladders, they allow no room air in but allow your exhale to escape the mask.
If you lose the bladders (They fall off sometimes) you can tape the holes shut and lift the mask alittle when exhaling.
...................................jonny
BTW: I have never seen a non-rebreather with holes just on one side....LOL, in the last three yrs ive bought more than 30 of them and mailed them to three different countries....LOL
|
| « Last Edit: Mar 22nd, 2003, 2:54pm by jonny » |
IP Logged |
|
|
|
Not4Hire
CH.com Alumnus
New Board Hall of Famer
...WAS PF since Oct.'02, but ...oh my...(CBusters)
Gender:
Posts: 1190
|
|
Re: Oxygen mask photo
« Reply #15 on: Mar 22nd, 2003, 7:48pm » |
Quote Modify
|
jonny said:
Quote:| Zip says if you build it he will make a button for it. |
|
...OK then, I'm on it........if anybuddy has links they want to add...
...stuff that will make it EASY to access...
...like testimonials/medical evidence from Neuros...
...which can be printer-friendly to take to the doctors (there's a MULTITUDE!) who don't know how benign and effective this *therapy* is... ...(ya keep us honest, Ueli....thanks!)
Please send 'em to me:
nt4hr@netscape.net
I'll try to compile enough information to help the folks who got lucky enough to find this family.....
Thanks in advance.......Steve(N4H)
...if yer not *too* pissed at this American, Ueli...I'd like to (publically) ask you to vet my compilation.....please?
|
|
IP Logged |
Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
|
|
|
jonny
Guest
|
U-Dude will help you out, Bro.
hes that kinda bro.
Ueli is one of a few people that got me to try 02 again and to try it the right way.
I thank all those people for giving a fuck about me to instruct me.
........................jonny
|
|
IP Logged |
|
|
|
Frank
Guest
|
on Mar 21st, 2003, 4:40pm, Bob P wrote:| For your convenience, we long ago stole the salterlabs photo and you'll find it on the OUCH Medications page under Oxygen. |
|
Speaking of stealing things... next time while waiting in a treatment room at the ER... take a look around the room for a box labeled "non-rebreather masks" 
|
|
IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: Oxygen mask photo
« Reply #19 on: Mar 23rd, 2003, 1:00pm » |
Quote Modify
|
Steve, I'm putting these here instead of e-mailing them to you only because some others may want to view them now istead of waiting for the movie to come out.
Steve aka Not4Hire posted on 10-28-02 how to use oxygen properly…. …
that date isn’t in the archive but maybe he still remembers what he wrote.
posted by jonny on 9-27-02: You can’t hook a non-rebreather mask to a welding 02
regulator, you have to have a medical reg converted to fit a welding 02 tank. That takes a 1/4" NPT (National Pipe Thread) stem and a 540s connector, no gas house will do this for you cause of liability.
http://www.clusterheadaches.com/wwwboard/messages/64645.html
string on bubblers to add moisture to O2 set-ups Sept. 24, 2000
http://www.clusterheadaches.com/wwwboard/messages/59328.html
string on bubblers to add moisture to O2 set-ups Aug 10, 2000
http://www.clusterheadaches.com/wwwboard/messages/50042.html
Bob Kipple Chilling O2 “Cool O2” May 10, 2000
http://www.clusterheadaches.com/wwwboard/messages/81233.html
Ted information on Oxygen and how to get insurance to pay March 7, 2001
And a quote from Bob-Mr. Kip Scale-Kipple on the subject of smoking while using oxygen
"Did that once, interesting little fire."
|
| « Last Edit: Mar 23rd, 2003, 1:25pm by BobG » |
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
Not4Hire
CH.com Alumnus
New Board Hall of Famer
...WAS PF since Oct.'02, but ...oh my...(CBusters)
Gender:
Posts: 1190
|
|
Re: Oxygen mask photo
« Reply #20 on: Mar 23rd, 2003, 3:54pm » |
Quote Modify
|
....bump....
...and thanks to all who have sent me info so far....
MrHappy wrote:
Quote:http://www.ahsnet.org/journal/archive/may98prog-bak.htm
Objective.-Review the historical development of normobaric oxygen in the acute treatment of cluster headache.
|
|
...this appears to be a *dead link*.....RJ: ping me offboard if you can get it to work..... looks like a good one, but ???
BobG: this is EXACTLY the kind of stuff that should be under the (panic) o2 button.....many thanks.....
...if any of ya *OldBoarders* have favorite posts/links/medical abstracts/...or free beer that you can share, I invite you to send 'em..... I want this button to be friendly to newbies and as comprehensive as possible....Thanks-in-advance....
...now back to yer usual programming.....famine/war/pestilence/sloth/greed....
|
|
IP Logged |
Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss