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   Author  Topic: One lucky family ???  (Read 1137 times)
netniet
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One lucky family ???
« on: Dec 29th, 2002, 5:23am »
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I have a question for all of you.
 
Is anyone familiar with along family history of clusterh.
 
It seems my family thing  Undecided,  
cause my great grandmother, grandfather, father and last but not least I Sad.
Allso some uncles, cousins etc. (all from father side of the family) suffer from clusterh.
 
I never heard this before and cluster isn't now as a family happening.
So I was wondering are we the lucky ones ???
 
Ninet
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Brassbear
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Re: One lucky family ???
« Reply #1 on: Dec 29th, 2002, 5:35am »
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Ninet: From everything I've been able to find CH is not supposed to be hereditary. However, my father has both migraines and CH just like I do. As far as I know, that's all for my "blood kin".
 
Just found out a couple of days ago that my daughter in law is also a clusterhead.
 
Michael
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Bob P
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Re: One lucky family ???
« Reply #2 on: Dec 29th, 2002, 8:22am »
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The articles I've read say CH is 10 to 20 times more frequent in relatives of a clusterhead than in the general public.
 
I hope you guys have filled out the Heredity Survey on the OUCH Surveys page.
 
http://www.clusterheadaches.org/library/general/heredity.htm
« Last Edit: Dec 29th, 2002, 8:24am by Bob P » IP Logged

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suzy617
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    suzy617
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Re: One lucky family ???
« Reply #3 on: Dec 29th, 2002, 9:09am »
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Hi Netniet, There is nobody else in my family that has ever had CH so I guess I was picked to be the lucky one. Sad
 
suzy
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27810130 27810130   kennkurr  
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Re: One lucky family ???
« Reply #4 on: Dec 30th, 2002, 4:15pm »
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I believe the IHS is supporting the idea that approx 7% of clusterheads carry a dominate gene contributing to their disease.  The final draft of the IHS proposed revision of the diagnostic guidelines contained the information, but I haven't seen the new official guidelines yet to be sure that it was kept.  Last I read, they were planning to publish the new guidelines in January.
 
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