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Topic: They refused me for the trial... (Read 246 times) |
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ave
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The Academic hospital in Leiden, hereabouts, is mounting a full scale MIR scan for clusterheads, to get as much info on our cooky brain they can.
I was sollicited to take part.Then when I phoned on, I got turned down.  .
Turns out I am not a true episodic OR a true chronic either, at this point in time. Used to be episodic. Since spring I have had 1/2/3 painles attacks almost every day. (Except for the one occasion I forgot myself with liquorice.) Low level chronic is what I say, but that's not on the books.
It is a shame. They need people to take part. I was willing eniough, but my case is not clear cut. I DO understand. They need evidence that cannot be refuted. Also, insurance does not pay for the MIR scan, since there is already a diagnosis. Precious research money would be wasted on a wishy washy case like myself.
So... let's toddle on till somebody needs me again.
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Cerberus
New Board Hall of Famer
Whomever said that two heads are better than one?
Gender: 
Posts: 2117
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Re: They refused me for the trial...
« Reply #1 on: Dec 7th, 2002, 3:39pm » |
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ummmm....kinda self defeating ,that study, since they refused you ,not so sure I want to be a part of those stats anyway if the criteria is THAT selective.
Cerebus
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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cbolony
New Board Newbie
I love YaBB 1G - SP1!
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Re: They refused me for the trial...
« Reply #2 on: Dec 7th, 2002, 5:00pm » |
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ave i am going monday to the new england head clinic
for the trial i we let you know monday night if they
take me .
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