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Topic: I'm new here too.... (Read 281 times) |
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Strbill
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Good Grief! Another Clusterhead!
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I'm new here too....
« on: Mar 5th, 2003, 2:25pm » |
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What a discovery! A web site devoted to this pained minority. I've gone the route of neurologist,brain scan, dentist, eye exam, etc..years ago. Got hooked on Fiorinal (didn't work) in my 20"s, got off it after some years...wasn't prescibed O2 until 5 years ago after I practially begged my doctor to give it a try. Most of you can realize the "miracle" that happened when I tried it for the first time! MY GOD IN 5 MINUTES IT WAS GONE! Have gotten it every episode now and works 95% of the time..not always so fast but the relief is great. I'm on my 4th E tank now(3rd week of this episode) with 2 in reserve.
Not usually an e-chatterer but for this group I couldn't help but saying HI.
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If I wanted nails pounded in my head and neck........
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: I'm new here too....
« Reply #1 on: Mar 5th, 2003, 2:35pm » |
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Glad you took the time to search us out and let us know a little about your situation. Great that O2 works for you to ease the pain. For me it did nothing. Plan to try it again during another cycle.
What are you taking as a preventative?
Glad you found us. Sorry you needed to. Glad you're here. Stick around, chime in, give and receive.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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cbolony
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I love YaBB 1G - SP1!
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Re: I'm new here too....
« Reply #2 on: Mar 5th, 2003, 4:26pm » |
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strbill the oxygen only works for me on the low kips
need the imitrex injection for the 7 and up.glad the oxygen is working for you lot of great post in the archives.stay PR
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Lori
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Re: I'm new here too....
« Reply #3 on: Mar 5th, 2003, 4:26pm » |
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Welcome..glad you found us. Hope you'll hang around for a while..wishing you Pain Free days!
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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miCHel
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Re: I'm new here too....
« Reply #4 on: Mar 5th, 2003, 4:45pm » |
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Welcome strbill,
Everytime I read a a first post, I am amazed how easy it is to relate. It seems most of us have gone exactly the same route, tried different stuff that didn't work and we finally end up here with the best info and the best support you could hope for.
FYI, I was also on Fiorinal unsuccessfully for a few years until I had a major nose bleed in a cabin in the middle of the woods. My blood was so thin, I lost almost a half gallon of it. That was it for me...
As usual, sorry you had to come here... but you are at the right place! Stick around...
miCHel
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Good one Scotty! Now beam down my clothes...
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suzy617
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Re: I'm new here too....
« Reply #5 on: Mar 5th, 2003, 5:11pm » |
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Hi Strbill
Glad you found us.
suzy
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When God measures men, He puts the tape around the heart, not the head.
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Roxy
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Re: I'm new here too....
« Reply #6 on: Mar 5th, 2003, 5:23pm » |
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Welcome Strbill,
Sorry you had to seek us out, but glad you found us when you did. It's great that you found 02 that long ago.....it and imitex really do wonders for many of us.
Go click on the OUCH button to the left and join up.....
PFDAN,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Mark C
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Onward through the fog.
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Re: I'm new here too....
« Reply #7 on: Mar 5th, 2003, 5:47pm » |
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Click The Flag
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2late
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Ride Free..Pain Free
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Re: I'm new here too....
« Reply #8 on: Mar 5th, 2003, 6:17pm » |
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welcome aboard strbill.....02 rocks!! glad you found us. ...........Jack
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Charlie
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Re: I'm new here too....
« Reply #9 on: Mar 5th, 2003, 6:21pm » |
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I know the feeling and you're among real pains in the craniums here. You'll find a lot of good ideas, so stick around and join in.
Glad the O2 has been working so well.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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cathy
CH.com Alumnus
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Not all those that wander are lost......
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Re: I'm new here too....
« Reply #10 on: Mar 5th, 2003, 6:28pm » |
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...Welcome Strbill.....sorry your a sufferer but you won't find a nicer bunch of people anywhere...ANYWHERE!!
Glad that the O2 is working most of the time for you...and long may it continue to do so... ;D
cathy.. 
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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Strbill
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Good Grief! Another Clusterhead!
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Re: I'm new here too....
« Reply #11 on: Mar 5th, 2003, 7:36pm » |
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Thank you for all the welcomes. Just so happens that after my post I had one....at work yet which is rare. 45 min. and no oxygen....so I go outside breath heavy, pace, and drip and run on the left side as usual.
I do find it amazing the behavioral similarities we have when dealing with the PAIN. Facinating. It's "comforting" to realize my personal, bizarre jirations in trying to escape the PAIN are in fact run-of-the-mill.
In my third week of the cycle now after almost two years without. I take no preventatives now, but am getting quit an education in what's out there and working for some.
I'll keep reading and thanks again.
Bill
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If I wanted nails pounded in my head and neck........
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Not4Hire
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...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: I'm new here too....
« Reply #12 on: Mar 5th, 2003, 7:53pm » |
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welcome bill......glad yer having luck with the o2....if I may, please tell us "how" you administer it (details like mask type/ liters per minute/ length of use/ whatever else)......and how you got "on" to this excellent abortive.....
the feeling that you describe: finding a "sanctuary" where we speak your language of pain....it IS amazing, no?
GYFU-SYH: glad you found us-sorry you're here.....
Steve(N4H)
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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Strbill
New Board Newbie
Good Grief! Another Clusterhead!
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Re: I'm new here too....
« Reply #13 on: Mar 5th, 2003, 8:41pm » |
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I use a mask, 6-8 lpm, for 5 to 10 mins. Sometimes when intense (what's a kip?) I will breathe through nose and sort of gasp through my mouth.
Back in the 70's I bought a book called "More that two asprin." by a Dr. Diamond...O2 was mentioned in the CH chapter, but I didn't consider it feasable. Well, 20 years later and still not finding "My thing" to handle the CH's, I was finally "angry?" enough to push for a try. I believe it was after an exeptionally long and painful episode.
When they first started (I was 17), I'd have two cycles spring and fall per year......about the last 10 or so years it's just been around springtime for 6-8 weeks...so I'm not really interested in finding a preventative....
At the first sign I can get the oxygen by the next day and its managable..........My heart goes out to you all who have them more often than I.
Bill
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If I wanted nails pounded in my head and neck........
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JDH
CH.com Alumnus
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We will get by, We will survive!
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Re: I'm new here too....
« Reply #14 on: Mar 5th, 2003, 10:30pm » |
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Welcome Bill,
Sorry about the pain but this is the best place to be if you're a clusterhead. There's tons of good info here.
the Kip scale is the universal way to rate the intensity of our headaches.
check it out.
Jim
http://www.clusterheadaches.com/scale.html
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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cootie
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Re: I'm new here too....
« Reply #15 on: Mar 5th, 2003, 10:35pm » |
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A late howdy-do to you strbill......Pam-Coots
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Woobie
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Re: I'm new here too....
« Reply #16 on: Mar 6th, 2003, 7:25am » |
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Just wanted to say hello, and welcome!
A lot of newbies in the past few weeks.. that's kinda a good thing, and a bad thing.. good that people are finding this place, bad that there are more people out there with these beasts..
glad you found this place!!
give me a while to figure out who's who!! I'm so confused right now!
LOL
Tina 
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