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Topic: Jonny (Read 1405 times) |
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Silver_Dolphins
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Do you nervously await the blows of cruel fate?
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I am confused (what else is new). Some doctors have told me I need to use a rebreather mask, yet everyone here says NON rebreather.
I am starting my 02 treatment Monday, as soon as I find a new neuro. Firing this one. When I call his office for a prescription, I damn well expect it, so here I sit with a kip6, pissed as hell, and am considering driving to the EMS station, but I need to know EXACTLY how to use 02.
Thank you.
Barry a/k/a Silver Dolphins
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Through the corridors of sleep, past the shadows dark and deep, my mind dances and leaps in confusion. I don't know what is real, I can't touch what I feel, and I hide behind the shield of my illusion
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jonny
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You want to use a non-rebreather mask at a flow rate of 8-15 LPM's
Give me a few mins and ill post a pic of the mask.
.........................jonny
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Silver_Dolphins
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Do you nervously await the blows of cruel fate?
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Re: Jonny
« Reply #2 on: Dec 27th, 2002, 8:20pm » |
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Thank you. Thank you. Thank you. I guess it is too late now to go to the EMS, but when the next one hits, I will be pestering them.
Watch, the station will be deserted because of some disaster.
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Through the corridors of sleep, past the shadows dark and deep, my mind dances and leaps in confusion. I don't know what is real, I can't touch what I feel, and I hide behind the shield of my illusion
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jonny
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Dennis (Pimplestilskin)
Bail me out, Dude......cant find the pic on my hard drive.
Sorry, barry.
got any questions, mail me, Bro.
...........................jonny
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Frank
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Here a link to a picture of a non-rebreather mask...http://www.jlenterprise.com/nrbmx.html
The mask has a one way valve that allows the tank to fill the bag O2. When you exhale, that air goes out through one way valves in the mask. So you're not re-breathing stuff you already breathed once; hence the name.
Depending on how you breathe, you usually need to gently squeeze the bag when you inhale. Sometimes the valves on the sides of the mask fall off or leak, so you might need to block them (another great use for duct tape). The idea is to be breathing 100% oxygen.
If you are using O2 at 6-15 LPM, don't fall asleep whith it on... easy to do at night when the pain starts fading. You won't die, it will just dry your lungs out which hurts.
If your doc gives you the wrong mask (intentionally or un-intentionally), head down to one of those home health stores that sell wheelchairs, walkers, and 3 foot tall toilet seats. Many also carry O2 masks.
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| « Last Edit: Dec 27th, 2002, 9:13pm by Frank » |
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brain_cramps
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Re: Jonny
« Reply #5 on: Dec 28th, 2002, 4:48am » |
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Good point Frank!!!
on Dec 27th, 2002, 9:09pm, Frank wrote:If you are using O2 at 6-15 LPM, don't fall asleep whith it on... easy to do at night when the pain starts fading. You won't die, it will just dry your lungs out which hurts.
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Not4Hire
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...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: Jonny
« Reply #6 on: Dec 28th, 2002, 10:31am » |
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here's a link that may help:
...an oxygen primer...
http://tinyurl.com/3voa
Good luck!
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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RobinT
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Re: Jonny
« Reply #7 on: Dec 29th, 2002, 10:31am » |
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when i had my first series of CH's (7 yrs ago), I remember my Neuro gave me a slip of paper to take to the ER, outlining to put me directly on 02 and skip the crap. HAHAHAHAHAHA......first we did my insurance info, then they felt the need to take blood pressure, temperature, etc., by the time they were done, my CH had run it's course. Last trip to the ER for me.
(sorry, not related, just reminded me of the experience)
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Who's pain is normal any way?
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Silver_Dolphins
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Do you nervously await the blows of cruel fate?
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Re: Jonny
« Reply #8 on: Dec 29th, 2002, 10:46am » |
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I have heard all the horror stories of the ER visits. I know what would happen. The Beast would leave and they would all think I was just trying to get some drugs or that I was nuts.
On a better note, I went to the firestation the other day and introduced myself to the crew on watch. They said they would be more than happy to facilitate my requests and understood the situation. These were the FIREFIGHTERS not the EMT's. However, they also said they would relay my requests to all the shifts, so that nobody gets surprised at 2 am.
I have not had to go to the station, but it is good to know that I can. It is less than a mile from my house.
PFDAN
Silver Dolphins a/k/a Barry
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Through the corridors of sleep, past the shadows dark and deep, my mind dances and leaps in confusion. I don't know what is real, I can't touch what I feel, and I hide behind the shield of my illusion
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jonny
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Way to go, Barry!!!!
Jake's Rock!!
Others have done this also.
...............................jonny 
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RobinT
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Re: Jonny
« Reply #10 on: Dec 29th, 2002, 1:25pm » |
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perhaps i will visit the firehouse (good thing we give a donation, heh?)
sorry.....not funny......but i couldn't resist (i have a strange sense of humor....especially when i'm in pain)
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Who's pain is normal any way?
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jonny
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on Dec 29th, 2002, 1:25pm, RobinT wrote:
sorry.....not funny......but i couldn't resist (i have a strange sense of humor....especially when i'm in pain) |
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Your not talking about having a sense of humor while in CH pain are you?
.....................jonny
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RobinT
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Re: Jonny
« Reply #12 on: Dec 29th, 2002, 4:45pm » |
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sadly enough i am. not in extreme 8-9 pain mind you (that would be sumthing to see, heh?). this current bout is a strange one (imagine that). for the last 5 days, i think i've only had a few hrs each day with the pain level being a 1. i can joke at 2-3.....not much more, but i can joke
just got finished looking up in the phone book my Neuro's name....i hate the thought of all this b.s. ahead of me
also just realized i wasn't in remission for 6 yrs....had a bout 3 yrs ago...just didn't know what it was...i feel so dumb
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Who's pain is normal any way?
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Ted
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Re: Jonny
« Reply #13 on: Dec 29th, 2002, 8:49pm » |
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on Dec 29th, 2002, 4:45pm, RobinT wrote:| also just realized i wasn't in remission for 6 yrs....had a bout 3 yrs ago...just didn't know what it was...i feel so dumb |
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Anyone? ANYONE?
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Jonny
« Reply #14 on: Dec 29th, 2002, 9:14pm » |
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NOPE not sayin a word......... 
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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RobinT
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Re: Jonny
« Reply #15 on: Dec 30th, 2002, 9:01am » |
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~as i sit here sniveling away~ I called the Neuro's office today. Six years, hmmmmmmmmm, new patient. Need a referral (no kiddin'). The dr. can see you in 2 weeks.....yeah, right.
Obviously this receptionist has no compassion for CH pain (can't blame her, she' clueless).
I am feeling sorry for myself this a.m. Gotta snap outta it.
Jonny.....no feedback from others......I don't understand.....am i stupid for not realizing i had an "attack" 3 yrs ago?????
I don't know if i am more scared to have another attack or for tomorrow with the new doctor 
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cootie
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Re: Jonny
« Reply #16 on: Dec 30th, 2002, 10:01am » |
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I 'member Brad's attacks and episodes almost to the....' T '......and I'm jus a supporter......I remember the years they started back up and what we was into at that time or doin......hard thing ta fergit.....it's imprinted in yer mind jus like every trip ta hell. Good luck to ya with yer new nero.....our new one in town has a 3 to 6 month waitin period.....Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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RobinT
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Re: Jonny
« Reply #17 on: Dec 30th, 2002, 7:04pm » |
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thanks Pam.
I think the reason I didn't realize what was happening 3 yrs ago is that I had gum surgery (along the jawline where pain occurs). I was on a lot of narcotics. I remember for the last 3 years I thought the periodontist was a butcher and looking back, I remember the look on his face that he did not believe I could possibly be in the pain that I was in (I went to see him every other day for months). They then sent me to an endontist, however, he was not the right person either.
I feel so ashamed for the things I said about him ~blush~
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Jonny
« Reply #18 on: Dec 30th, 2002, 7:24pm » |
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Robin.....it's live and learn.....trial and error and sink or swim world were in......you'll be ok.........Pam ;D
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| « Last Edit: Dec 30th, 2002, 7:25pm by cootie » |
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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