Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 25th, 2024, 8:28am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Side effects of Lithium???? »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2003 Posts
(Moderator: DJ)
   Side effects of Lithium????
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Side effects of Lithium????  (Read 447 times)
Janice
Guest

Email

Side effects of Lithium????
« on: Mar 18th, 2003, 3:42pm »
Quote Quote Modify Modify Remove Remove

Well, after spending the past 4 days in bed from being so "drunk" from the Lithium and the Verampamil, I have decided NO MORE of that junk!  I took a leave of absence from my job today because I cannot work and suffer with these things!  All the meds do is dope me up to the point that I can't do anything!  Question here......does the Lithium affect anyone else that way?  I went to my Neuro yesterday and I was so shakey that I could not hold my hands straight out.  He said it was from the Lithium.  In fact, I am now having migraines from taking this junk!  In other words...I've traded CH attacks for drunk, dizzy, migraines!
IP Logged
jonny
Guest

Email

Re: Side effects of Lithium????
« Reply #1 on: Mar 18th, 2003, 3:48pm »
Quote Quote Modify Modify Remove Remove

Verap and Lith everyday for more than 12 yrs and no side affects worth mentioning.
 
What mgs were you taking?
 
I highly doubt Verap and Lith caused you to have Meegraines, but I could be wrong.
 
..................................jonny
IP Logged
Karla
CH.com Alumnus
New Board Hall of Famer
USA 
*****




One of Many and Never Alone - Join OUCH

  Karlak_1313  
Email

Gender: female
Posts: 3090
Re: Side effects of Lithium????
« Reply #2 on: Mar 18th, 2003, 3:51pm »
Quote Quote Modify Modify

Took lithium for a year in a half and have nothing but good things to say about it.  Sounds like your dosage may have been to high.  I took 900mg what is yours?
IP Logged

Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
Lenny
CH.com Alumnus
New Board Veteran
USA 
***



I love YaBB 1G - SP1!

   
Email

Gender: male
Posts: 213
Re: Side effects of Lithium????
« Reply #3 on: Mar 18th, 2003, 4:06pm »
Quote Quote Modify Modify

Never had a problem with Lithium myself ( except for my blood work ) side - effect wise. As the 2 post have mentioned above what dosage are you on ? What dosage of Verapamil are you taking ? I had a problem about 2 or 3 years ago ( where i was in a complete daze and very confussed ) it turned out to be the Verap. ( according to my doc, my body or my mind could not handle that dose anymore ) so we just lowered it and all was well. When you do find out please post it ( we can never learn enough here ). Good Luck.
IP Logged

yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead
Janice
Guest

Email

Re: Side effects of Lithium????
« Reply #4 on: Mar 18th, 2003, 5:46pm »
Quote Quote Modify Modify Remove Remove

Well, let me see here....Lithium I take 300 mg twice a day and the Verapamil is 240 mg twice a day.  Sound about right?  2 yrs. ago I broke out in a total body rash from one of these.  They never determined which one as my CH finally went away.  So far, no rash.
IP Logged
Dave_W
New Board Junior

**



Pain Free Days!!!

   
Email

Gender: male
Posts: 83
Re: Side effects of Lithium????
« Reply #5 on: Mar 18th, 2003, 5:49pm »
Quote Quote Modify Modify

Hi Janice,
 
I'm a big lithium fan -- mighty inexpensive and no side effects for me today at 1200 mg/day in three doses of 400 mg each.  I did have a couple problems in the past though:
 
1.  Doc changed me to Lithobid (extended-release tablets).  At the same dosage, I progressively got weaker until after about three weeks I couldn't hold my head up and was taking naps at two-hour intervals.  Went to the doc and my blood lithium level was way up, getting toxic.  Changed back to the instant-release capsules and have not had this problem since.
 
2.  Doc upped my dose to 1800 mg/day one year when the headaches were out of control.  Man, the shakes were bad -- like a heavy-duty palsy.  As long as I stay at 1500 mg or less, I'm OK.
 
Hope this helps -- it's a good med in general.
 
Pain free days to ya!
 
Old Dave
IP Logged

Old Decrepit Dave
athos
New Board Hall of Famer
USA 
*****




Reality is for those who lack imagination!

  athos_3d   Athos3d
WWW Email

Gender: male
Posts: 770
Re: Side effects of Lithium????
« Reply #6 on: Mar 20th, 2003, 1:40am »
Quote Quote Modify Modify

I have been on Lithium now for about a month...  Don't know if that is long enough to know of side effects, but none so far 300 mg 2X a day.....  I was on Verapamil years ago and nothing there either...  I have never tried them together though.
 
The Lithium is doing better than Topamax, that stuff was nasty.
 
Athos
IP Logged

http://www.XdUP.com
Find Your Value For X
eileen
New Board Newbie

*



Be good if you can't be good be careful

   


Gender: female
Posts: 41
Re: Side effects of Lithium????
« Reply #7 on: Mar 20th, 2003, 7:38am »
Quote Quote Modify Modify

I have the same side effects as you.  I feel like crap all the time.  It is a effort to take a shower or to do anything.  but I find that it is subsiding a little bit.  I was able to go shopping yesterday but today very tired.  
I was also very depressed more so than ever before.  But (knock on wood) the headaches have stopped for 3 days so far.  Always feel like they are coming but.
 
Eileen
IP Logged
Miklos
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 620
Re: Side effects of Lithium????
« Reply #8 on: Mar 20th, 2003, 10:32am »
Quote Quote Modify Modify

I have been taking 900 mg of lithium during cycles over the last 18 years. The neurologist warned me initially that there might be three annoying side effects: frequent urination, the occasional "explosive" diarrhea and a slight tremor in my hands.  I have experienced all three over the years.  
 
Never get on the freeway without stopping in the bathroom first; I have had two or three "accidents" over the years where I could not get to the restroom fast enough. God, that is humiliating, especially in kahki slacks.  
 
There is usually adequate warning for the diarrhea (not too frequent); but the effects can certainly clear the area of others.
 
I always have the tremor while taking the lithium. It makes fine motor coordination really tough; sometimes it is hard to sign my name clearly. However, I have had friends who take even larger doses for bipolar disorder, and their tremors make mine look trivial. Nonetheless, they would rather twitch than be depressed.  
 
MikeK  
 
IP Logged

Don't be offended by my frank analysis. Think of it as personality dialysis.
Miklos
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 620
Re: Side effects of Lithium????
« Reply #9 on: Mar 20th, 2003, 11:13am »
Quote Quote Modify Modify

I forgot to mention that I have no side effects from my Calan SR (verapamil). It keeps my blood pressure down which, at my age, is goodness.
IP Logged

Don't be offended by my frank analysis. Think of it as personality dialysis.
ZAIRA
New Board Hall of Famer
Italy 
*****




Brave to Stand !!!

   
Email

Gender: female
Posts: 1577
Re: Side effects of Lithium????
« Reply #10 on: Mar 20th, 2003, 3:18pm »
Quote Quote Modify Modify

Good afternoon Janice,
 
I take lithium in hight quantities (1200 ma) + verapamil (900 mg), the only side effect if Lithium (after months of treatment) is heaviness in my legs and “test” my blood every week!
 
I hope you are going better, good life.
 
Zaira  Kiss
IP Logged



Love yourself, Love others, Love often, Forever!
athos
New Board Hall of Famer
USA 
*****




Reality is for those who lack imagination!

  athos_3d   Athos3d
WWW Email

Gender: male
Posts: 770
Re: Side effects of Lithium????
« Reply #11 on: Mar 20th, 2003, 6:31pm »
Quote Quote Modify Modify

Oh yeah I forgot about the restroom leash....  That has been a little bothersome. Embarassed
IP Logged

http://www.XdUP.com
Find Your Value For X
Georgia
New Board Hall of Famer
USA 
*****




If ya don't like my peaches, don't shake my tree.

  pixieprincess_una   georgiacze
WWW Email

Gender: female
Posts: 514
Re: Side effects of Lithium????
« Reply #12 on: Mar 20th, 2003, 10:52pm »
Quote Quote Modify Modify

For me, Lithium was a horrid, nasty, evil drug with far reaching and long lasting side effects. While taking it (which was only for a few months), everything in my life became a struggle, from the seemingly simplest of tasks..standing, walking (I had that crazy-girl shuffle going on), tying my shoes...to the near impossible like working or shopping. I  felt dizzy and weak and just overcome with sheer exhaustion all the time. My hands trembled. My legs completely buckled under me on several occasions and I found myself lying on the floor before I even knew what happened, let alone had the time or energy to react.  My hair started falling out in giant clumps to the point where I had lovely little patches of nothing but stubble on my head. My entire body seemed to be working against me. And the worst part was, my CH attacks did not lessen in number or severity. I stopped taking it. The side effects did eventually go away...but it took me a long time to regain my strength and my energy.  
 
I understand your decision completely. To me, it felt like I had given the beast the upperhand, the power to win this battle by defeating myself, poisoning myself with drugs like Lithium in my crazed attempt to stop him. Oh the sick and twisted irony of it all.  
 
I wish you the best. Please keep us updated as to your progress.  
 
PEACE AND LOVE NOW,
Georgia
IP Logged

la la lala la la.....(its the theme song from the smurfs in case you couldn't tell) Need a smile? Click here: http://users.compaqnet.be/cn174277/Smurfs%20-%20Smurf%20Theme%20Song.mp3
Marc
New Board Newbie
USA 
*






   
WWW Email

Gender: male
Posts: 39
Re: Side effects of Lithium????
« Reply #13 on: Mar 21st, 2003, 12:14am »
Quote Quote Modify Modify

Georgia,
 
Nasty, nasty side effects! How often did you have your blood work done during the months you were taking it?
 
(I hope you and Den are doing well  Grin)
 
Marc
IP Logged
sailpappy
New Board Old Timer
USA 
****






  sail_pappy   sailpappy1
WWW Email

Gender: male
Posts: 349
Re: Side effects of Lithium????
« Reply #14 on: Mar 21st, 2003, 8:40am »
Quote Quote Modify Modify

;D ;D Janice,
     I had horrible side affects from the lithium also, it was the only med I was on so there was no adjunt to complicate the villan in my case.  It wiped my memory out within a few weeks and caused a host of other problems, it took nearly 20 years to regain the majority of my memory back and I have a very well documented statement from my Doctor at the time as to this.
    It seems this is like most Drugs, it works Great for some and not at all or completely reversed for others.
     Lithium is a Drug primarialy used for Manic/Depressive Disorder, it keeps sufferers of this disorder from having the extreme mood swings and the way my Doctor explained the reason for applying it to Clusters is to keep your Tempriment level,  No Highs and No Lows. When taken in combination with other substances like alcohol, tabacco, and other normally used items, antiacids like Tums it's affect is altered Greatly.
     Sounds like your in my Group of people that can't tolerate it at all. Cut your losses before they become larger and more devistating and move on to something else! JMHO    Pappy ;D ;D

IP Logged
Joanie
New Board Junior
USA 
**



God Bless America

   
Email

Gender: female
Posts: 58
Re: Side effects of Lithium????
« Reply #15 on: Mar 21st, 2003, 10:01am »
Quote Quote Modify Modify

Hi Janice,
 
I've been taking Verapamil and Lithium for over a month now.  This cycle has been the worst I've ever had in 22 years and the doctor upped the Lithium to 600mg a day, along with heavy duty doses of steroids.  The worst side effects I've had are the frequent trips to the bathroom, and the heaviness in the legs.  I've taken numerous "trips" down the stairs this month.  I also get the shakes at different times during the day.  
 
That being said, as bad as the side effects are, the relief they are finally providing for me, far outway the adverse side effects.
 
Hope this helps......
Joanie
 
IP Logged
Janice
Guest

Email

Re: Side effects of Lithium????
« Reply #16 on: Mar 21st, 2003, 10:59am »
Quote Quote Modify Modify Remove Remove

Thanks everyone for your imput, especially the ones that have experienced the same side effects as I have.  At the advise of a PA  friend of mine, I  cut the dosage in half for two days, and today starts the beginning on NO MEDS!  I have had a few shadows, but I can live with them!  My husband and boys are glad to be getting their wife and mother back.  Oh yeah, btw, I found out yesterday that my insurance company will pay for 12 injections of Imitrex in a month, not 6.  The drug store told me only 6.  So for all you guys and girls out there that are limited to your injections, you might want to double check with your insurance company.   I plan on getting the other 6 today just in case!
IP Logged
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss