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Topic: One Year Later..... (Read 374 times) |
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Jill
CH.com Alumnus
New Board Old Timer
"Life is a series of goodbyes and hellos" Billy J.
  
 
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Posts: 352
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One Year Later.....
« on: Mar 12th, 2003, 11:14am » |
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....and not a day pain free. 
It was one year ago today that this madness all began and I remember that first hit like it was yesterday. 
One year without a single day painfree  and those painfree days that are promised to come are looking farther and farther away.
Just wanted to vent (or whine - depending on how you see it) about it here. Guess that I never thought that this day would actually come.... 
Thanks everyone for all of the support during this and for any support in the future. You know who you are and I hope that each one knows that they did make a difference. I wouldnt be here without any of you....
Thanks
Jill
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"If you learn from your suffering and really come to understand the lesson you were taught you might be able to help someone else who is now in the phase. Maybe that is what its all about after all.."
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CathiP
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Jill-
What an anniversary, darlin'. I'm sending out a new supply of hugs for you, and along with them, more strength to help you cope. Wish I could do more-a year is a lonnnng time to deal with these hardcore hits you get.
Keep looking for answers, keep banging on doors. Keep yourself healthy and safe, and keep posting-people need to know what a teeny-tiny 20 yr old GIRL can do when it comes to this nasty, mean-spirited, horrendously painful affliction.
Ya got love, Jill- tons of it.
Oh, and Martin- I know, I have made you my personal whipping post- I hope you know, it is truly only in jest. I have so much respect for you, and what you've done for Jill. I do believe you very well could've saved her life. Thank you- you're quite a guy.
Cathi  i
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: One Year Later.....
« Reply #2 on: Mar 12th, 2003, 1:29pm » |
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Sounds like you have been thru quite a big war of yer own Jill..........hopein it all lets up soon and yer PF !!!! Pam-Coots-with-PF-vibes
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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lornep
New Board Newbie
I love YaBB 1G - SP1!
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Re: One Year Later.....
« Reply #3 on: Mar 12th, 2003, 1:55pm » |
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Jill,
My heart goes out to you. I don't know how you made it this far. I hope you can make it to the end.
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Edna
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Re: One Year Later.....
« Reply #4 on: Mar 12th, 2003, 2:31pm » |
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Great to see you post, even if it is to vent to us Jill.
NOW, let's hear more about the pf moments you do get huh? What you up to, you know we care and pulling for you all the way!
Check your email hun,
EDNA
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Virginia
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Re: One Year Later.....
« Reply #5 on: Mar 12th, 2003, 4:37pm » |
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Jill-
We're glad to hear from you, even if you have to vent. So many people here truly care about you.
I admit I've slacked off on my praying, but I've got a reminder to get you back on my list. Unfortunately, that list just keeps getting bigger & bigger because so many people are hitting hard times right now.
I truely understand what you're going through (I hit my 2 year anniversary of daily headaches last month). It's not a fun anniversary!
At least your parents have come full circle now and are supporting you. And thank God for Martin!
I'm sorry that you are going through such an awful time. Stay strong!
Virginia
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The Clusterhead formerly known as 9erfan.
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Re: One Year Later.....
« Reply #6 on: Mar 12th, 2003, 7:11pm » |
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sorry to hear this Jill, i hope you get some relief,my last cycle was 5-months long, i couldn't imagine a year, good luck to ya! ............Jack
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jonny
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WAH!!!!!
..............................jonny
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Jill
CH.com Alumnus
New Board Old Timer
"Life is a series of goodbyes and hellos" Billy J.
Gender:
Posts: 352
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Re: One Year Later.....
« Reply #8 on: Mar 12th, 2003, 8:00pm » |
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on Mar 12th, 2003, 7:19pm, jonny wrote:
okay Jonny, that was not right at all. I have held my tongue for so long with you, let things slide that were bothersome but this time, no way.
I guess that next you are going to make some remark about you being 27 years chronics? Going to remark on how great that makes you because you survived without whining?
As I recall in a recent post, you stated this
"1 to 5 aday......with a PF day every 5 days.
With meds.....1-2 every three days with sometimes three weeks PF "
Am I right? And then in another post you say that you are 27 years chronic which means that you get hit every single day...what? ???
To me, you are lucky. What I wouldnt give for two hits a day, heck even five and be done with it. I dont have a break from the pain, for me it actually comes every single day with no break. I have no med that works and the only options that I seem to have left is to either try narcotics or get an operation.
So please dont "Wah" at me. I never thought that you would post under mine and I have waited for this moment as every other time I have not wanted to stir trouble where I need not be. In all honesty, I dont have too much respect for you because of the way that you seem to treat others and maybe some people like that, then that is fine - do it to them but leave me out of it.
To everyone else, I am truly sorry for this. This is not the best day that I have had. Thank you for your kind words, good vibes and hugs. You guys are the true reason for this board.
Jill
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"If you learn from your suffering and really come to understand the lesson you were taught you might be able to help someone else who is now in the phase. Maybe that is what its all about after all.."
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Posts: 1190
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Re: One Year Later.....
« Reply #9 on: Mar 12th, 2003, 8:09pm » |
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i'm not one to whine but that 5-month cycle kicked my ass, since then i found this board & started using 02, a year straight......i feel for ya. .............Jack
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Opus
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(Insert witty comment here)
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Re: One Year Later.....
« Reply #10 on: Mar 12th, 2003, 9:17pm » |
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Jill,
Keep up the fight. That you have survived is truly a testament to your strength. Prayers are still going out for you. I have been praying for just one pain free day. When that comes I will have to start on two. Don't know what else to do. Have you got to that treatment center yet?
Opus 
PS Give em hell 
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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OneEyeBlind
New Board Hall of Famer
Yea, I can do this
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Re: One Year Later.....
« Reply #11 on: Mar 12th, 2003, 10:07pm » |
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Hey Jill, you just keep up the good fight. Some day you are gonna find what works for you and this will all be behind you. In the meantime .... remember ...... we never suffer for nothing .... nothing is ever done for nothing .... it depends how you play the hand you were dealt in life where you end up at the end of the game. Stay strong and play hard.
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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CathiP
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Jill, darlin'-
Have I told you before not to say SORRY? Let me answer that....YES!! A lot of times- never apologize for venting about your hits!!
It's been a long year, and I have watched you, since, what? October? You have gained so much strength and spirit and FIGHT!! In Karate, they call it the Bushido Spirit- well, you've got it now Jill.
Nope, never say sorry. A year is a very long time to endure the waves of hits, as intense as they are. Keep looking for answers, keep fighting, and let's ALL hope that by this time next year, we will read a post from you that begins with "Pain Free".
Cathi
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