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Topic: Surgical Relief for Cluster Migraine (Read 679 times) |
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EricJ
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Surgical Relief for Cluster Migraine
« on: Mar 12th, 2003, 2:11pm » |
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There is a surgical procedure to relieve cluster migraines. I have had it for six successive years. It's called a Sphenal Palitine Ganglion Block. It takes about 10 minutes. Then an hour to recover after anesthesia. I have lived with clusters for 30 years. In recent years they start in mid February and would run about four months without the procedure. They only come in my sleep. About every hour on the hour. They stop dead in their tracks about 10 days after the surgery. The surgery is annually prescribed by my neurologist and performed by a surgeon affeliated with him. it is a God send. I don't have to take Sansert ever again. Just high doses of oxygen to relieve the clusters until the surgery takes effect.
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jonny
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Re: Surgical Relief for Cluster Migraine
« Reply #1 on: Mar 12th, 2003, 3:33pm » |
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on Mar 12th, 2003, 2:11pm, EricJ wrote:| They only come in my sleep. About every hour on the hour. |
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You get a CH "Every hour on the hour"?
They must be some damn SHORT cluster headaches!!!
You sure you have clusters?
...........................jonny
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EricJ
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Re: Surgical Relief for Cluster Migraine
« Reply #2 on: Mar 12th, 2003, 4:19pm » |
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My individual headaches can last around 90 minutes. But with 12 liters/min of oxygen, they lift in around 15 minutes. The next headache comes within an hour or so thereafter. So it's up and down all night with oxygen to relieve them. My worst night ever was 16 headaches. They tend to be worse in El Nino years, becuse they're caused by changes in barometric pressure.
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Karla
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Re: Surgical Relief for Cluster Migraine
« Reply #3 on: Mar 12th, 2003, 5:07pm » |
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Since your headaches are so short in duration and so frequent in occurance have you tried indomethacin/indocin for possible cph. Might be worth a try to you. It really doesn't sound like ch. Oh and cluster headaches are not migraines.
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Karla
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cbolony
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Re: Surgical Relief for Cluster Migraine
« Reply #4 on: Mar 12th, 2003, 5:09pm » |
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maybe you should try imitex injection or fravo which
last anywhere from 10-14 hours because the 02 is not working if you have to get up every hour to use oxygen
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jonny
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Re: Surgical Relief for Cluster Migraine
« Reply #5 on: Mar 12th, 2003, 5:13pm » |
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Just what does this surgery consist of?
Where do they cut, what do they do?
............................jonny
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kissmyglass
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Re: Surgical Relief for Cluster Migraine
« Reply #6 on: Mar 12th, 2003, 5:31pm » |
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They usually do Ganglion blocks on people with TN.....
Kev C
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Ueli
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Re: Surgical Relief for Cluster Migraine
« Reply #7 on: Mar 12th, 2003, 7:26pm » |
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Cluster migraines:
1) An extremely rare combination disease: The patient has CH and M at the same time and one triggers the other.
2) An extremely sloppy expression used by 1a) people who have no idea of the difference between CH and M (example: insurance "experts", in an attempt to limit CH meds for as few attacks per month, as for M) or 2b) people who muddle the issue on purpose (example: snake oil salesmen who want to include CH people to increase business on their wonder migraine herbs or miraculous migraine surgery) or 2c) doctors who inherited their books from grand dad.
Sphenopalatine ganglion block
This has nothing at all to do with surgery. It involves injection of a anesthetic (usually lidocain) to numb this ganglion. By nature of this procedure it is only of limited duration. It is often used to treat facial pain, but for CH it is not a generally accepted procedure.
My opinion: Refuse any invasive treatment that is only recommended by the performing surgeon (or his friend) and not approved by independent experts (count for the later: zero, up to now).
El Niño
This weather phenomenon occurs on the average every 7 years. To say CH are worse in El Niño years means: a) You must have CH for a horrible long time to find a correlation with a 7 year period. b) You must feel lucky to get a bad cycle only once in 7 years.
Barometric pressure
Can please somebody tell me how and where in our body barometric pressure is sensed? We all know the pressure in the ears by fast changes in elevation, like driving over a mountain road. But reports that this starts a CH attack are few and far between. And yet, the difference in air pressure going up 1000 or 2000 feet is the same as between a meteorological high and low. So how can the pressure change from a weather front trigger a CH when it takes many hours to pass?
PFNADs
Ueli
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Lenny
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Re: Surgical Relief for Cluster Migraine
« Reply #8 on: Mar 13th, 2003, 12:16am » |
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Ditto to what Ueli just wrote ( even thou i could only understand 10% of what you wrote Ueli   - i still say ditto ;D ) cuz you the man 
Looks like your back to yourself ( glad to see that,and hopefully that means your feeling better ).
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yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead
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K.
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Re: Surgical Relief for Cluster Migraine
« Reply #9 on: Mar 13th, 2003, 5:14pm » |
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Wow Ueli I'm impressed. You ARE da man!!!!! I know a little about that block..working in the field of dentistry and all..and I couldn't have said it better myself!
Karen
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jonny
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Re: Surgical Relief for Cluster Migraine
« Reply #10 on: Mar 13th, 2003, 5:34pm » |
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LMAO Ueli!!!
As I always say, U-DA MAN!!
..............................jonny
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Mark C
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Re: Surgical Relief for Cluster Migraine
« Reply #11 on: Mar 13th, 2003, 9:05pm » |
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FUCKENH UELI!
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farmboy
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Re: Surgical Relief for Cluster Migraine
« Reply #12 on: Mar 17th, 2003, 12:49pm » |
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i don't know about the rest of you but dosen't sound on the level to me. surgery ? 10 minutes? cut nerves? injection ? every year? ulei i think you might have said it better than i did. just wondering surgery mean cuting and injection is not surgery ?????????
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TomM
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Re: Surgical Relief for Cluster Migraine
« Reply #13 on: Mar 17th, 2003, 2:32pm » |
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Quote:| An extremely sloppy expression used by... |
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That pretty well sums it up. 
Ueli--Yudda manfra!
This guy reeks of snake oil. I'm feelin' a contact buzz... 
TomM
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"Everyone should believe in something. I believe I'll go fishing."
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